What I've learned

When I found out a few months ago that I was almost certainly on the Autistic spectrum, I reviewed my past and determined that I'd always "run away" (as I perceived it) from uncomfortable situations and people who made me feel worthless, or tried to make me behave how they thought I should. I felt that I'd been weak, and wanted to have counselling and learn about my "condition" so that I could be stronger and stop running away from things. 

But I've found that this was the wrong way to address things (for me anyway).

I found out that CBT, which is the recommended therapy, only consists of 6 sessions, is often carried out by therapists who don't understand autism, and primarily focuses on training people not to have negative thoughts, which it is believed lead to a cycle of low self esteem, depression and anxiety disorders. I don't have a negative self image, so I didn't see how such a short course of this type of therapy could help me. 

So I struggled on, trying to be strong but unable to break out of a cycle of illness, both mental and physical, caused by stress. I read numerous books and articles about autism, and about how to understand neuro-typical behaviour, but eventually I realised that my main problems were unbearable noise nuisance at home, and that I was no longer able to cope with working full time: to cut a long story short I've moved to a different flat and have now started working part time and I'm feeling much more positive. 

I now think that although it's useful to understand myself and others better, and have strategies to get through stressful / unexpected situations, what really helps me most is being as much in control of my life as much as possible and limiting the amount of time I spend outside of my home with other people to what is comfortable for me. 

I no longer think this is weakness. Being able to identify what makes you stressed and taking action to eliminate those things from your life can be brave. It may involve taking some risks. But I think it's worth it. 

As far as I know, we only have one life and it's fairly short. We shouldn't waste time trying to fit in with other people's ideas of what is best for us. We're individuals, for whom autism is only part of what makes us what we are.  Do what you think is right for you. 

Parents
  • That's a great post Pixie, and I have admired your handling of your recent employment problems. I don't think I fully taken in all of what you have said here. I did have some CBT about 18 months ago before my diagnosis, it didn't work out for me. The person who I met with for CBT didn't have any awareness at the time of Autism, but have since been trained by the diagnostic team I was with. Ironically, I can no longer access her services because my needs are too complex I have been told.

    I think the key word in your post is "Control", that resonates with my current difficulties.

    I had my first appointment Today with the Neurology department who have now accepted me for care. It didn't really work out how I expected, but one of the questions he asked me if there were times when I had been happy. I reflected back to around 1998, although I didn't mention it at the appointment; I think the difference between then and now are feelings of security and control.

    Random

Reply
  • That's a great post Pixie, and I have admired your handling of your recent employment problems. I don't think I fully taken in all of what you have said here. I did have some CBT about 18 months ago before my diagnosis, it didn't work out for me. The person who I met with for CBT didn't have any awareness at the time of Autism, but have since been trained by the diagnostic team I was with. Ironically, I can no longer access her services because my needs are too complex I have been told.

    I think the key word in your post is "Control", that resonates with my current difficulties.

    I had my first appointment Today with the Neurology department who have now accepted me for care. It didn't really work out how I expected, but one of the questions he asked me if there were times when I had been happy. I reflected back to around 1998, although I didn't mention it at the appointment; I think the difference between then and now are feelings of security and control.

    Random

Children
No Data