Diagnosis catch 22

How do I communicate that I have a problem with communication?

I have read the article on how to discus with a Dr but still anxious about having this conversation.

I have a real problem too, being over spoken, as verbally I forget the use of language, especially when something does not go in the direction I expect it too.

I have made and cancelled many appointments to discus the possibility that I may have Asperger’s with my GP. But when I have managed get there I have just talked about depression and anxiety.

It all ends up coming back to the same thing; I have a thyroid gland that does not function at all and most of the time I don’t take my medication. A symptom of this behaviour can be anxiety and depression. I'm told to go away, take your medication and if you still feel the same way then come back.

I then don’t want to make another appointment because I never managed to get myself together to take my medication. No Dr has ever bothered to look at any written list of symptoms I have ever produced either.

The thing is when I used to live with my mum and she was militant about my medication I was still anxious and depressed. I would think I was some kind of freak girl as no one else seemed to have the social communication problems I had, amongst other things.

I think I am actually part of a big awful cycle, a happy, relaxed, person with good personal organisation skills would not ignore their medication but the anxiety of falling apart and failing at everything increasses my not careing about myself enough to even want to try.

I want a diagnosis because I am so unhappy, I want a name for it, Asperger’s seems to fit very well  the only area I don’t really fit is understanding jokes and sarcasm metaphore - however I do see much humour where others see no humour and verbally I often use metaphors to explain things but in a way no one can ever grasp.

Taking someone with me is out of the question - mum has no idea I feel this way and is only concerned with comparing my unemployment to my impossibly successful cousins, I am not the Architect I trained to be. The rest of my family have given up - they invite me to family gatherings out of obligation but don’t talk to me or my boyfriend at all. I've never in my life had any friends’. My boyfriend gets it but as it has nothing to do PHP programming he would not speak up for me as passionately as I need him too and would easily be swayed by a fluid speaking GP.

Aged 8 (i'm 28 now) in the years before I believe Asperger’s was widely recognised my primary school head teacher noticed 'something' about me and had me tested. I was considered to be fine and the development consultant told me and mum how very impressed he was in my ability to observed fine details and patters, also he was very intrigued with my interest in drawing blueprints for buildings. I remember this so clearly as he was the man who introduced the word Architect into my vocabulary.

My ‘something’ was then considered to be a result of a childhood trauma I experienced. Should I mention this?

Should I tie my needing for help with the general agenda of trying to get people into employment?

I am not looking for money, my boyfriend earns a reasonable living in a job he adores meaning I can’t apply for benefits anyway. I just need help gaining my own independence socially and financially away from him - as much as I love him. It seems pathetic like I am using a service meant for other people but I can't live like this. I'm not the fool  people have said I am yet I can’t seem to cope with life or conversation or mployment but I can’t cope with being dependent on him either.

Parents
  • I think Silver's suggestion of writing a letter is a good one but it may not solve the basic problem: it is very difficult to get adult diagnosis because there isn't sufficient provision countrywide.  If you're living somewhere where there isn't any (I live in Essex and it's night on impossible despite some people working very hard to try and change that) this effectively means that even if your GP were prepared to recognise your need for assessment and diagnosis, there is not likely to be anywhere he/she can send you for that assessment.

    I'm sure you must find it extremely difficult to deal with people telling you, essentially, to grow up and get on with it.  I think you already know that you should limit interaction with anyone with this attitude as much as feasibly possible.  You cannot make someone who doesn't want to understand, understand!  

    I would ask you how much you have read.  One of the things that helped me to accept my situation and move forward with a different outlook was reading other people's experiences.  If you have read a lot, then sorry for stating the obvious, but if you haven't, please read Aspergirls by Rudy Simone.  I found myself in that book and my world finally made sense.  It didn't make it any better but at least I wasn't flailing around wondering what on earth was happening anymore!  

    A sense of humour is commonly believed to be absent in people with ASD/HFA.  This is not, in my experience, accurate.  In our house we like to think that our sense of humour is simply more 'intellectual' since we are punning masters who have enormous fun with words and use sarcasm like the sharpened blade it can be!  We don't respond well to inanity.  That doesn't mean we have no sense of humour: simply that we have a "different" sense of humour to a lot of people we come across.  Never unerestimate the joy that comes when you finally gather a few people into your life who "get it".

    I also found that reading about others like me made me treat myself more gently.  I am less inclined to revert immediately to "what's wrong with me?"-type thoughts now and more likely to think "ah! I see what happened there - oh well!".  Self-esteem is hard to come by when you've been walking through life with people looking at you like you're an alien but self-educating allows you look at yourself differently.  My favourite analogy is that you would not beat yourself up for being misunderstood in China - you would go out and learn Chinese.  By the same token, once you accept that you're speaking a different language, you can choose whether or not to stick the Babel Fish in your ear: that gives you power which leads ultimately to self-esteem.

    Trust yourself.  I understand the need for a name: naming something makes it smaller because it is no longer an unknown to be feared.  But if you are unlikely to be able to have someone do that for you, you need to use your intellect (which is clearly not impaired) to do it for yourself.

    In my opinion - obviously!

Reply
  • I think Silver's suggestion of writing a letter is a good one but it may not solve the basic problem: it is very difficult to get adult diagnosis because there isn't sufficient provision countrywide.  If you're living somewhere where there isn't any (I live in Essex and it's night on impossible despite some people working very hard to try and change that) this effectively means that even if your GP were prepared to recognise your need for assessment and diagnosis, there is not likely to be anywhere he/she can send you for that assessment.

    I'm sure you must find it extremely difficult to deal with people telling you, essentially, to grow up and get on with it.  I think you already know that you should limit interaction with anyone with this attitude as much as feasibly possible.  You cannot make someone who doesn't want to understand, understand!  

    I would ask you how much you have read.  One of the things that helped me to accept my situation and move forward with a different outlook was reading other people's experiences.  If you have read a lot, then sorry for stating the obvious, but if you haven't, please read Aspergirls by Rudy Simone.  I found myself in that book and my world finally made sense.  It didn't make it any better but at least I wasn't flailing around wondering what on earth was happening anymore!  

    A sense of humour is commonly believed to be absent in people with ASD/HFA.  This is not, in my experience, accurate.  In our house we like to think that our sense of humour is simply more 'intellectual' since we are punning masters who have enormous fun with words and use sarcasm like the sharpened blade it can be!  We don't respond well to inanity.  That doesn't mean we have no sense of humour: simply that we have a "different" sense of humour to a lot of people we come across.  Never unerestimate the joy that comes when you finally gather a few people into your life who "get it".

    I also found that reading about others like me made me treat myself more gently.  I am less inclined to revert immediately to "what's wrong with me?"-type thoughts now and more likely to think "ah! I see what happened there - oh well!".  Self-esteem is hard to come by when you've been walking through life with people looking at you like you're an alien but self-educating allows you look at yourself differently.  My favourite analogy is that you would not beat yourself up for being misunderstood in China - you would go out and learn Chinese.  By the same token, once you accept that you're speaking a different language, you can choose whether or not to stick the Babel Fish in your ear: that gives you power which leads ultimately to self-esteem.

    Trust yourself.  I understand the need for a name: naming something makes it smaller because it is no longer an unknown to be feared.  But if you are unlikely to be able to have someone do that for you, you need to use your intellect (which is clearly not impaired) to do it for yourself.

    In my opinion - obviously!

Children
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