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Confused and annoyed

UnSafetyDancer

Hi there,

            I'm not really sure how to explain this so sorry if this is a bit long.

  Last year I had to take time away from university because my life had basically become unmanageable. For as long as I can remember I have felt nervous and confused when talking to people, especially in large groups. I often feel like I don't belong anywhere or fit in. A few other things happened to make this worse which I don't really want to discuss on here and I ended up going to my GP (who was really helpful and took me seriously) and was referred to the CMHT. After a few visits with a mental health nurse she told me she was referring me to a psychologist to be tested for aspbergers syndrome. Months later I actually do a test (this questionaire I had to fill out) and am told I "almost certainly" have aspbergers but this only counts as a "provisional" diagnosis. I was then told that as I am an adult (currently 22) there isn't anything they can do and they probably won't even do anything to upgrade my diagnosis from provisional to anything more definite. I was also told I would probably be discharged from the service and now had a psychiatric record I "probably didn't need".

  I'm confused. They still haven't dealt with some of the other issues I came to them with and have just given me more questions I would like answers to. If they can't do anything why even bother testing me? Is a provisional diagnosis enough for me to try and find treatment elsewhere? They haven't really explained anything I only found out most of what I know about aspbergers by looking on this site. I feel like I've been left hanging without any sort of satisfactory solution and I'm not really sure what to do.

  Does anyone have any advice for me? I would be really grateful for some advice on what I should do now as I'm really not sure.

  Thanks for taking the time to read this.

Parents

  • Sorry to hear things are tough. Your story sounds very like my sons. When he was 17 he ended up taking a year out of his A levels as life had overwhelmed him.

    Luckily we managed to get a diagnosis of Aspergers  ( he's had difficulties all his life)and things are really picking up fo him. he's now picked up his studies and hopes to get to uni next autumn

    A few suggestions for you . Do your council have an autism team ? If so might be worth speaking to. Have you a local austim society, they may be able to help you find the way to diagnosis. Ot your local Mencap. It's going to take a bit of effort to find the peopl who can help you , but you will find them - don't give up. Even go back to your GP.

    Earlier this year my son was referred to CMHT too. After a chat with him , they explained he wasn't bad enough to come under their team, but in a posisitve way. You need to get tp see the Physchologist rather than the psychiatic nurses .

    Are you back at Uni? If so, try and get to speak to the diability team. Although you don't have a diagnosis yet they have good support mechanisms and may be able to get you help through their contacts.

    Have you got family who can help you get to the right people - sometimes its a bit of a battle but you shuld push for it.

    A diagnosis could get you financial support at uni and beyond, a mentor to help you with your studies as some allowances made for you at Uni when you are having a tricky patch. They'll help keep you on track and stop you feeling orverwhelmed.

    Keep posting and we'll keep helping.

     

Reply

  • Sorry to hear things are tough. Your story sounds very like my sons. When he was 17 he ended up taking a year out of his A levels as life had overwhelmed him.

    Luckily we managed to get a diagnosis of Aspergers  ( he's had difficulties all his life)and things are really picking up fo him. he's now picked up his studies and hopes to get to uni next autumn

    A few suggestions for you . Do your council have an autism team ? If so might be worth speaking to. Have you a local austim society, they may be able to help you find the way to diagnosis. Ot your local Mencap. It's going to take a bit of effort to find the peopl who can help you , but you will find them - don't give up. Even go back to your GP.

    Earlier this year my son was referred to CMHT too. After a chat with him , they explained he wasn't bad enough to come under their team, but in a posisitve way. You need to get tp see the Physchologist rather than the psychiatic nurses .

    Are you back at Uni? If so, try and get to speak to the diability team. Although you don't have a diagnosis yet they have good support mechanisms and may be able to get you help through their contacts.

    Have you got family who can help you get to the right people - sometimes its a bit of a battle but you shuld push for it.

    A diagnosis could get you financial support at uni and beyond, a mentor to help you with your studies as some allowances made for you at Uni when you are having a tricky patch. They'll help keep you on track and stop you feeling orverwhelmed.

    Keep posting and we'll keep helping.

     

Children
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