PIP Claim was Disallowed.

Hello, I am new to this forum and wanting some advice and support.

About me...I am 26 years old male with Asperger syndrome, I suffer from Depression, Asthma, High Blood Presssure, Anxiety, OCD.

After having my PIP assessment with Capita, she typed my medical information onto her computer and then off she went. I called PIP for an update with my claim and she told me that it was Disallowed. And, I have asked for a re-considilation.

I am in a stage where I just wished I am dead. I hate this life that I am living and I do not have the energy or the motivation to challenege this decisison. I have given them all my medcial notes and I have asked them to contact my Psychiatrist to get the details of my mental illness and they did not bother! My Psychartrist could not give them my information as the system been changed and written information from them would be requierd. Since, they did not contact them base on my mental illness then it would be there fault! Anyway, My GP covering letter does note that I am depressed, mental health history, depression medication, panic attacks / social anxiety and will need an aid of a family member to escourt me out as I feel unsafe. I cannot read people and understand their facial expressions.

I am on DLA lower rate...both care and mobility!

At the moment, I just want to overdose myself...I given them all the information and why did they refuse me. Now, my depresion is getting more worse.

  • I am nearly at the end too of that six week wait period for the reconsideration. I had scored 6 points and needed 8 points to qualify for Pips. One question I know I had misunderstood and the information was there but not in their format as such. So am just hoping that i will score the 8 on the reconsideration. I am fully mobile so am not interested in the mobility part. I don't need the mobility part. But there are plenty of times need that extra help in understanding things and not sure how the extra money will help me understand these things that am reliant on others to put them into my speek as such but am not about to turn it down either..... :-)

  • lee2015 said:

    I have lost my recconsideration now having to appeal, i got my mp involved regarding asd traiing and knowedge.  They basically ignored anything to do with disability rights in apticular reasonable adustments, they have disadvataged us and they know it.  I am going down the path of wanting to sue.  

    I was told by atos that as long any health background with 2 ears experience can assess any disability.  Of course the dwp have not confirmed this as yet.  

    I hav come across many cases as ours no asd training and got no awards i has conacted NAS who are doing nothing either.  They are deliberately descriminating against disabled and human rights act while it still exsists here

    Sorry you lost your reconsideration. This is my second attempt at pip. Was turned down without my diagnosis and now diagnosed still turned down. They say no cognitive or memory problems. They forgot sensory though and this is my argument. 

    Like yourself I am going to give a tribunal a go. I did last time but could not attend my case due to closing down with severe anxiety issues. I have some stress related physical problems too. 

    I think they are after case law on people with asd and the decriptors so they are turning people down in the hope of getting it to the upper tribunals. They are inconsistent in their awards/non awards and it's just a case of some they allow and others they don't. It's very confusing how they work. It's like they have total disbelief in autism existing. 

    I also got in touch with the nas and they weren't really any help as the lady who deals with people over 40 only works 3 days and mostly she does not reply for two weeks or so. Cab never have any appointments in time to help and as regards welfare workers ....I don't have a clue where to get hold of them. They seem to be non existent where I live. I don't go out to deal with people anyway and email is my most used communication but dwp won't allow you to email their case managers so you are left with phone calls whereby they twist everything you say. 

    Capita assessors are not autism trained either I don't think. Mine was a man who was a nurse who once worked on a brain injury ward. What use is that? I haven't got a brain injury, I have a development disorder so they say and I suffer with sensory issues.

    I also don't take medications but have in my past and was advised by my psychiatrist at the time to come off them. Lots of people with asd are worse on antidepressants and anti anxiety meds. I was just turned into a zombie. I really could not go back to that. I was hypersensitive to their drugs. It's on medical records over 5 years I was on them. Screwed me up more than got me better.

  • I have lost my recconsideration now having to appeal, i got my mp involved regarding asd traiing and knowedge.  They basically ignored anything to do with disability rights in apticular reasonable adustments, they have disadvataged us and they know it.  I am going down the path of wanting to sue.  

