Communication difficulties and different autistic profiles

On the Random Thoughts thread I said that I often don't feel like I belong here and many of you were kind enough to tell me my contributions to discussion are valued, but I think one of the reasons I don't feel I belong is that autism manifests differently in me to how it does in most others.

Many people here seem to AUHD, whereas I'm a Liminal Austic Thinker, this means I like to inhabit the grey areas of life, rather than the black and white of Binary Thinkers, or the fact driven thought processes of Analytical Thinkers or the High Energy, rapid paced emotional short hand loving AUDH people.

This difference in cognitive style makes it hard for us all to communicate easily, it's why I don't get emojis and others love them and are quite happy to post long streams of them that mean loads to those of the same cognitive type, where as I just look at them and think Eh? Of course not being able to see them properly even with my glasses dosen't help either. I need a longer form of commuication, not short forms of text speak and emojis, especially when theres an emotional depth to what people are communicating, I don't understand memes either, probably because I don't inhabit the spaces that use them, but it's very difficult for those of us who aren't AUDH to always understand WTF people are on about.

I know I'm a deep thinker, who's uncomfortable with binary answers, choices and rules based thinking and black and white thinking in general, I guess some people read what I've posted and think 'WTF's she on about now, I can't be bothered to read all that, why can she just say it with a meme and a couple of emojis?' I see patterns in a lot of things, the story behind the story, where things that seem very different are expression of a similar thing and sometimes the same thing, it's very rare for me to think in a straight line, to me the world is like a jigsaw where I can see the whole picture and at the same time move pieces around, this happens in different dimensions and levels too, nothing is vertical or flat and without texture.

Having had training in both counselling and a history degree has really taught me to ask questions of questions, to look under the surface of whats presented to me and to say the unpleasant, the deviant, the socially unexceptable, to name the game being played and ask others if they see the game too and do they really want to play it? This is uncomfortble for many people, but once I've seen something like that I can't unsee it, I can't not say what I see, people of a more binary type of thinking or an analytical type might look and think something like ' the ladders falling down, all the bits are on the floor, must deny the collapse and put the ladder back together'.

I think basically what I'm trying to say is that AUDH is the dominant type here and that why I often feel that I don't fit in, we literally see the world differently, through different lenses. But is it just me that feels like this? Can we make a bit more effort to be accomodating of different types? I wonder if other people come here and are put off because they don't feel reflected in what they read here how responses are framed?

I think theres also a danger that AUDH is seen as the only type or even the most common type of autism and all services end up geared towards AUDH and those of us who express differently are excluded again, are doubly stigmatised by an NT world that dosen't understand and dosen't really want to and an ND world thats seems largely AUDH and is just relieved to have finally been recognised. Included in this exclusion is those of us who don't cope well with the digital world, the dominant narrative being that autistic people don't like talking to others so if we do everything digitally then thats ok. So whilst you lots are happily chatting away using memes and emojis, theres others of us sitting down with a piece of paper, a fountain pen and ink from a bottle, trying to set down our thoughts.

Parents
  • Thank you for writing this.

    I have a diagnosis of autism, but I don't have ADHD so I am not AUDHD. My communication style is often so lengthy that mostly I do not attempt to reply due to the energy and time involved (I would not be able to think about anything else all morning/afternoon/evening/day) and when I do "reply" to posts, I generally write very lengthy replies which 99.9% of the time I don't actually ever post. So, I set down my thoughts, and then abandon them, never to be shared, and wonder why I ever even attempted it in the first place.

    I don't feel that I any longer belong in any of the autistic spaces or forums, either online or offline. There was a time that I sort of did, before my diagnosis actually, but these spaces seem (to me) to have changed in recent years. I feel increasingly isolated.

    The only support available to me after my diagnosis at the age of 42, a few years ago, was some local meet up social and "zoom" groups in my area. I didn't try the meet up groups but I tried the zoom group and found that all the other women were AuDHD and they connected and communicated really well, whereas I couldn't follow the pace, energy or content of their conversations. It was overwhelming. I said nothing, and felt so horribly as if I didn't belong that I never went back. It made me question my autism diagnosis as I thought "I am not like these people and these people are not like me, it must be something else which is "wrong" with me...".

    So yes, I feel, quite painfully at times, as though I do not belong in the "neurotypical" world and increasingly as if I also, most definitely, do not belong in the neurodivergent world. I am very much just in my own world and don't feel at all part of any group or "tribe" as people like to say now. The other recently diagnosed woman kept saying in the zoom group that they were so happy that they had "found their people". I haven't found mine, but maybe I don't want to and prefer being alone in that sense.

