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Diagnosed ADHD, awaiting Autism Result

Mister_B

Hi,

I'm male, 36 and newly diagnosed ADHD. I've also have my Autism assessment with my feedback appointment around 2 weeks away. 

Currently out of work and struggling. 

I'm just looking for advice and guidance really. 

For the last year, it seems like everything has gotten worse which is why, after advice, I finally asked to be referred to be assessed. 

Now I'm at the end stages, my anxiety has gone through the roof and it feels like I can no longer nor do I want to mask anymore. 

I keep overthinking that I've not given enough information for the Autism side of things and that I won't be diagnosed. After researching everything I possibly could, I feel the Autism fits more than the ADHD. 

Another worry is then having support in place, if I am diagnosed. 

With the ADHD, I kind of feel like I've been left to it. I was added to a waiting list for titration but advised it may take a while and that was it.

I am also going to make contact with ADHD charities and support for it but for the Autism I just wanted to know how others have coped with it. How to take your mind off it while waiting a result and what you did after being diagnosed. 

Any advice is welcome. 

Thanks,

Mister B

Parents

  • I have my meds privately (titration within 2-3 months of assessment)

    Is the waiting list for your titration with NHS ? or were you diagnosed via a private clinic (perhaps RTC) then perhaps recheck with them that you've not been missed or ask for a new update on expected wait.

  • in reply to Jalapeno

    That's not so long then. 

    How have you found meditation so far?

    No, I did the RTC route. After my ADHD diagnosis, I was asked if I wanted to be added to a waiting list for titration. I think I will make contact with them again on Monday for an update. 

  • in reply to Mister_B

    Yes - I'm getting on well with them, I do get a dry mouth which is a common side effect for Elvanse (not any recommendation just a statement) which is what I'm on and got a mouth ulcer early on, but I just try to chew gum or mint or remember to sip water. 

    I'm starting month 4, I went through my health insurance but have to pay for my meds around £88 a month, but my GP may do shared care, which means they should drop to prescription cost, although NHS ADHD services are temporarily shut in my area (been 8 months so I read it as permanent) in which case my annual reviews I'll have to pay for (Poss £400-500) as i will need to keep with my private prescriber.

    Yes a polite follow up may help next week - good luck !

  • in reply to Jalapeno

    Just to be clear - I don't want to be seen a meds are the answer for everyone - they aren't so if you are OK without meds then that's great, so I want to be clear - medication doesn't cure all

    for me it has helped with inattention and getting things started.  Impulsivity seems less improved - but its doesn't cure these traits and everyone reacts differently.  For me my anxiety has generally been reduced but hasn't prevented feeling overwhelmed on occasions (just less frequent) although as we all know often  the environment (work, home etc)  is key.

    Some people use the phrase "skills and pills" - so even with medication you still need to be monitoring how you are, where you are, and you're coping strategies should you need them.

    I agree we can't openly advise on medication on the forum, but it would be good if there was more up-to-date and complete information on NAS about the more common types of medicines used.  I did a quick search of the NAS and didn't find much, and even less relating to ADHD medication.  This  are some pages I found

    response-to-review-into-prevalence-of-autism-mental-health-adhd

    autism-adhd

    stopping-the-overmedication-of-people - this one is interesting as psychotropic meds for depression, anxiety and psychosis are listed but nothing about ADHD meds, which given some many of us are AuDHD, it would be better if that was mentioned too. The link is to a free download - not sure of date or whether its NAS' current view ? as its still there then I guess it is

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  • in reply to Jalapeno

    Just to be clear - I don't want to be seen a meds are the answer for everyone - they aren't so if you are OK without meds then that's great, so I want to be clear - medication doesn't cure all

    for me it has helped with inattention and getting things started.  Impulsivity seems less improved - but its doesn't cure these traits and everyone reacts differently.  For me my anxiety has generally been reduced but hasn't prevented feeling overwhelmed on occasions (just less frequent) although as we all know often  the environment (work, home etc)  is key.

    Some people use the phrase "skills and pills" - so even with medication you still need to be monitoring how you are, where you are, and you're coping strategies should you need them.

    I agree we can't openly advise on medication on the forum, but it would be good if there was more up-to-date and complete information on NAS about the more common types of medicines used.  I did a quick search of the NAS and didn't find much, and even less relating to ADHD medication.  This  are some pages I found

    response-to-review-into-prevalence-of-autism-mental-health-adhd

    autism-adhd

    stopping-the-overmedication-of-people - this one is interesting as psychotropic meds for depression, anxiety and psychosis are listed but nothing about ADHD meds, which given some many of us are AuDHD, it would be better if that was mentioned too. The link is to a free download - not sure of date or whether its NAS' current view ? as its still there then I guess it is

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