    I was told by atos that as long any health background with 2 ears experience can assess any disability.  Of course the dwp have not confirmed this as yet.  

    I hav come across many cases as ours no asd training and got no awards i has conacted NAS who are doing nothing either.  They are deliberately descriminating against disabled and human rights act while it still exsists here

  • Surely there are rules for people in authority when dealing with autism and they should have training of it. Seems to be not the case. I found this link and also the hidden impairments toolkit is something they should have knowledge of. 

    I also got turned down for pip and my decision was mostly like the ones in thus thread calling us all liars. I have not lied though, I have said it like it is. It's difficult enough fir us with asd to get by in life in general without being put through so many tests and questions that they know are difficult for us anyway. Bordering torture. 

    I have asked for a mandatory reconsideration but don't hold out much hope. Something needs doing. They need to abide by this here maybe

    www.autism.org.uk/.../statutory-guidance.aspx

  • Just a update reconsideration stayed the same quoted assesor doesnt seem to suffer from anxiety and dont take medication.  Didnt seem to have sensory problems etc just full of lies and inaccuracies ignored everything i said.  Continued with assessors opinions as evidence over diagnosis etc, woman (removed by moderator) has no asd training or qualifications but dwp are happy to take 20 minute obseravtion as fact. 

    So to court i go with this is they any asd solicitors which can help ?? i am lost ....

  • Delighted what you are quoting is almost identical to my own report, mainly all based on opinion of a nurse and any facts and evidence basically ignored.  I have come across quite a few who have had similar faits, i have told them i will never attend another medical ever.  They are completely biased, and use anyone with a medical background and thats been generous to remove support.  I agree DLA should stay but they done such a good job with propaganda that the public believe thet it was easy to get.  Also that you didnt have to have medical to get it, conveniently it also removed much court law as it is new law for pip.

  • Hi Yorkshirelass,

    Thank you for reading my thread.

    In my PIP report, the DWP decision maker has made a decision based on the assumptions rather than facts that was presented to them, ie Medcial letters, precriptions etc confirming my illneses and providing contact details of medical professionals. They did not bother to get the facts! 

    DWP stated that

    " I have decided you can prepare and cook a simple meal unaided" False, I cannot cook

    " You displayed a good eye contact" False, with Autism it is very hard to make eye contact and I was looking at the floor during the assessment.

    " You demostrated a good cognition and memory"  This is a Psychologist job, the assessor cannot be in a postion to make this assessment.

    " You follow the news on your mobile phone and can do online banking, you can do bank transfers, and manage my own finances online unaided"  Assumptions without facts! I do not watch the news, I do not have an online banking so how can this be possible?

    "You do not appear to be low in mood or anxious"  How do they know what is going inside my head, I am taking anti-depressants and my Psychiatrist confirms this in writing. So, how did the DWP make a decision to say I do not appear to be in a low mood.

    " You can go shopping by yourself " False, I do not go alone outside let alone going shopping. My GP letter does confirm, he needs to have an Aid when going outside due to his Autism.

    There are more false statments that was made in my DWP form, also the assessor made bunch of lies and sent it to them.

    Good luck with your daughter claim, these PIP should be closed down we all should go back to DLA.

  • Good luck with your assessment that is coming up! Try not to panic, keep clam and relax.

    Just an over-view of my experience,

    The assessor will ask you the same / similar questions in that booklet you completed on "How it affects you form".  And, if you have a good assessor they will type up all the informaton you give them, along with medicine you are taking, Doctors / Hospitals notes. It usually taks 20 / 30 mins. Once, the assessor have everything then this report will be given to DWP for them to make a decision on what to score you as.

  • I totally understand how you are feeling and they do make life more complicated than it acutally should be!

