Communication difficulties and different autistic profiles

On the Random Thoughts thread I said that I often don't feel like I belong here and many of you were kind enough to tell me my contributions to discussion are valued, but I think one of the reasons I don't feel I belong is that autism manifests differently in me to how it does in most others.

Many people here seem to AUHD, whereas I'm a Liminal Austic Thinker, this means I like to inhabit the grey areas of life, rather than the black and white of Binary Thinkers, or the fact driven thought processes of Analytical Thinkers or the High Energy, rapid paced emotional short hand loving AUDH people.

This difference in cognitive style makes it hard for us all to communicate easily, it's why I don't get emojis and others love them and are quite happy to post long streams of them that mean loads to those of the same cognitive type, where as I just look at them and think Eh? Of course not being able to see them properly even with my glasses dosen't help either. I need a longer form of commuication, not short forms of text speak and emojis, especially when theres an emotional depth to what people are communicating, I don't understand memes either, probably because I don't inhabit the spaces that use them, but it's very difficult for those of us who aren't AUDH to always understand WTF people are on about.

I know I'm a deep thinker, who's uncomfortable with binary answers, choices and rules based thinking and black and white thinking in general, I guess some people read what I've posted and think 'WTF's she on about now, I can't be bothered to read all that, why can she just say it with a meme and a couple of emojis?' I see patterns in a lot of things, the story behind the story, where things that seem very different are expression of a similar thing and sometimes the same thing, it's very rare for me to think in a straight line, to me the world is like a jigsaw where I can see the whole picture and at the same time move pieces around, this happens in different dimensions and levels too, nothing is vertical or flat and without texture.

Having had training in both counselling and a history degree has really taught me to ask questions of questions, to look under the surface of whats presented to me and to say the unpleasant, the deviant, the socially unexceptable, to name the game being played and ask others if they see the game too and do they really want to play it? This is uncomfortble for many people, but once I've seen something like that I can't unsee it, I can't not say what I see, people of a more binary type of thinking or an analytical type might look and think something like ' the ladders falling down, all the bits are on the floor, must deny the collapse and put the ladder back together'.

I think basically what I'm trying to say is that AUDH is the dominant type here and that why I often feel that I don't fit in, we literally see the world differently, through different lenses. But is it just me that feels like this? Can we make a bit more effort to be accomodating of different types? I wonder if other people come here and are put off because they don't feel reflected in what they read here how responses are framed?

I think theres also a danger that AUDH is seen as the only type or even the most common type of autism and all services end up geared towards AUDH and those of us who express differently are excluded again, are doubly stigmatised by an NT world that dosen't understand and dosen't really want to and an ND world thats seems largely AUDH and is just relieved to have finally been recognised. Included in this exclusion is those of us who don't cope well with the digital world, the dominant narrative being that autistic people don't like talking to others so if we do everything digitally then thats ok. So whilst you lots are happily chatting away using memes and emojis, theres others of us sitting down with a piece of paper, a fountain pen and ink from a bottle, trying to set down our thoughts.

Parents
  • I am not familiar with those types of thinking that you have mentioned-I do know that there are some different groups for autism profiles though.

    .www.brainfacts.org/.../new-autism-subtypes-identified-based-on-genes-individual-traits-111125

    I am not AUHD. i think you were diagnosed earlier than some people on here. You should be more comfortable with your diagnosis. Although it shouldn't change you. This forum seems more aimed at those who are newly diagnosed. I like some deeper topics and lighter ones and you have been involved in both to. 

    This chart on this website may explain the differences between AUHD and autism-

    https://health.clevelandclinic.org/audhd

    Myself, I started being treated as autistic by the NHS in 2015 when they tested me in house-but was formally diagnosed six years later. So its been 11 years since I identified as autistic.

  • I'm not uncomfortable with my diagnosis and I was diagnosed at the age of 50, 14 years ago, long before most of the tests that people here were diagnosed under were around. This does lead to some confusion as I was told yes, you're autistic, or aspergers as it was a diagnosis at the time and left to get on with it. This does mean I ask a lot of questions about the terms that those whowere later diagnosed mean, I sometimes wonder if I could have had a more nuanced diagnosis if I was diagnosed now.

    How were you treated as autistic by the NHS? I thought there was no treatment?

    I'm a bit wary of stuff from America, it doesn't always travel well and they have a habit of coming up with multiple diagnosis and "disorders" that I'm not sure are real, like PDA, I mean where the line between not wanting to do something and consistently refusing and it being a pathology?

    I'm glad we can talk about our differences too, isn't it interesting that those with adhd and autism feel they're a minority here, just as me and some others do for "only" being autistic? I think this could be a really good area for more conversation, analysis and discovery.

    I don't get selfies either, but then I sent a childhood of standing in front of things with my Mum being photographed by my Dad.

    Could we have a room or something for deep thinking?

  • I went to hospital for an admission for an eating disorder in a NHS teaching hospital in 2015. They do autism research to and a pyschologist came in and did the ADOS test with me and spoke to my dad and said I had something. From then they tailored my treatment in that hospital for an eating disorder to keep in mind I had autistic traits. They said I still needed to go for an official diagnosis. There is work called the  peace pathway  for eating disorders and autism.The hospital I went to was very supportive of the peace pathway.

    I did officially get diagnosed later on and because in sensory I scored 2 which is moderate after an OT in the NHS OT called and offered me 12 sessions for sensory support because of the moderate need in that area. It could go from 0-3 in each question asked under different categories. That category was for repetition and stereotyped interests. My borough went onto do a group online covering different topics to help manage autism.

  • What would be the point of me checking a London borough when not only do I not live in London, but I don't live in England either? As I have problems accessing digital materials looking stuff up online probably won't be a very effective method for me would it?

  • The whole of North Wales is a bit of a black hole for autism, we have one service, who I think are a complete waste of time and public money, they're at the other end of the country to me anyway and come to Bangor once a month for the most autism unfriendly drop in I could imagine. I dont' think they cross the bridge, a lot of services don't and many services stop at Llandudno and expect everyone to go there

  • They had topics on burn out, stimming and masking, mental health, relationships and autism basics. I I stayed a short while in the session, as I was registered they sent me the hand out for each session in pdf in email after the session so I still have them and found them quite useful and have shared them with some people. I wasn’t aware that they had any other group offline meetings for people who didn’t use online.

    My borough has got some helpful information online  how to try and manage autism. I don’t know if you have checked your borough’s website for autism. You could check another borough say Kensington and Chelsea in London and see if they have information there if interested. I don’t live in that borough but they are for example quite a wealthy borough.

Reply
  • They had topics on burn out, stimming and masking, mental health, relationships and autism basics. I I stayed a short while in the session, as I was registered they sent me the hand out for each session in pdf in email after the session so I still have them and found them quite useful and have shared them with some people. I wasn’t aware that they had any other group offline meetings for people who didn’t use online.

    My borough has got some helpful information online  how to try and manage autism. I don’t know if you have checked your borough’s website for autism. You could check another borough say Kensington and Chelsea in London and see if they have information there if interested. I don’t live in that borough but they are for example quite a wealthy borough.

Children
  • What would be the point of me checking a London borough when not only do I not live in London, but I don't live in England either? As I have problems accessing digital materials looking stuff up online probably won't be a very effective method for me would it?

  • The whole of North Wales is a bit of a black hole for autism, we have one service, who I think are a complete waste of time and public money, they're at the other end of the country to me anyway and come to Bangor once a month for the most autism unfriendly drop in I could imagine. I dont' think they cross the bridge, a lot of services don't and many services stop at Llandudno and expect everyone to go there