Autism training for healthcare workers becoming mandatory!

They use it for Bowel examinations and taking not only clears the Bowels out it also means they can see your Bowel better.  Well I fear the preparation and I also fear the examination because the examination itself as I will not be having an Anesthetic if I do not have the full Colonoscopy which requires more preparation.

I thought Gastrografin was used for x-rays. I wonder why they’re using it for a colonoscopy? Is it more the preparation that you struggle with rather than the actual procedure? 

The purge drink is Gastrografin and I was told that I can only have an Anesthetic for the  full Colonoscopy and the preparation is worse for that.  In 2008 they did the preparation in the hospital before the scan but nowadays they say that you must take that drink first and are not willing to give me an Emina.

I’m confused. The only perge drink that I know of is perge beer. Do you know the full name of the medication that they are saying you would have to take instead of the enema? Surely an enema would be sensible as it is easier to get a  good view of the bowel if it has been cleared out, as such. I think that they usually only give a sedative as standard for the actual procedure, not anaesthetic, sadly! 
Are they not able to give you any pain relief at all for during the treatment? If you are passing blood then it would probably be wise to have the colonoscopy done BUT I would revisit with them if they are able to do anything to make it easier for you. 

I am supposed to have a very unpleasant Bowel Examination as I have Bleeding when I go to the toilet.  Twelve years ago they made the following adjustments I had an Anesthetic and they cleared my Bowels out with a Barem Emina before my Colonoscopy.  Now they are saying that I have to drink that perge drink and they cannot give me a Barem Emina.  If I want an Anesthetic I have to have an examination which would involve even worse preparation.  The Doctor did put on his report that because of my Asperger Syndrome planning treatment or an examination can be very challenging.   I suppose that is correct.  I might decide to leave it and take the three percent risk of Cancer.  I am over sixty and I do not fear death itself I fear the pain in the period leading up to death.

Yes, I think that giving people who work in HealthCare but also other services such as the Police some basic training so that at least they can identify the tell tail traits or behaviours of a person with ASD.

but this is not all that is required.

I think like many other areas of health. basic training is just that. and doing basic training does not make a person an expert. I have experienced quiet a few different types of people in various support services over the years. and in some cases basic training can be dangerous, in that some people with bad personality flaws see themselves as experts in the area with just basic training, and in such cases, means that they are subject to abuse or ignore or misdiagnose people who have more subtle ASD, as is often the case with high and very high functioning ASD.

Out of interest, there is one guy in the UK called Dr. Quinton Deeley, who lives in London, who really is an expert neuroscientist / clinical psychiatrist who has chosen to specialise in neurodevelopmental disorders including ASD. He is also involved with teaching people in the NHS and the Royal Academy of Psychiatrists. Teaching psychiatrists and other health professionals the facts about ASD and how to treat / support people with ASD.

Another person who i have also had very good experience with is Dr. Ian Ensum of Bristol Autism Spectrum Services, who used to work for NAS. Dr. Ian Ensum is also a clinical psychologist who also specialism is in ASD.

Otherwise, if you want things to change, contact your local MP's.

As the more people contact MP's the better, as you never know. One of us may break through and get one of the MP's to actually do something more than simply talk out of their big bums.

Cheers

I think in an ideal world, every workplace would have some understanding in neurodiversity. However, I think that it’s especially important that all healthcare professionals and workers participate in at least some basic mandatory Autism awareness training as they are the people most likely to be a point of contact with an autistic person in the health system and best places to recognise autism (of not yet diagnosed) or sign post to the most appropriate service for support.

Nice find Kitsune.

I find that every workplace needs some form of training/recognition of Neuro diversity/.  Until invisible disabilities are as recognised as the other protected conditions in the Equality Act 2010 then there will only be lip service paid by Equality/Diversity champions and damagement.

I just found this on the government website with the full concluded consultation document:

www.gov.uk/.../learning-disability-and-autism-training-for-health-and-care-staff