    My assessor has no medical knowleadge and as I questioned her background the responce was "DWP has certified me to do assessments" and I knew then that she must have some basic qualification rather than academic qualfication.  So, An assessor carrying our an in-correct assessment and they consent it and send it to DWP for assessing it.   And, I personally feel that it will be some sort of a crime should I say when the assessor(s) are carrying false information and submiting it as how they want it to be.

    From my understanding, the assessor role is to gather evidence for the DWP to decide. And, I rang CAPITA twice and they confirmed that their assessors sends a report and scoring questionnaire to DWP and DWP then makes a decision. In other words, both DWP and Capita awards points.  The question is, why should CAPITA makes their own decision on what the climant should be awarded.

    On the bright side, I contacted a solictor for advice and was said that Autism is genetics condition and requires support on daily basis and PIP should accept it and  to award them.

  • I am trying to go through it now its very frustrating and annoying makes my blood boil reading it, ive tried to stop thinking about it as mentally im not good and this is a major trigger.  I find evidence that i wrote the letters for each decrpitor as evidence that i can read and write complexed information without considering the time and processing it takes amongst other things.  The amount of things left out such as medication and insinuating i am on no strong pain killers and not listing i am on dyhdracodeine 60mg 2 daily is only one of many...

    I feel like you have to justify your disabilities especially as i am intelligent this in some way negates my disabilities, every statemnets insuates your lieing or over acting you are a fraud until proven otherwise.  It is so difficult to explain how asd effects me but impossible with someone who has no understanding and this report show's that.  By writing this letter it feels like i am just giving evidence to use against me as in oh you can read the report and now you have replied in detail you can read and understand complexed information etc.  Everything no matter how much it takes how it effects you etc none of it is significant .....

  • Hi everyone,

    I have also got my PIP assesment comming up and i am worried about it.  A friend of mine who is physically disabled said that they made her try to walk and treated her as though she was making up her disibility.  it is absolutely disgusting how they treat you like you are a fraud. This need to change as the people who need it most are missing out on the help they need.

  • From your health report, it sounds like everything is Postive. At least, you now call PIP and ask them that you would like to re-consideration of your claim in writing.

    Now, you can pin-point each points and say things like " The report says this, however I am unable to go out door as I feel unsafe and my medical report agreeds that I become anxious and nervous. Ask your GP to back it up with a covering letter.

    "I am feeling too much pain always, I am on the following medication as precribed by my GP and as evidence, you can show them a precription label ( white sticker ) and send it to them".

    Let me know, how it goes :)

  • I receivd my health report and as suspected used the fact i can drivee and th letteers i snt that i can read and write and udrstand comlexed information, verbally i can undrstand and speak complexed.  Can go to unfamilar places on my own with no help ane nd follow and unfamilar routes.  Can mange money complexed no problem could make a sandich without help or supervision.  I do not have any sensory problems as i didnt seemed to ba able to talk etc.  I have no mobiliy problems or significant pain as i do not take a strong pain killer deosnt mention i am on dehydracodeine.  I can my medication and therapy without help and unaided as i havent seen any proffessionals in years !!.  

    Thats ust a few im gobsmaked should mention i have ddd to 

  • In the assessment, she assessor did tell me that If I am able to drive a car and I replied that "due to stress and anxiety, I failed driving test more than 20 times and I have been driving since 2009"  in the assessment, it was said that I can travel without an aid but I did tell her that as long as I have somebody with me otherwise I would not go due to feeling unsafe.

    This afternoon, I did get a call from PIP case manager as I have asked her to re-consider my claim and I told her that I will be doing this in writing and speaking to her made me unconfortable, I do find it more harder to express my feeling and thinking verbally so this will be done in writing in due course. She then explained that, in the document that was sent to me from PIP, I can then change / amend information if feel are in-correct and including the assessment report then this will be then passed to them to make another decission within the next 6-8 weeks. Nightmare!

