I joined a new gp practice and met with the compliance manager for the first time to discuss my needs. She told me autism is not disabling and that my condition is a choice i made. How am I supposed to process this? Is this appropriate behaviour?
I joined a new gp practice and met with the compliance manager for the first time to discuss my needs. She told me autism is not disabling and that my condition is a choice i made. How am I supposed to process this? Is this appropriate behaviour?
Hi soboiceland
I am sad to learn of your experience.
I imagine that discussing your needs at the new practice might have been in respect of reasonable adjustments for you in the service and care the gp surgery provides.
To be told one that autism is not disabling and that one makes a choice about it personally would be for me deeply upsetting - and realistically one that although I know the truth about from lived experience and personal study of the evidence base still would "gaslight" me. To answer the direct question as to whether the person's behaviour to you as you describe it was appropriate - I think no.
Ironically, perhaps, the compliance manager is the very person one might expect to understand and ensure the relevant guidelines and regulations are followed in such situations.
Were it I (and I felt up to the task) I (as other good people have wrote on this thread) also would complain. The reasons being: for myself in terms of the need for fair access and understanding in context over my health: to reduce the risk of other people who might also experience such problems as these; and also to help the person who seems to have problems or ignorance in understanding autism.
If I didn't feel up to the task I personally would seek help in how to complain from a trusted source or means - bearing in mind that I find conflict a tricky thing to negotiate and also have a long standing experience of adverse reactions to me (perhaps because of my autism) that make this a hard thing for me to do. It is perhaps a necessary one.
A long answer but I hope this finds you well.
best wishes - Phased.
Hi soboiceland
I am sad to learn of your experience.
I imagine that discussing your needs at the new practice might have been in respect of reasonable adjustments for you in the service and care the gp surgery provides.
To be told one that autism is not disabling and that one makes a choice about it personally would be for me deeply upsetting - and realistically one that although I know the truth about from lived experience and personal study of the evidence base still would "gaslight" me. To answer the direct question as to whether the person's behaviour to you as you describe it was appropriate - I think no.
Ironically, perhaps, the compliance manager is the very person one might expect to understand and ensure the relevant guidelines and regulations are followed in such situations.
Were it I (and I felt up to the task) I (as other good people have wrote on this thread) also would complain. The reasons being: for myself in terms of the need for fair access and understanding in context over my health: to reduce the risk of other people who might also experience such problems as these; and also to help the person who seems to have problems or ignorance in understanding autism.
If I didn't feel up to the task I personally would seek help in how to complain from a trusted source or means - bearing in mind that I find conflict a tricky thing to negotiate and also have a long standing experience of adverse reactions to me (perhaps because of my autism) that make this a hard thing for me to do. It is perhaps a necessary one.
A long answer but I hope this finds you well.
best wishes - Phased.