I came across a thread on here talking about autism (particularly female autism) and borderline personality disorder (BPD). I noticed a few posters felt very indignant that they had once been diagnosed with BPD and felt that, once they got their diagnosis of autism, this eclipsed their BPD diagnosis and made it defunct. They didn't seem to think that one could have both at the same time. They think I've got BPD; the diagnosis was confirmed after a crisis where I had to spend the night in A&E, but it had been talked about for a while prior to this. I have a theory about it; I'm not a psychologist or any sort of MH professional so I don't know if I'm right, but this is what I have come to think about my own life.
A lot of people think that BPD is caused by trauma in the early part of childhood. I would never say that I suffered trauma...it wouldn't be fair to those who actually have. But I feel I've been damaged by my Asperger's. It caused the adults around me to try and sweep my issues under the carpet (my mum reckoned she knew since that I had autism since the age of 18 months, and yet did nothing to try and help, even though she supposedly loves me. I was just allowed to go around suffering, with no one doing anything to support me). At school, other children constantly abused me, pretty much from the day I started school. I was rejected, isolated and excluded. I was physically hit, kicked, pushed etc on many occasions throughout my school career, but there were. When I was very young, I was at a birthday party (I used to spend birthday parties crying because I felt so frightened and alone, and like my parents had abandoned me there; I also felt abandoned every day when I was dropped at school from my first day at playgroup when I was 3) and a little girl from my class got frustrated with me, agressively snatched off the sticky label I was wearing with my name on it, and tore it up and threw it on the floor in front of me. When I told my mum about this, she said, "It's because (this little girl) wants to be your friend, and you don't play with her when she wants to play with you." I took this to mean: "It's your fault she went for you." There were quite a few other incidents like that. This is how I know that I've deserved the abuse I've had over the years.
When I got to secondary school, I was very overweight and ugly as well as a defective freak. To mock me, boys would make crude comments, shove me against walls or collect around me in big gangs. They would touch me when I didn't want to be touched, sometimes hit or kick me, I was once spat on, I was once hounded into a room and had food repeatedly thrown at me, and, on all of these occasions, I would scream and cry for them to stop. It feels like this happened all the time throughout my secondary school career, however, I never once school refused because for me, that was not an option. Sometimes when I close my eyes at night I still think about school and how hated I was for being less than what other children wanted. Even the kinder children were sharp and cold with me, When I try to talk to people about it, I get told to "move on." I feel invalidated, which apparently makes BPD symptoms worse. I ended up with an eating disorder, but because I was overweight when the restrictive eating started, my mum's friends would say things to me like, "You look amazing; a touch of anorexia never hurt anyone." They'd think they were joking or being complimentary but, as you can imagine, that sort of thing made the problem worse. Then my actual diagnosis happened which was a total nightmare and it was the "straw that broke the camel's back" - I knew I would hate myself forever and ever. Nobody ever acknowledged how much it hurt me.
I can't even begin to write everything that happened, and I'm too tired to try; I'm also kind of physically unwell today with this cold that's been going round. I know I deserved everything I got at school, but still, being different is painful. What I don't understand is why nobody agrees that it's potentially damaging. A friend of our family who is an autism specialist has told me that "growing up with autism is difficult, but it doesn't count as a proper trauma" - a) I never said it was and b) her saying that just felt like more invalidation. I've always struggled with my mental health but over the last year it has deteriorated significantly. I now can't get through a day without becoming very upset, or harming myself in some way. I lose control and have to resort to anti-psychotic medication to calm me down. Obviously being Aspie I find it hard to make relationships anyway, but the ones I have feel insecure and chaotic. I do not know what or who I am, apart from that it's bad. I have been told, and from what I have read believe, that I meet criteria for BPD. The actual term is problematic for some people, but I don't find it so: I found being labelled Asperger's far more humiliating. If Asperger's was a person, I'd love to hurt it. I am broken. I think it has caused my "BPD symptoms".
Does anyone else think this could be true? Not just for me, but for them?
