Statistics?

Not sure what can post here. Read something upsetting about something happens to us autistics. Want discuss but not sure if can put up. I'm late diagnosed, recent upset has spiralled me. Yet get any support. Family horrible. GP horrible. Scared.

Parents
  • Hi Flowers, welcome to the forum. I,m sorry things are really hard and your feeling scared. Its ok to feel like this after recent upset and reading upsetting statistics. Cinnabar_wing has provided some good resources if you need more instant support.

    Statistics regarding autism can be difficult to read as some do suggest poorer life expectancy,quality of life etc. However, the data is often selective in some way and not 100% accurate. 

    I read something similar about poorer outcomes for those with Autism which upset me. However, statistics are not the only measure of things and do not condemn us to any particular path. 

    To give you abit of hope in that regard,i will share abit.  Im 41 years old and just diagnoised Autistic a month ago. I was told growing up due to various factors i would not get good grades or make college. I got good grades and have a degree. Growing up my mother was extremly ill and given a single digit percentage chance of survival after a rare procedure-she is still alive today much to the amazement of experts. I was told certain professions i could never do due to medical history and trauma , i did said profession for 16 years and have medals and an exemplary service certificate. I met someone who gets me, and married her and have been happily married 13 years. Have i really struggled at times, yes, severley. But I know im lucky for what i have, everything i have shared above i was told would never happen by various professionals, alot of whom were using statistics as the basis of what they were saying. 

    My point is we are more than statistics, and just becuase someone writes or says something doesnt always mean its destined to happen. Of course there will likely be challenges and potential unfairness along the way as we find our path, but im sure you will find alot of resilent people on this site who at one time or another have felt similar to you, I certainly have. 

    Sorry for the long reply, hope its of some help/comfort. 

    Please do what you need to look after yourself,

Reply
  • Hi Flowers, welcome to the forum. I,m sorry things are really hard and your feeling scared. Its ok to feel like this after recent upset and reading upsetting statistics. Cinnabar_wing has provided some good resources if you need more instant support.

    Statistics regarding autism can be difficult to read as some do suggest poorer life expectancy,quality of life etc. However, the data is often selective in some way and not 100% accurate. 

    I read something similar about poorer outcomes for those with Autism which upset me. However, statistics are not the only measure of things and do not condemn us to any particular path. 

    To give you abit of hope in that regard,i will share abit.  Im 41 years old and just diagnoised Autistic a month ago. I was told growing up due to various factors i would not get good grades or make college. I got good grades and have a degree. Growing up my mother was extremly ill and given a single digit percentage chance of survival after a rare procedure-she is still alive today much to the amazement of experts. I was told certain professions i could never do due to medical history and trauma , i did said profession for 16 years and have medals and an exemplary service certificate. I met someone who gets me, and married her and have been happily married 13 years. Have i really struggled at times, yes, severley. But I know im lucky for what i have, everything i have shared above i was told would never happen by various professionals, alot of whom were using statistics as the basis of what they were saying. 

    My point is we are more than statistics, and just becuase someone writes or says something doesnt always mean its destined to happen. Of course there will likely be challenges and potential unfairness along the way as we find our path, but im sure you will find alot of resilent people on this site who at one time or another have felt similar to you, I certainly have. 

    Sorry for the long reply, hope its of some help/comfort. 

    Please do what you need to look after yourself,

Children
  • I was told I'm nothing. Without diagnosis. Just something wrong with me. Iv never worked properly, everyone has left me. I'm suicidal severely and Dr won't help and one family member has told me go A&E where can't help and treat me terribly so they can go to a lunch (for no special occasion) with their conscience they didn't leave me alone. Obviously they want me dead. I'm a nuisance. I'm hanging on here. I'm really not attention seeking. I'm terrified. I don't want hurt myself but am old enough to know it won't get better. I'm not normal and no one around me thinks I'm worth staying alive. No one would carry on like this. I can't explain the fear. It's physical, shaking, sweating.