    We do not choose to be disabled, it's not our choice. We are born with this condition and these people should stop harrasing and pressuring us as this will not remove our condition.  We are who were are and they should accept it and award us rather then having to face them and argue / fight. I see myself as a slave and begging them for money! I feel that low... When you see PIP and the government, they enjoy their lives, they have what they desire, nice cars, nice houses, shopping spree, holidays and we being the disadvange suffers.

  • I  am still awaiting the full report from my assessent but it was very similar to yours in terms i can plan and follow a unfamilar route which is rubbish.  I do drive and that makes life easier for me massively, however i am sure that has been sed against me to. 

    I dont go anywhere i dont know on my own and only go local in my car without i wouldnt be able to do that.  Been outside similar to you anxiety and dizzy sensory overloa noise sound and light mean i cant concentrate.  I can only manage for certain eriood of time in places such as shoping centre before i am paralysed for want of a better description.

    They have been getting away with it for years thesee assesments where designed by american insurance companies to deny disability claims and companys where reported and stoped for it there.  Uk government under labour stated it and the conservatives made the rules even harder along with propaganda etc they manage to get away with it ust fine.  Divide and conquer ....

  • I have just recieved a copy of my PIP assessor notes that she made and it was said that I am able to follow all journeys safe and well and plan any routes that is given to me.

    Well, these assessor are getting paid hundreds of pounds per assessment and all they do is type up whatever they feel like to and using their position as an advanage and putting us into disavanage and making us suffer.

    With Autism, it's not easy thing to do when going outside. It's a big step...I personally feel unsafe, all eyes are on me, I then loose focus on what I am doing and can easily have an accident as this is casued by panic attacks, stress, and I do not know what I am doing then.  There is risks involve.

    How can they get away with it?

  • Something need's to be done as clearly their is a big disadvantage for asd especially as they have no medical experience of asd, i certainly havent come across one person who has been assessed by a qualified health professional experienced or knowing asd.

    I certainly agree that high rate in both is the most logical outcome i certainly worked it to be that on the point's system however i was just short the first time.  Obviously nothing this time.

    You explain it very well any places with crowds is difficult due to anxiety and sensory issues, and anywhere unfamilar would never happen even though i was judged to be able to plan and follow a route to a unfamilar place.  

    These assesors one step short of corrupt the amount of false staements and lies well i am lost for words.  it has effected mentally especially

  • Lee, Thank you very much for replying to me...

    Living with ASD is a nightmare, it's like we are born to fight with the society and the benefit system. My PIP assessor has no knowleadge with ASD, I have asked her what is her background and she replied in a rude maner that "DWP has certified me to be an Assessor".  She was not even paying attention to what I was telling her and she was just typing something in the laptop! As I peaked, she turn the laptop the opposite way so I do not see what she is typing up!.

    Anyway, It would be good if the AUTISM.org.uk takes some action with PIP because they are bullying us and putting us in a disadvanage and causing us mental pressre and stress!

    Logically, we all should be awareded the enhance rate for both daily living and mobility. We all stuggle mostly in the same way especially in a social place such as going into the City Centre where that are too many poeple around. I just have a panic attack and I become very light headed. I feel like all eyes are on me and I walk with shaky unbalanced legs!

  • I have just had my pip lowered from enhanced to standard care and no mobility from standard.  i have asked for a reconsideration but i doubt it will change i suspect they will disallow it altogether for asking for a reconsideration.  

    I have come acroos many cases the same mostly down to the assessor not having any asd experience, their argument is they are assessing how it effects you rather than questioning the diagnosis.  However without experience and understanding of asd i fail to see how you can assess anyones needs with asd in my opinion ??.

    I know how you feel i was feeling just the same so down and angry feel theirs no fight left, thing with asd you have to fight for everthing from living and getting through the day to been recognised as been asd.  It is a never ending battle, but we have to keep going its the system that is wrong and i believe it is that way purposely 

    regards 

    lee