I have both Aspergers and BPD, they were both diagnosed together at the age of 35, I'm now 41. I had many similar experiences to you but I also got abuse at home from my dad when he was drunk which was often because he couldn't understand me or why I wasn't more like him. I felt very undervalued, unprotected and unsafe both at home and at school due to my undiagnosed Aspergers which I personally believe definitely contributed to my BPD. I also have other physical illnesses, such as type 1 diabetes and fibromyalgia and I believe the stress of having to deal with them also contributed. The thing is we are all different and what is traumatic for one person may not be so to another, there are so many contributing factors that affect each of us how can we be defined by one or two labels? All I know is I'm broken and I'll probably always be broken and I'll probably never be fully ok with that but there's not much I can do about it because I can't afford the therapy that I probably need. But I'm in the best place I've been so far and I just keep putting one foot in front of the other.
IWouldRatherBeWriting said:I would never say that I suffered trauma
signs of trauma
Dear anyone, If you have any occurences that are not pleasant like the above. I would write and either send or take to the doctor. I had a similar occurrence at school home. And so write most things out.
Also, people with ASD are socially myopic. And may end up with people with BPD because they can't see their behavior normally.
awesome - the misdiagnosis continues.
Pirate Santa said:
Speaking as someone who also used to worry that I had both ASD & BPD, the overlap is actually with ADHD not BPD.
I am currently on a waiting list for an ADHD assessment to complement my ASD diagnosis a few years ago. A few months ago I joined a support group for adults with ADHD or those awaiting diagnosis. When I mentioned at the first meeting I attended that I had at one point worried I might have BPD, several people laughed & said "Not Another One", since it seems to be quite common for people with Adult ADHD to incorrectly diagnose themselves with BPD after reading things online, which was certainly what I had done.
Pirate Santa said:The main reason for the confusion is a core feature of Adult ADHD called "Rejection Sensitive Dysphoria" which can mimic many of the symptoms of BPD, especially the fear of being alone, but for entirely different reasons. I was also horrifically bullied at school for many years which made me extremely susceptible to RSD to the point where I would try to change my personality in different social contexts in order to avoid rejection. This also mimics the chameleon features of BPD & once again for entirely different reasons. Once I understood more about the subject, I could see why so many people with Adult ADHD get confused & worry about BPD.
I was diagnosed with autism aged 63, two years ago but also PTSD and BPD after reading your post I’m wondering if I have ADHD instead how would I get this assessment?
I agree with Sue too! You absolutely do not deserve to be treated the way you were at school. The bullies are the ones with the problem.
The things you went through were traumatic. Please talk to someone (e.g. your GP, your local mental health service, The Samaritans) about how you're feeling. You deserve to be supported and happy.
I've just registered and would like to say congrats for being open and honest. Non autistic people have no idea how it is for us; they minimise, belittle and scorn our experiences and feelings- even the kind ones- and after a while you just stop trying to explain and go onto yourself.
I believe growing up autistic is a definite trauma and by the time you reach your 30's you've had enough. At 38 I still suffer from it all, despite having some therapy.
I also have an autistic teen and she can testify to the trauma. At least she had me, but everybody else has never understood and caused harm through ignorance. I'm sure a lot of autistic people will identify with your struggles, completely, as I do. She suffers with mental illness too, but is undiagnosed. As a result she was taken into care and I was accused of emotional abuse and neglect.
I have a childcare background, friends and have maintained good relationships with past boyfriends since my child was born. I did everything possible including homeschooling on and off. Just goes to show that anyone can lose their child through ignorance of autism.
I'm bipolar as well. Most recently 2 professionals have labelled me BPD, Mixed Personality Disorder and Unspecified Personality Disorder. That's the thing with non autistic people: they talk nonsense, cite it as fact and LOVE being nonspecific. When you challenge their ignorance, you are labelled with a personality disorder. That is my experience.
I am so sorry for your experiences, I had similar but can't remember until I was 10 years old. Certainly secondary school is seared into my mind forever and you couldn't pay me to go back now. Also, although I ass the opposite (super skinny) my mother was unbothered and said you can never be too thin.
Sometimes I hate everyone that has made these comments and wish they would wake up one day and be in my shoes, your shoes, all of our shoes. They wouldn't last a week. So my message is this: you are stronger than them. They see you as deficient, but they are deficient in intellect and understanding, not you. I bet you have skills that they don't and I bet you are kind and a genuinely good person. I bet you have the ability to help others more than they will ever have. I know on bad days it's so easy to believe it all, be drowned with by them all, be alighted by them all. But believe that you are strong, good and powerful.
God bless x