Back pain

Hi

i have some form of instability in my back that the doctors can't get to the bottom of, but the net result is back pain that painkillers don't deal with and it disturbs my sleep every single night. Having just read a couple of other posts and wondering for a while now about the possibility of some form of co-morbidity between autism and back issues, I thought I would just do a quick straw poll to find out how wide spread the issue is.

Thanks 

Andrew

Parents
  • Yes me too. When I was diagnosed with dyspraxia I was told it's common with dcd to not have strong muscle control, so my core is weak and therefore not supporting my spine, with the knock on effect of not supporting my upper body, shoulders, neck head etc. So not only do I have the issues to do with spine, stenosis, bulging , numbness etc I also have painful shoulders and get headaches. So I looked up these issues with Aspergers/autism recently and again there does seem to be a correlation. However I am far from dextrous or ambidextrous , more the reverse , inflexible, rigid etc I remember trying to do somersaults as a child.. I just couldn't bend enough. I have had injections which didn't last very long. Various pain medication where the morphene based ones just keep me awake all night or codeine which seriously blocks my guts so pain relief is tricky. I have taken it to be more lack of muscle control but why that should be .. no idea. I find it very interesting that you have asked this but I don't know what the answer is. 

  • I'm very interested that the painkillers have little effect, as that's what I have also found. I also, slightly ironically, didn't realise the shear volume of pain I was in until I went on painkillers and then I found out.

    My most recent "pain event" saw me on IV steroids, diclofenac and anaesthetic being used as a muscle relaxant on top of my regular medications and it still didn't fully kill off the pain

Reply
  • I'm very interested that the painkillers have little effect, as that's what I have also found. I also, slightly ironically, didn't realise the shear volume of pain I was in until I went on painkillers and then I found out.

    My most recent "pain event" saw me on IV steroids, diclofenac and anaesthetic being used as a muscle relaxant on top of my regular medications and it still didn't fully kill off the pain

Children
  • Enjoy your outside time whilst you can. You can tell me about your back if you want but it's ok. What do you think about it being connected to us or do you think it's just wear and tear due to our age or are we more prone to it. I don't know. We just had an overhead mini flash and bang of thunder and lightning but back to blue sky now. 

  • Hi missy sorry about the lack of reply,I did intend writing in more depth about my back,but you know me it would have to be a thousand word ramble,for that I need focus and energy.Ok I have chronic back pain,agree with that maybe I meant those that are in so much non stop pain that it never ever stops hurting, I have good days and bad. Yes the symptoms vary enormously,I already had sciatica in the left hip/ leg,and yes I know it is all back connected but the lower spine pain came later.so two issues. 

    I will elaborate more soon but the sun is out so going to mess about outside till it's gone,yesterday was wet and miserable.

    big hugs super lady ()

  • Lonewarrior.. long term back pain = chronic it means it won't go away and isn't short term.. so sounds like you do have chronic back pain just like me! I just found a link which explains it better. Well probably not just like me but we know it's painful and does funny things and changes depending on what it feels like doing! Is it going to be painful back, or pain down the leg and which side, or aching hips or tingling toes , or burning spine and shoulders.. mm it's got such a lot to choose from! And all that digging on one day won't help! Tricky getting the balance right between keeping moving and resting! And the pain management course I went on at the hospital said exactly that.. with pain you end up just upping the dose to keep at the same level of pain management.. so they encourage other ways to try to help, stretches, what they call pacing, meditation, tens machine. It's yet another area I find difficult to manage but if you are able to people find it helpful. Worth looking into. 

    https://www.britishpainsociety.org/static/uploads/resources/files/book_pmp2013_participant.pdf 

    www.google.co.uk/.../4672

  • Hi I have long term bad back pain,I won't say chronic as that must be unbearable, I take codiene and naproxen,the codiene seems to work with me,taking minimum amounts,recently been upping the dose as pain increase or medication has less effect.

  • Yes I had an episode more than a year ago, I think my nerve must have trapped a bit or something.. the pain was excruciating. I ended up at 90 degrees trying to stretch my spine.. so yes trying to relax the muscles was drs answer but then had a terrible time with the meds and still have problems with numbness but not sufficiently to do anything about it just something else to learn to live with. The main thing which relieves the pain is an electric blanket