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sarahlouise

Hi,my son is 3 1/2 and has signs of autism he has poor eye contact delayed speech headbanged all the time from age 1 ,ignores pain,has difficulty expressing his needs seems sensitive to noise and touch,always lining things up perfectly does not play with toys prefers to throw them till they break does not do imaginary play hates crowds we have to rely on buses hes ok with this as long as he can sit in his favourite seat right at the back away from everyone if this seat is not free then he plays up all the way home ,he has no sense of danger cant explain things to him ,always putting inedible things in his mouth is very resistent to change and stubborn with routines,and is very repetetive and obsessed with things, gets upset over silly things , has never waved bye at the same time he is really clever for his age knows all the letters of the alphabet can count to twenty recognises his name can write his name ,anyway when i mentioned all this to my health visitor at 3yr check she reffered him for speech therapy and we also got referred to a multi agency team and they wont refer him for autism check as they think he behaves the way he does because he is frustrated because of his speech which is improving all the time yet the behaviours are not and they also think he is not learning properly in pre school  and i was  told that if they did refer him for autism assessment he would not be assessed before he has had an educational psycologists report (he is being reffered for this)  is this true was also told its a 1yr wait for autism assessment

  • thankyou for your replies we cant afford to go private otherwise we would consider it ,going to go to a day out for children with disabilities that we have been invited to see if anyone there has any help to offer with regards to getting things done a refferal has now been sent to occupational therapy again there is a waiting list for this too so dont know how long till we see someone maybe they will refer him for assesment sooner 

  • Hi 


    My son is also 3.5 years old and we had a simlar situation, although I took the matter into my own hands paid the money to have him assessed privately by a community paediatrician, slt and ot.  We have always said this is the best money we have ever invested.   He is statemented with fantastic provision as I fought hard with the LA and we won our DLA appeal to say he has higher rate in both components and this extra money funds more private therapy.   My advice to you is don't wait push for your appointments of self fund if that is a possibility.  It is sad that LA's will not diagnose in our area until 9 that is a long way off and far too late in my opinion.  You are probably at the start of a very tiresome journey.  Write everything about your son in a journal (daily if possible) as this will help you when it comes to assessments, DLA and other areas.  Best of luck I sincerely hope it works out. 

  • hi, i can understand how frustrating it is.  i'm in a similar situation, my daughters a little older and we live abroad.  we've had a psychologists report and waiting for ASD assessment.  she has speech and social issues and they wont say if its autism, aspergers or just reation to having to try and function in two languages.  but the not knowing and waiting is the worst thing.   it takes over your life and you cant make any plans.

    What worked for me is, i read up on ASD and went out and bought a couple of books that gave advice about what i could do to help.  if your son is autistic, then you will be getting a headstart with helping him, and if he isnt, you really won't have done any harm either.  the best thing is, you feel like you are doing something.  the books i got were 'what you can do right now to help your child with autism' and '10 things your child with autism wishes you knew'.  they're very practical, they're american but very readable.  there's loads of stuff about how to communicate and dealing with difficult behaviour.  i got them off amazon. 

    i hope you get some answers soon but i do think its a long wait going by what i've read on here.  This forum is really useful tho, and its so reassuring when you can see that other people are going through the same stuff.  I'm sure other people will have better advice, but have a look out there and see if there are things you can start to do whilst you are waiting.