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re- referral for autism

puzzled mum

HI guys hope u r all well and keeping the help and supprt flowing i think this is a great place to speak out .

i am now asking for help again ,here's the run down

my boy is 12 ,has been diagnosed with dyslexia 2 years ago after a long fight with his school .has attended autism clinic for bout 2 years .came back after a long process that he has lots of traits but doesnt meet all the boxes .they sent him to adhd who say yes and been on tablets and doing well different child although some things havnt gone even with medication .has problems with routine ,obsessed with certain things and when out cant cope with crowds etc

question  i have is he has been sent for again to autism clinic  , i deep down feel he has  autism and they didnt see all he does especially at home before saying no .how do i exlpain that to them in 2 weeks ,i am doing a diary like someone suggested but what else can i say to them to get my point over .also if told no again how do u cope with all the meltdowns although ur told nothings wrong .its so confusing

  • Hi - I don't know what you'll think of this suggestion, but would your child object to being video'd in the home environment so you could show it to the professionals?

  • Hi, my daughter is 16, she was assessed last year for Autism and they said no she didn't tick every box so she isn't autistic.  She has Auditory processing disorder though.  As she is getting older though she seems to meet all the traits....

    No friends due to social isolation....her world is her computer and bedroom

    Can't carry on conversation...yes or no answers

    Phobias on everything

    Temper tantrums

    Hates people whistling humming singing

    No thought of people's feelings 

    Lack hygiene /doesn't follow fashion wears same clothes

    Repetitive dvd watching same dvd over and over

    Aggressive moods /argumentative about nothing

    Dissects food into miniscule pieces

    Moves away abruptly from people when shopping 

    Rocks when on computer

    Picks skin till bleeding/ scabs all over her

    Bed wetting till 14/15

    These are just a taste of her behavior.....anyone think she definitely needs another assessment.......?  Please as I am extremely worried and desperate for help Smile

  • I'd say dont say no and go to the appointment would be the most important thing but i'd find out if you can get a support worker of some kind to go with you, I know I had one go with me when i went through my own disability claim due to my mental health and it made all the difference...I'm not positive they can help or if it applies to you even but Gofal.org.uk were the people that helped me maybe they can help you to.  also maybe get a letter from the teacher/school to support you and give some added wieght to the matter your pushing.

    my only other advice and heavens knows this next bit sounds like idiocy but they say sometimes good help comes from the strangest of places I watch a thing on TV called Extreme Makeover: Home Edition and they've done a couple of shows with Autistic kids homes and they went to proper experts for advice on what triggers and what soothes meltdowns and all that kind of stuff maybe if you watch the relevent episodes you might get some helpful advice off there too.  I know i picked up a couple of things from there that i would never have thought of and they helped