MRI scan of head

I have thought about this myself and what a scan could tell you but then thought, what would it matter what it told you ? What could you gain from it ? You would still be in the same position with or without it don't you think ? I understand we all want to know why but at the end of the day we have to live with how we are unless there is some procedure or treatment proven beneficial to the condition. 

Ah, after decades I'm managing OK now and there's no need for any procedure or treatment (well, maybe a few edibles from time to time).  I just think it would have some explanatory value and I'd feel validated that I was, in fact, always somewhat different in that regard.  Moreover I've been told many times over the years that "Everyone gets nervous" or "We all get butterflies sometimes" by people who were basically wanting me to just shut up and put up and keep persisting because they felt that was what they did and I just didn't have the gumption for it.  Proof of a physical difference would therefore be very interesting to me and, since I've gone through the procedure for a different issue, it might just be easy to obtain.    

I understand completely where you are coming from and that seems natural to me but I suspect it is ' closure '  ( American therapy talk that means very little ) you may be seeking on a deeper level. Many of us want to know exactly what is wrong with us and we want it explained with 100% clarity so there is absolutely no doubt. We just want the suffering to end and it would be nice if someone on the outside could come along and ' fix us ', like a superhero for example ( sadly another American myth of movies ). 

I'm not reading into your own situation with any of the above as only you will know you best but what would change if you got all you wished for ? What would change if nothing abnormal was found and what would happen if they said, yeah there is a certain abnormality in this part of your brain ? 

With the gazillions of variables in brain science would anything they told you satisfy you or bring ' closure ' ? Would an abnormality found not just bring with it 100's or 1000's of additional variables and torturous questions ? 

Of course, if that is your thing and you wish to pursue a career from your findings then that is admirable. Otherwise, I'm not convinced of what a scan could benefit an individual ?

Good luck in your proceedure btw .

Yes, I've certainly found this.  I have a systemic, progressive disease affecting my kidneys and liver but also possibly my heart, brain and other organs.  So far I've seen a geneticist, a nephrologist, a hepatologist and a neurologist (plus probably others over the years - e.g the risk for bowel cancer is also higher so I needed to be screened for that) but there's no dedicated service to bring it all together.  Not had an endocrinologist though.  :)  

Have you been through the endocrine specialists?   

Lots of things are linked together - the problem with the NHS is it's too difficult to get an overview - each specialist only does their own thing and there's no holistic approach.

Have you been through the endocrine specialists?   

Lots of things are linked together - the problem with the NHS is it's too difficult to get an overview - each specialist only does their own thing and there's no holistic approach.

Yes, I've certainly found this.  I have a systemic, progressive disease affecting my kidneys and liver but also possibly my heart, brain and other organs.  So far I've seen a geneticist, a nephrologist, a hepatologist and a neurologist (plus probably others over the years - e.g the risk for bowel cancer is also higher so I needed to be screened for that) but there's no dedicated service to bring it all together.  Not had an endocrinologist though.  :)