Communication difficulties and different autistic profiles

On the Random Thoughts thread I said that I often don't feel like I belong here and many of you were kind enough to tell me my contributions to discussion are valued, but I think one of the reasons I don't feel I belong is that autism manifests differently in me to how it does in most others.

Many people here seem to AUHD, whereas I'm a Liminal Austic Thinker, this means I like to inhabit the grey areas of life, rather than the black and white of Binary Thinkers, or the fact driven thought processes of Analytical Thinkers or the High Energy, rapid paced emotional short hand loving AUDH people.

This difference in cognitive style makes it hard for us all to communicate easily, it's why I don't get emojis and others love them and are quite happy to post long streams of them that mean loads to those of the same cognitive type, where as I just look at them and think Eh? Of course not being able to see them properly even with my glasses dosen't help either. I need a longer form of commuication, not short forms of text speak and emojis, especially when theres an emotional depth to what people are communicating, I don't understand memes either, probably because I don't inhabit the spaces that use them, but it's very difficult for those of us who aren't AUDH to always understand WTF people are on about.

I know I'm a deep thinker, who's uncomfortable with binary answers, choices and rules based thinking and black and white thinking in general, I guess some people read what I've posted and think 'WTF's she on about now, I can't be bothered to read all that, why can she just say it with a meme and a couple of emojis?' I see patterns in a lot of things, the story behind the story, where things that seem very different are expression of a similar thing and sometimes the same thing, it's very rare for me to think in a straight line, to me the world is like a jigsaw where I can see the whole picture and at the same time move pieces around, this happens in different dimensions and levels too, nothing is vertical or flat and without texture.

Having had training in both counselling and a history degree has really taught me to ask questions of questions, to look under the surface of whats presented to me and to say the unpleasant, the deviant, the socially unexceptable, to name the game being played and ask others if they see the game too and do they really want to play it? This is uncomfortble for many people, but once I've seen something like that I can't unsee it, I can't not say what I see, people of a more binary type of thinking or an analytical type might look and think something like ' the ladders falling down, all the bits are on the floor, must deny the collapse and put the ladder back together'.

I think basically what I'm trying to say is that AUDH is the dominant type here and that why I often feel that I don't fit in, we literally see the world differently, through different lenses. But is it just me that feels like this? Can we make a bit more effort to be accomodating of different types? I wonder if other people come here and are put off because they don't feel reflected in what they read here how responses are framed?

I think theres also a danger that AUDH is seen as the only type or even the most common type of autism and all services end up geared towards AUDH and those of us who express differently are excluded again, are doubly stigmatised by an NT world that dosen't understand and dosen't really want to and an ND world thats seems largely AUDH and is just relieved to have finally been recognised. Included in this exclusion is those of us who don't cope well with the digital world, the dominant narrative being that autistic people don't like talking to others so if we do everything digitally then thats ok. So whilst you lots are happily chatting away using memes and emojis, theres others of us sitting down with a piece of paper, a fountain pen and ink from a bottle, trying to set down our thoughts.

Parents
  • Sorry that you feel like this,  

    I often don't feel like I belong here

    I hope our responses have made you feel less isolated.

    I know just how diverse we are on here. For example, I am both autistic and ADHD and I recognise what I see as tidal flows and amusing/maddening contradictions within myself.

    I read things on here and smile at the similarities with my own experience but also get fascinated by the differences. As others have written, the autism (and ADHD if we have that) manifests in different ways for each of us, inside and outside.

    We have much more in common than that which divides us. It would be a shame if we started to 'other' based on diagnostic labels or subtypes. We need to stand together.

    As you'll know from my other posts, I have a complex relationship with the digital world. I see how it connects, simplifies and enables but also how it atomises, excludes and degrades. I am fortunate (practically) that my career led (required) me to become adept at using digital devices but I look back fondly at a time before mass computing.

    I love longform communication so would be interested in sharing thoughts on deeper topics in threads on here.

  • Sorry Leveller most of them haven't, they've made me realise that I mask heavily to come here and I do feel othered and misunderstood, I feel a lack of willingness to understand too. Your post makes me feel theres a point to me actually being here as do some below.

