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Confused and annoyed

UnSafetyDancer

Hi there,

            I'm not really sure how to explain this so sorry if this is a bit long.

  Last year I had to take time away from university because my life had basically become unmanageable. For as long as I can remember I have felt nervous and confused when talking to people, especially in large groups. I often feel like I don't belong anywhere or fit in. A few other things happened to make this worse which I don't really want to discuss on here and I ended up going to my GP (who was really helpful and took me seriously) and was referred to the CMHT. After a few visits with a mental health nurse she told me she was referring me to a psychologist to be tested for aspbergers syndrome. Months later I actually do a test (this questionaire I had to fill out) and am told I "almost certainly" have aspbergers but this only counts as a "provisional" diagnosis. I was then told that as I am an adult (currently 22) there isn't anything they can do and they probably won't even do anything to upgrade my diagnosis from provisional to anything more definite. I was also told I would probably be discharged from the service and now had a psychiatric record I "probably didn't need".

  I'm confused. They still haven't dealt with some of the other issues I came to them with and have just given me more questions I would like answers to. If they can't do anything why even bother testing me? Is a provisional diagnosis enough for me to try and find treatment elsewhere? They haven't really explained anything I only found out most of what I know about aspbergers by looking on this site. I feel like I've been left hanging without any sort of satisfactory solution and I'm not really sure what to do.

  Does anyone have any advice for me? I would be really grateful for some advice on what I should do now as I'm really not sure.

  Thanks for taking the time to read this.

Parents

  • I have a lovely 5 year old son who is presenting with increasingly worrying behaviour and I'm not sure what to do next.  He loved nursery and would have the occasional meltdown but since starting school these are increasingly frequent.  Typical triggers may be something incidental that has happened at school, the colour of the seat he is sitting in, not being able to find something he is looking for.  These incidents result in screaming, crying, spitting, smacking, kicking, punching and sometimes biting.  I am really sad because he is genuinely distressed and although he laughs while showing this behaviour, when he comes out of the other side is genuinely sorry.  He is very particular about how he likes certain things to be.  He finds choices hard, eg: choosing a comic as a reward can take 20 minutes, and has to be limited to a very small amount of choices as he becomes quite agitated.  He will only go to poos if he takes all his clothes off and will squat on the toilet, has to have the labels cut out of his pants or he becomes very upset, and has a very particular way of doing up his shoes, asks for help then becomes very angry and throws them if it's not the way he wanted them to be.  I went to see my GP who referred him to CAMHS, who said he didn't meet their thresholds and wouldn't accept the referral.  At at that time he was showing risk taking behaviour, eg: jumping half way down the stairs to the bottom when he became agitated.  I really don't know where to go next?  He is getting on well at school and when I have spoken to them previously the staff seem incredulous that I am describing the same child!  Recently there are often days on end when he seems to find everything stressful and is constantly angry and irritable.  I would just like advice on how to help him the best as it's awful seeing so distressed.

    Any advice/comments would be welcome.  Have tried rewards/behaviour charts, etc, with very limited success.

Reply

  • I have a lovely 5 year old son who is presenting with increasingly worrying behaviour and I'm not sure what to do next.  He loved nursery and would have the occasional meltdown but since starting school these are increasingly frequent.  Typical triggers may be something incidental that has happened at school, the colour of the seat he is sitting in, not being able to find something he is looking for.  These incidents result in screaming, crying, spitting, smacking, kicking, punching and sometimes biting.  I am really sad because he is genuinely distressed and although he laughs while showing this behaviour, when he comes out of the other side is genuinely sorry.  He is very particular about how he likes certain things to be.  He finds choices hard, eg: choosing a comic as a reward can take 20 minutes, and has to be limited to a very small amount of choices as he becomes quite agitated.  He will only go to poos if he takes all his clothes off and will squat on the toilet, has to have the labels cut out of his pants or he becomes very upset, and has a very particular way of doing up his shoes, asks for help then becomes very angry and throws them if it's not the way he wanted them to be.  I went to see my GP who referred him to CAMHS, who said he didn't meet their thresholds and wouldn't accept the referral.  At at that time he was showing risk taking behaviour, eg: jumping half way down the stairs to the bottom when he became agitated.  I really don't know where to go next?  He is getting on well at school and when I have spoken to them previously the staff seem incredulous that I am describing the same child!  Recently there are often days on end when he seems to find everything stressful and is constantly angry and irritable.  I would just like advice on how to help him the best as it's awful seeing so distressed.

    Any advice/comments would be welcome.  Have tried rewards/behaviour charts, etc, with very limited success.

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