Just diagnosed - talking about it?

Hi - I'm new here and looking for some thoughts from those who've been through this.

My son, 14, has just received a dx of Aspergers - after 6 years of appointments and is-he-isn't-he discussions!  Not surprisingly, this means the dx puts him on the mild end of the spectrum and after all this time, he is very good at concealing his difficulties at school - he brings them home instead ...

First, I'm surprised by my own reaction as I thought I'd have worked through all the emotions over the previous years.  It feels like actually having that dx has made some huge difference, even though he's the same person he was before the official label.  All the cliches came to life - I felt as though the breath had been knocked out of me, as though I'd been hit by a truck.  I haven't been able to talk about it with my friends because it is so hard having to explain - they are good friends but it is like speaking a different language right now.

Secondly, I'm mulling over how to talk with him about it.  Obviously, at 14, he knows a fair amount about it all, but also, at 14, he's at an age when fitting in and not being different is crucial to him.  So he certainly doesn't tell anyone about it and at the moment, he isn't really up for talking about it even to me (I'm the one he usually brings things to and he is quite open).  I want to let him manage this in his own way and at his own pace - it's his dx, after all - but I also want to help him and there are practical things to deal with.  I'm not sure if he is just letting it settle, if he isn't aware of how this affects him, or if he's avoiding thinking about it.

So, as I think all this over, I'd love to hear from those of you who've been there, as parent or as the one who's been in my son's position.

Thanks in advance ... 

Parents
  • Hi and welcome to the forum

    My son got his diagnosis of Asperger's at the age of 11 and I can totally understand how you feel (especially the bit about being hit by a truck).  It took a long time for it to sink in and quite a while for us to discuss it with our son. 

    He has not really accepted the diagnosis and struggles with the whole thing.  My husband and I are very much a punchbag for everything that is upsetting him.  Tonight's problem is to do with internet banking and the fact that he is not able to log on to his bank account - some how or other this has become my fault!  I have found that the best way is to leave him to come to us if he wants to talk rather than to try and push him to talk.  Putting him under pressure is not a good idea!

    Finding someone to talk to for you is also a good idea.  Friends are invaluable to vent your spleen at (although I can't always say that they have any understanding of what you are going through).  Your local NAS branch may have a support group that you could join.

    Please bear in mind that it is very early days yet and you are both probably still in shock.  Take one day at a time and don't rush things. 

Reply
  • Hi and welcome to the forum

    My son got his diagnosis of Asperger's at the age of 11 and I can totally understand how you feel (especially the bit about being hit by a truck).  It took a long time for it to sink in and quite a while for us to discuss it with our son. 

    He has not really accepted the diagnosis and struggles with the whole thing.  My husband and I are very much a punchbag for everything that is upsetting him.  Tonight's problem is to do with internet banking and the fact that he is not able to log on to his bank account - some how or other this has become my fault!  I have found that the best way is to leave him to come to us if he wants to talk rather than to try and push him to talk.  Putting him under pressure is not a good idea!

    Finding someone to talk to for you is also a good idea.  Friends are invaluable to vent your spleen at (although I can't always say that they have any understanding of what you are going through).  Your local NAS branch may have a support group that you could join.

    Please bear in mind that it is very early days yet and you are both probably still in shock.  Take one day at a time and don't rush things. 

Children
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