    I am grateful to you for your post. To say that contradicts my last sentence in some way doesn't it, but I do always seem to look for similarities, and I really like to be able to say or think "Oh, I think that/feel that too!".

    Also, memes have no meaning or appeal to me and I am often baffled by the meaning of emojis, especially now they have evolved to be so many of them!

    I actually wrote to the moderators here a couple of days ago, asking if there was a way to delete my account here if it would still be possible to see the posts about research opportunities. I really enjoy taking part in the research when I can, when they are relevant and when I don't fall outside the age cut off point, as I feel like it makes my experiences have some use other than just existing in my own mind, whereas despite the fact I keep checking and reading the posts here in the forum, it actually makes me feel more separate.

Reply
  • Thank you for writing this.

    I have a diagnosis of autism, but I don't have ADHD so I am not AUDHD. My communication style is often so lengthy that mostly I do not attempt to reply due to the energy and time involved (I would not be able to think about anything else all morning/afternoon/evening/day) and when I do "reply" to posts, I generally write very lengthy replies which 99.9% of the time I don't actually ever post. So, I set down my thoughts, and then abandon them, never to be shared, and wonder why I ever even attempted it in the first place.

    I don't feel that I any longer belong in any of the autistic spaces or forums, either online or offline. There was a time that I sort of did, before my diagnosis actually, but these spaces seem (to me) to have changed in recent years. I feel increasingly isolated.

    The only support available to me after my diagnosis at the age of 42, a few years ago, was some local meet up social and "zoom" groups in my area. I didn't try the meet up groups but I tried the zoom group and found that all the other women were AuDHD and they connected and communicated really well, whereas I couldn't follow the pace, energy or content of their conversations. It was overwhelming. I said nothing, and felt so horribly as if I didn't belong that I never went back. It made me question my autism diagnosis as I thought "I am not like these people and these people are not like me, it must be something else which is "wrong" with me...".

    So yes, I feel, quite painfully at times, as though I do not belong in the "neurotypical" world and increasingly as if I also, most definitely, do not belong in the neurodivergent world. I am very much just in my own world and don't feel at all part of any group or "tribe" as people like to say now. The other recently diagnosed woman kept saying in the zoom group that they were so happy that they had "found their people". I haven't found mine, but maybe I don't want to and prefer being alone in that sense.

    I am grateful to you for your post. To say that contradicts my last sentence in some way doesn't it, but I do always seem to look for similarities, and I really like to be able to say or think "Oh, I think that/feel that too!".

    Also, memes have no meaning or appeal to me and I am often baffled by the meaning of emojis, especially now they have evolved to be so many of them!

    I actually wrote to the moderators here a couple of days ago, asking if there was a way to delete my account here if it would still be possible to see the posts about research opportunities. I really enjoy taking part in the research when I can, when they are relevant and when I don't fall outside the age cut off point, as I feel like it makes my experiences have some use other than just existing in my own mind, whereas despite the fact I keep checking and reading the posts here in the forum, it actually makes me feel more separate.

Children
  • Thanks for the further posts and replies.

    I've heard of Aud the Deep Minded and I agree I think us deep thinkers are deep minded, one of the many issues I've had with this is other peoples reactions to my thoughts, some of the things I loved about university were being around other deepminded people and being encouraged to think deeply.

    Thanks to NAS 79256, above I think I've got your ID right? And to Maja too, its good to know I'm not alone in the shadows and liminal spaces, maybe we'll bump into eachother one day? Lol.

    I think I too had concluded that nobody else really liked thinking, making connections from seemingly random threads across time and space, inner and outer. To me its all the Anglo-Saxon/Norse concept of The Wyrd, the warp and weft of the universe, multidimensional and wonderful, if we follow the strands we see what was and whats possible, how it all links what threads cross where and when and how strongly.

    I think we build deep mind spaces by not being embarassed to start posting them, obviously some will drop off the edge into nowhere and others might only be a couple of posts long, but the possibilities are there, if we choose to take them.

    I could have a rant about what I see as the evils of social media and the capabilites of mobile phones, I mean why go to a gig and watch it and film it on your phone? To me it totally defeats the object of going to see live music, its no wonder so many clubs and music venues are shutting down. Everything and everyone seems pigeon holed all thier likes and dislikes curated by algorthingies and fed more of the same, the gods forbid anyone should be challenged, to not agree seems to have morphed into abusing someones human rights. It makes everything so binary, free speech absolutism or taking responsibility to not abuse and deliberately provoke and hurt whilst still getting your point across. I think its created a world where we can no longer agree to disagree, where to not follow the dominant narrative is to be deviant and I use this word deliberately, to be deviant or to be seen that way is othering at one of its deepest, most insideous and dangerous ways, not just its other meaning, as not following the expeced norms.