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If you can live independantly with some support the night of the long knives is comming

Stuffed

Hi I have lived in what could be best described as independant poverty since about 2003.

I get direct payments and because I am deemed more able than those at somerset court-thus I live in a perverse poverty trap that is soon to implode.

 As anyone who has direct payments will know if you pay your carers directly then your discriminated against compared to agency pay roll.

 Now the other issue is the FAB assessment criteria is years old, this means that the values used to calculate your contribution do not couple up with the cost of living in any way shape or form.

 Now I am told that the direct payments are to be reduced or cut, this seriously annoys me as I don't manage so well at the moment.

 There seems to be no understanding this is not something that is a perk, but essential to me.

 I keep hearing that they are helping me live a forfilled and rewarding life, but I think they are deluding themselves as I can't afford a holiday, can't afford to travel to places that would interest me.

 They think a cup of tea and a sandwich once a week at a cafe is all I need.

 

I feel like I'm living in a mental prison, surrounded by people who can't understand.

 I'm on a sinking ship, but I will not go down without a fight. 

 

 

 

Parents

  • Okay it has taken me some time,

    • I have done a freedom of information request to get unpublished FAB assessment values from council-they are playing stupid, but will have to give them to me shortly.
    • I have contacted Director of Mind who has suggested supplying an Advocate to help me fill in European Court Of Human Rights paperwork
    • I have contacted Health and Parlimentary Ombudsman to iniciate a complaint. (emailed and waiting response)
    • I have asked for 26 years of NHS records to show they have failed me
    • www.legislation.gov.uk/.../made I'll ask a friend to take me along and start digging on what the money is spent on.
    • Emailed MP's
    • Emailed Rethink
    • emailed IDS regarding Autisum act 2009 
    • emailed Wessex Autistic Society

    Guidance issued under this section must in particular include guidance about—
    (a)the provision of relevant services for the purpose of diagnosing autistic spectrum conditions in adults;
    (b)the identification of adults with such conditions;
    (c)the assessment of the needs of adults with such conditions for relevant services;
    (d)planning in relation to the provision of relevant services to persons with autistic spectrum conditions as they move from being children to adults;
    (e)other planning in relation to the provision of relevant services to adults with autistic spectrum conditions;
    (f)the training of staff who provide relevant services to adults with such conditions;
    (g)local arrangements for leadership in relation to the provision of relevant services to adults with such conditions.

    • emailed NAS advice to see if they can help 
      •  www.equalityhumanrights.com contacted for help
      • info@gatesfoundation.org emailed to see what they suggest.
      • Letter to queen
      • emailed home office equality act 2010
      • emailed Liberty
      • emailed info@lawcentres.org.uk free legalhelp
      • info@aspergerfoundation.org.uk
      • emailed amnesty.org.uk

    Disabled Persons (Services, Consultation and Representation) Act 1986

    Services under s. 2 of the 1970 Act: duty to consider needs of disabled persons.
    When requested to do so by— 
    (a)a disabled person,
    (b)his authorised representative, or
    (c)any person who provides care for him in the circumstances mentioned in section 8,
    a local authority shall decide whether the needs of the disabled person call for the provision by the authority of any services in accordance with section 2(1) of the 1970 Act (provision of welfare services).

    Now they have annoyed me I will push and will not stop till it is resolved to my satisfaction

Reply

  • Okay it has taken me some time,

    • I have done a freedom of information request to get unpublished FAB assessment values from council-they are playing stupid, but will have to give them to me shortly.
    • I have contacted Director of Mind who has suggested supplying an Advocate to help me fill in European Court Of Human Rights paperwork
    • I have contacted Health and Parlimentary Ombudsman to iniciate a complaint. (emailed and waiting response)
    • I have asked for 26 years of NHS records to show they have failed me
    • www.legislation.gov.uk/.../made I'll ask a friend to take me along and start digging on what the money is spent on.
    • Emailed MP's
    • Emailed Rethink
    • emailed IDS regarding Autisum act 2009 
    • emailed Wessex Autistic Society

    Guidance issued under this section must in particular include guidance about—
    (a)the provision of relevant services for the purpose of diagnosing autistic spectrum conditions in adults;
    (b)the identification of adults with such conditions;
    (c)the assessment of the needs of adults with such conditions for relevant services;
    (d)planning in relation to the provision of relevant services to persons with autistic spectrum conditions as they move from being children to adults;
    (e)other planning in relation to the provision of relevant services to adults with autistic spectrum conditions;
    (f)the training of staff who provide relevant services to adults with such conditions;
    (g)local arrangements for leadership in relation to the provision of relevant services to adults with such conditions.

    • emailed NAS advice to see if they can help 
      •  www.equalityhumanrights.com contacted for help
      • info@gatesfoundation.org emailed to see what they suggest.
      • Letter to queen
      • emailed home office equality act 2010
      • emailed Liberty
      • emailed info@lawcentres.org.uk free legalhelp
      • info@aspergerfoundation.org.uk
      • emailed amnesty.org.uk

    Disabled Persons (Services, Consultation and Representation) Act 1986

    Services under s. 2 of the 1970 Act: duty to consider needs of disabled persons.
    When requested to do so by— 
    (a)a disabled person,
    (b)his authorised representative, or
    (c)any person who provides care for him in the circumstances mentioned in section 8,
    a local authority shall decide whether the needs of the disabled person call for the provision by the authority of any services in accordance with section 2(1) of the 1970 Act (provision of welfare services).

    Now they have annoyed me I will push and will not stop till it is resolved to my satisfaction

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