Just been diagnosed

Hi

i was diagnosed with ASD on Wednesday and struggling to come to terms with it even though I expected it.  I'm 37 years old and I have a 6 year old daughter with ASD and SPD.  I work part time, today I went into work broke down in tears and went home.  boss doesn't seem to understand because I expected it I should be ok.  Tried to explain its different thinking i am to knowing I am ASD.  Tried to explain it to her like I've just found out I'm adopted, something I thought I was is now different.  I have a follow up apt with ASD service in 4 weeks but my boss says I should have it sooner or speak to my GP.  I'm not depressed but I am struggling to adjust.  ASD service didmy really help me when I got my diagnosis si said they will help in 4 weeks time.  Just told me im now disabled and my husband is now my cared and work will have a disabled policy in place.  Its hard to hear I'm now class as disabled.  How do I move on from here ? Did it take people a while to adjust ? 

Parents
  • You're welcome!

    All of that is classic AS experience, and you're right - the public largely don't understand, or even worse, have a total misconception thanks to hollywood et al...

    I think that's why it's good to be on here, you don't have to explain. Phew, what a relief!

    You're doing very well if you've already decided to keep quiet for the moment while you get used to this, Other people have stories that suggest telling colleagues isn't always a good idea. We get mixed reactions for sure. Not sure about your husband being labeled a 'carer', that one took me by surprise I must say. Just because you're AS doesn't mean you're incapable, but it does mean that you'll do things, think, speak and react differently to other people.

    I use the term AS because some people like to call it a Disorder, and some a Condition (my personal preference is Condition). Writing AS is my lazy way of not writing ASD/ASC all the time, and anyway, we're all Autism Spectrum people so what the heck. Find your own way to express yourself, whatever you're comfortable with is fine.

    Welcome again

Reply
  • You're welcome!

    All of that is classic AS experience, and you're right - the public largely don't understand, or even worse, have a total misconception thanks to hollywood et al...

    I think that's why it's good to be on here, you don't have to explain. Phew, what a relief!

    You're doing very well if you've already decided to keep quiet for the moment while you get used to this, Other people have stories that suggest telling colleagues isn't always a good idea. We get mixed reactions for sure. Not sure about your husband being labeled a 'carer', that one took me by surprise I must say. Just because you're AS doesn't mean you're incapable, but it does mean that you'll do things, think, speak and react differently to other people.

    I use the term AS because some people like to call it a Disorder, and some a Condition (my personal preference is Condition). Writing AS is my lazy way of not writing ASD/ASC all the time, and anyway, we're all Autism Spectrum people so what the heck. Find your own way to express yourself, whatever you're comfortable with is fine.

    Welcome again

Children
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