Feeling very far from normal right now.. Continued.....

my son was diagnosed at end of primary school, where he exhibited 'behavioural difficulties',  my son was allowed to take himself off at lunchtimes to the quiet hub and sit in the reading corner of his classroom for lessons. On the whole he coped, but secondary school was a different beast entirely.

He struggled every day, eventually in year 8 they put him into thier provision for behaviour problems, along with 6 or 7 other pupils. the provision had 2 classrooms, one used by the 6 or 7 students, the other used by my son. he had a laptop in there and would spend every day alone, with a teaching assistant popping in every now and then to hand him another worksheet to do, or some website to visit.

His statement took a year to complete, and finally he has been moved to a school which has a real provision set up for asd kids, 1:3 teachers to pupils, actual structered timetable and lessons, and the chance to access mainstream schol whenever he feels confident and ready to do so.

unfortunately, the year and half of trouble he has had at his first school has had a very negative impact on our family. my daughter is at grammar school and puts a lot of pressure on herself to out-perform her peers, also has developed eating problems. she has been seen by CAMHS and is showing improvements.

i have taken time off work due to depression, stress, all sorts. only in the last 3 weeks ive been feeling better, really since knowing that the school has been changed.

im finding it so hard to even motivate my son to do anything, he usually goes to StageCoach on a saturday, and today he flatly refused to change into the uniform and go out. i cant physically force him to get changed, he's as tall as me at 5'2" and very much stronger. he says hes scared of going outside, he has never liked the process of getting ready to go out, but normally, once we are out and stick to the plan of which shops we car park we are using/which shops we are visiting/what we need to buy (deffinately no browsing!) he is ok.

i dont know how to get him out of his rutt of hating leaving the house. even with the lure of a new school he is still struggling with leaving his bedroom in the morning. he has been physically violent towards me once before when ive forced him to get up and go to his old school, and im scared that he'll do it again.

i need some ideas. he finds comfort from playing his DS or kindl, but that keeps him in his room all day, he'll only come out to eat. normally, i dont mind, he's happy on his own, but i want him to still be in touch with other children.

thank you to anyone whos read all this! i'm just hurting and confused. my partner is a fantastic man, with endless patience, and he will listen to me talk/rant til the cows come home, but i just need some advice from people with experience in this.

xx

Parents
  • Hi Amber,

      I so hear you. My son spent years in his bedroom isolated and frought. Mainly due to severe bullying. Can you tell me what stagecoach is? Is that a theatre group?

    Isolation is very common. It's what we do when the world seems too scary. Have you spoken to him about the move to the new School, has he been to visit and had intergration sessions etc?

    My son had awful experiences at primary. Later, whilst at Secondary, someone on a public bus tried to set his hair alight. This crippled him. It took us 18 months to get him anywhere near a bus after that. However, following another serious bullying incident, I now have to drive him myself, to and from College.

    My sons Secondary experience was much more supportive with his statement in place and they used his Autism and SEN experiences to try and raise awareness in the School amongst, his peers, teachers and new prospective pupils. This helped boost his confidence and he's now an ambassador for Autism at his new placement. He struggles greatly with interaction so it's a double edged sword, but at least he trys.

    My son seldom goes out without support, especially to unfamiliar places, but over the past two or three years he has tried to push himself to walk around locally for short distances.(He gets severe pains walking just a few yards.) This has only improved because of his special interests. He doesn't go far but it's good that he goes out at all. Are you able to use your sons special interests to get him out more?

    Their are age appropriate sites where he may meet like-minded friends. The only problem is, that can make him home bound further, however sometimes it helps for those on the spectrum to reach out to others.

    What special interests does he have? Do you have any pets? My other son blossomed when he had pets to care for.

    Sounds like you too could do with some support. Bringing up ASD children is one of the most challenging things. Is their a hub in your area?

    Coogybear

Reply
  • Hi Amber,

      I so hear you. My son spent years in his bedroom isolated and frought. Mainly due to severe bullying. Can you tell me what stagecoach is? Is that a theatre group?

    Isolation is very common. It's what we do when the world seems too scary. Have you spoken to him about the move to the new School, has he been to visit and had intergration sessions etc?

    My son had awful experiences at primary. Later, whilst at Secondary, someone on a public bus tried to set his hair alight. This crippled him. It took us 18 months to get him anywhere near a bus after that. However, following another serious bullying incident, I now have to drive him myself, to and from College.

    My sons Secondary experience was much more supportive with his statement in place and they used his Autism and SEN experiences to try and raise awareness in the School amongst, his peers, teachers and new prospective pupils. This helped boost his confidence and he's now an ambassador for Autism at his new placement. He struggles greatly with interaction so it's a double edged sword, but at least he trys.

    My son seldom goes out without support, especially to unfamiliar places, but over the past two or three years he has tried to push himself to walk around locally for short distances.(He gets severe pains walking just a few yards.) This has only improved because of his special interests. He doesn't go far but it's good that he goes out at all. Are you able to use your sons special interests to get him out more?

    Their are age appropriate sites where he may meet like-minded friends. The only problem is, that can make him home bound further, however sometimes it helps for those on the spectrum to reach out to others.

    What special interests does he have? Do you have any pets? My other son blossomed when he had pets to care for.

    Sounds like you too could do with some support. Bringing up ASD children is one of the most challenging things. Is their a hub in your area?

    Coogybear

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