    I realise I'm getting increasingly anxious about coming on here, the need to mask, the discomfort that comes with having to tone down and dumb down to the point of feeling inauthentic. Will I find a string of emojis instead of an answer or a post so littered with them as to make it incomprehensible to me. There are so many things I want to say, to discuss and to share that I dont' feel able to here, especially discuss, the site is so heavily moderated that certain subjects and topics aren't allowed to be discussed in case someone gets upset or misinterprets, why do we have to cater for the lowest denominator all the time? 

    We do need to stand together, but we don't and we can't, certainly not if we're not allowed to discuss those differences and what they mean, when the structures in place either arn't there or actively obstruct us being who we are or talking about things we need or ant to talk about. This site does feel like its geared up for those who have ADHD as well as autism and only certain communications styles are acceptable and the gods forbid we step outside of those, it feels like we might be branded as heretics or something.

    I'm not sure how much longer I can continue being in a space were we're not allowed to disagree, where threads are a series of statements, only vaguely connected to the OP. I think we're better than this, we need to be better than this, Autism needs its thiinkers, it's intellectuals, its philosophers, if we don't then how do we meet the increasing challenges to our existance from the outside world, from sections of the political right, journalists and commentators?

    I do enjoy a lot of the lighter hearted thread and contribute to them, but feel increasingly alienated and the strain of having to wear a thick mask in the one place where I'm supposed to be safe, authentic and unmasked is really painful and upsetting and I'm unsure of how much longer I can keep doing it for.

Reply
  • Sorry Leveller most of them haven't, they've made me realise that I mask heavily to come here and I do feel othered and misunderstood, I feel a lack of willingness to understand too. Your post makes me feel theres a point to me actually being here as do some below.

    I realise I'm getting increasingly anxious about coming on here, the need to mask, the discomfort that comes with having to tone down and dumb down to the point of feeling inauthentic. Will I find a string of emojis instead of an answer or a post so littered with them as to make it incomprehensible to me. There are so many things I want to say, to discuss and to share that I dont' feel able to here, especially discuss, the site is so heavily moderated that certain subjects and topics aren't allowed to be discussed in case someone gets upset or misinterprets, why do we have to cater for the lowest denominator all the time? 

    We do need to stand together, but we don't and we can't, certainly not if we're not allowed to discuss those differences and what they mean, when the structures in place either arn't there or actively obstruct us being who we are or talking about things we need or ant to talk about. This site does feel like its geared up for those who have ADHD as well as autism and only certain communications styles are acceptable and the gods forbid we step outside of those, it feels like we might be branded as heretics or something.

    I'm not sure how much longer I can continue being in a space were we're not allowed to disagree, where threads are a series of statements, only vaguely connected to the OP. I think we're better than this, we need to be better than this, Autism needs its thiinkers, it's intellectuals, its philosophers, if we don't then how do we meet the increasing challenges to our existance from the outside world, from sections of the political right, journalists and commentators?

    I do enjoy a lot of the lighter hearted thread and contribute to them, but feel increasingly alienated and the strain of having to wear a thick mask in the one place where I'm supposed to be safe, authentic and unmasked is really painful and upsetting and I'm unsure of how much longer I can keep doing it for.

Children
  • I really do understand the feeling of being misunderstood. But I'm struggling to understand what you want right now. You seem to want people to cater to you by not using emojis etc but then are questioning why we have to cater to the lowest denominator? I don't think we should be referring to people as the lowest denominator. How does somebody that gets upset by posts feel when they read that? You are saying we all need to stand together yet you have written multiple responses putting other people down.

    We are all autistic and understanding other people and their point of view can be a difficulty. 

    Your posts regarding ADHD are starting to make me want to stop coming here myself. At no point in life have I ever felt like a god and I generally never comment on communication styles. I am making an exception right now because 1. I feel like you are starting to get personal to people and 2. You are contradicting your own point. I accept people's differences but I will not accept being told that I am a problem simply because I also have an ADHD diagnosis.

    What you seem to be saying is people that are autistic should think like you and if they don't then they are doing it wrong.

    Masking is hard. I understand that. But there is a difference between communication styles because of autism and insulting people and their differences.

    If the forum is starting to effect you like this, maybe a little break is what you need. That isn't to say you are not welcome here are valued here, you absolutely are. But your interpretation of the forum is obviously having a negative impact on you right now.