Diagnosed ADHD, awaiting Autism Result

Hi,

I'm male, 36 and newly diagnosed ADHD. I've also have my Autism assessment with my feedback appointment around 2 weeks away. 

Currently out of work and struggling. 

I'm just looking for advice and guidance really. 

For the last year, it seems like everything has gotten worse which is why, after advice, I finally asked to be referred to be assessed. 

Now I'm at the end stages, my anxiety has gone through the roof and it feels like I can no longer nor do I want to mask anymore. 

I keep overthinking that I've not given enough information for the Autism side of things and that I won't be diagnosed. After researching everything I possibly could, I feel the Autism fits more than the ADHD. 

Another worry is then having support in place, if I am diagnosed. 

With the ADHD, I kind of feel like I've been left to it. I was added to a waiting list for titration but advised it may take a while and that was it.

I am also going to make contact with ADHD charities and support for it but for the Autism I just wanted to know how others have coped with it. How to take your mind off it while waiting a result and what you did after being diagnosed. 

Any advice is welcome. 

Thanks,

Mister B

Parents
  • I have my meds privately (titration within 2-3 months of assessment)

    Is the waiting list for your titration with NHS ? or were you diagnosed via a private clinic (perhaps RTC) then perhaps recheck with them that you've not been missed or ask for a new update on expected wait.

  • That's not so long then. 

    How have you found meditation so far?

    No, I did the RTC route. After my ADHD diagnosis, I was asked if I wanted to be added to a waiting list for titration. I think I will make contact with them again on Monday for an update. 

  • Yes - I'm getting on well with them, I do get a dry mouth which is a common side effect for Elvanse (not any recommendation just a statement) which is what I'm on and got a mouth ulcer early on, but I just try to chew gum or mint or remember to sip water. 

    I'm starting month 4, I went through my health insurance but have to pay for my meds around £88 a month, but my GP may do shared care, which means they should drop to prescription cost, although NHS ADHD services are temporarily shut in my area (been 8 months so I read it as permanent) in which case my annual reviews I'll have to pay for (Poss £400-500) as i will need to keep with my private prescriber.

    Yes a polite follow up may help next week - good luck !

  • I completely agree. Again, I am still not 100% sure but I would consider. I have also been looking at other routes like vitamins and nutrients that are said to help. 

    I think it ultimately comes down to a mix of both medication/nutrients as well as self management. 

    Definitely, evidence based research was a big part of my university life but I do enjoy researching things for my own knowledge too. I'll have a look at those links.

    Hopefully they can give me something to take forward and make a decision on how to manage myself better. 

Reply
  • I completely agree. Again, I am still not 100% sure but I would consider. I have also been looking at other routes like vitamins and nutrients that are said to help. 

    I think it ultimately comes down to a mix of both medication/nutrients as well as self management. 

    Definitely, evidence based research was a big part of my university life but I do enjoy researching things for my own knowledge too. I'll have a look at those links.

    Hopefully they can give me something to take forward and make a decision on how to manage myself better. 

Children
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