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re- referral for autism

puzzled mum

HI guys hope u r all well and keeping the help and supprt flowing i think this is a great place to speak out .

i am now asking for help again ,here's the run down

my boy is 12 ,has been diagnosed with dyslexia 2 years ago after a long fight with his school .has attended autism clinic for bout 2 years .came back after a long process that he has lots of traits but doesnt meet all the boxes .they sent him to adhd who say yes and been on tablets and doing well different child although some things havnt gone even with medication .has problems with routine ,obsessed with certain things and when out cant cope with crowds etc

question  i have is he has been sent for again to autism clinic  , i deep down feel he has  autism and they didnt see all he does especially at home before saying no .how do i exlpain that to them in 2 weeks ,i am doing a diary like someone suggested but what else can i say to them to get my point over .also if told no again how do u cope with all the meltdowns although ur told nothings wrong .its so confusing

Parents

  • I'd say dont say no and go to the appointment would be the most important thing but i'd find out if you can get a support worker of some kind to go with you, I know I had one go with me when i went through my own disability claim due to my mental health and it made all the difference...I'm not positive they can help or if it applies to you even but Gofal.org.uk were the people that helped me maybe they can help you to.  also maybe get a letter from the teacher/school to support you and give some added wieght to the matter your pushing.

    my only other advice and heavens knows this next bit sounds like idiocy but they say sometimes good help comes from the strangest of places I watch a thing on TV called Extreme Makeover: Home Edition and they've done a couple of shows with Autistic kids homes and they went to proper experts for advice on what triggers and what soothes meltdowns and all that kind of stuff maybe if you watch the relevent episodes you might get some helpful advice off there too.  I know i picked up a couple of things from there that i would never have thought of and they helped

Reply

  • I'd say dont say no and go to the appointment would be the most important thing but i'd find out if you can get a support worker of some kind to go with you, I know I had one go with me when i went through my own disability claim due to my mental health and it made all the difference...I'm not positive they can help or if it applies to you even but Gofal.org.uk were the people that helped me maybe they can help you to.  also maybe get a letter from the teacher/school to support you and give some added wieght to the matter your pushing.

    my only other advice and heavens knows this next bit sounds like idiocy but they say sometimes good help comes from the strangest of places I watch a thing on TV called Extreme Makeover: Home Edition and they've done a couple of shows with Autistic kids homes and they went to proper experts for advice on what triggers and what soothes meltdowns and all that kind of stuff maybe if you watch the relevent episodes you might get some helpful advice off there too.  I know i picked up a couple of things from there that i would never have thought of and they helped

Children
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