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PIP

Unsure

So, this morning I had a long PIP assessment call to discuss all the medical stuff that has gone on. So now I cant help but keep thinking about it and that I wouldnt have got across the whole situation. I know its no use second guessing, I'm usually paranoid anyway without thinking how the way they ask might be portayed. I had previously applied unsucessfully with medical conditions before the asd diagnosis. They arent here to see the anxiety and fatigue that that alone has caused. I've worked 40 yrs and dont think I'm a fraud.

Parents

  • I can understand why you feel paranoid about this. The whole system creates paranoia- in fact I think it’s deliberately designed to do that. You did everything you could, you did your best, and you can do no more. It’s a hostile system. It’s out of your control at this point - and you never know - it might all work out ok. Try to mentally surrender to the fact that it’s now out of your hands - because stressing over it won’t make any difference - apart from just making you feel worse.  

  • in reply to Kate Kestrel

    You're right, but I have been totally deflated.

  • in reply to Unsure

    My son is in the process of his PIP review and I know exactly what you mean. It’s exhausting and frightening in our experience. Without my support I know that my son would never apply because the application process is so complicated and daunting - it took us 3 days just to fill out the form and we were so stressed and worried about doing it. Sometimes we feel like giving up. My son often feels suicidal because he struggles so much with life - and filling out this form and going over and over how much he struggles is incredibly damaging for his mental health. He has very severe ocd and talking about that is off the scale stressful for him. The education system never provided him with the help he needed to overcome his Selective Mutism in school, and now he’s an adult there’s still no help. And then when he needs to claim money to live in they make you feel bad about that - like ‘you should be earning money not claiming benefits’ - but maybe if they’d given my son the right help when he was at school then maybe now he would be able to get a job (maybe) but he can’t talk to people so how can he get a job? So why do they make it so hard for people who have no choice but to claim something just to eat etc? I hate the system because it makes us feel so bad about the fact that we are struggling - even when we are really doing our absolute best. Every day is a struggle for my son. The system should be kinder and more supportive - instead of threatening and exhausting. 

  • in reply to Kate Kestrel

    Yes. I was ill health retired for medical reasons, but to young for state pension and the work pension doesnt cover living so its an endless 'battle' to apply for help even with 40 years of work and contributions behind me. The late formal ASD diagnosis adds to it, but I have always found adult life very stressful and confusing.

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  • in reply to Kate Kestrel

    Yes. I was ill health retired for medical reasons, but to young for state pension and the work pension doesnt cover living so its an endless 'battle' to apply for help even with 40 years of work and contributions behind me. The late formal ASD diagnosis adds to it, but I have always found adult life very stressful and confusing.

Children
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