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If you can live independantly with some support the night of the long knives is comming

Stuffed

Hi I have lived in what could be best described as independant poverty since about 2003.

I get direct payments and because I am deemed more able than those at somerset court-thus I live in a perverse poverty trap that is soon to implode.

 As anyone who has direct payments will know if you pay your carers directly then your discriminated against compared to agency pay roll.

 Now the other issue is the FAB assessment criteria is years old, this means that the values used to calculate your contribution do not couple up with the cost of living in any way shape or form.

 Now I am told that the direct payments are to be reduced or cut, this seriously annoys me as I don't manage so well at the moment.

 There seems to be no understanding this is not something that is a perk, but essential to me.

 I keep hearing that they are helping me live a forfilled and rewarding life, but I think they are deluding themselves as I can't afford a holiday, can't afford to travel to places that would interest me.

 They think a cup of tea and a sandwich once a week at a cafe is all I need.

 

I feel like I'm living in a mental prison, surrounded by people who can't understand.

 I'm on a sinking ship, but I will not go down without a fight. 

 

 

 

Parents

  • I feel that "Leading Fulfilling and Rewarding Lives" is proving to be a "damp squib" (a metaphor that does seem to make sense). I hasn't made any kind of impact.

    I wonder if it was empty talk to make Government feel good. It has no force behind it to ensure that it is implemented. Despite the Department of Health's assertion in one communication to me that failing Local Authorities could face a judicial review, it seems that reality is you can only change things by voting in a new council - and what voting powers do we on the spectrum have to make that kind of difference?

    I think there has been no change. And I'd like to hear the Minister responsible for this explain publicly why there has been no attempt to give "Leading Fufilling and Rewarding Lives" any real clout. Maybe the Minister could be invited to comment on here.

    I'm just hearing more and more accounts of abject failure of this strategy.

Reply

  • I feel that "Leading Fulfilling and Rewarding Lives" is proving to be a "damp squib" (a metaphor that does seem to make sense). I hasn't made any kind of impact.

    I wonder if it was empty talk to make Government feel good. It has no force behind it to ensure that it is implemented. Despite the Department of Health's assertion in one communication to me that failing Local Authorities could face a judicial review, it seems that reality is you can only change things by voting in a new council - and what voting powers do we on the spectrum have to make that kind of difference?

    I think there has been no change. And I'd like to hear the Minister responsible for this explain publicly why there has been no attempt to give "Leading Fufilling and Rewarding Lives" any real clout. Maybe the Minister could be invited to comment on here.

    I'm just hearing more and more accounts of abject failure of this strategy.

Children
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