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I'm living with autism and I'm undiagnosed.

NAS71232

It's getting worse as I age. I had a severe brain trauma when I was 14. It damaged me. I can't believe I survived it. I'm 49.

I have trouble focusing now. My mother thinks I also have ADHD.

I look after my mother as she is very sick and disabled. She broke her wrist last week because she fell over. Her wrist is swollen and she is in pain.

I make her tea and food. I'm working on her garden. I'm in a lot of pain as well, due to Barrett's oesophagus and diverticulosis. I'm perscribed pregaballin which is helping. 

I'm trying to make things right. The pain is bad when I get a diverticular flare up. It happens a lot. I won't go into detail as it's very gross.

I don't understand autism. There are people that are autistic and are CEO's of companies. My mind wipes. It's like I'm stuck in Groundhog Day. I'm going around in circles.

I'm so forgetful. The hostipal said I just have to live with my ailments as it can't be operated on. This doesn't include my undiagnosed mental illness. It's too much.

Sorry for the rant. I hope you're well.

Parents

  • Sorry you’re going through a bad time I really am. Speak to your GP first and foremost and take it from there. You may require another assessment/scan for the brain injury you had first to ascertain anything else.

    please speak to your GP initially to see where you go from here. 

  • in reply to Coppo

    Thanks for the advice. It's really werid talking to my GP about autism and ADHD. It's very awkward. I don't want to be a problem.


    The fatigue is the worst part. The combination of my ailments drains me of energy. Everyday tasks are a drain. I just want to slepp all the time. I can't talk about what happens as it is very gross. My GP said diverticulosis isn't a problem as everyone has polyps. The lady that did my colonoscopy said she has only seen it that severe in patients in their 90's and I will definitely need to eventually have a section of my colon removed.

    It's geting worse, so I know my time is getting short. Honesty thinking about what I want to do before I get the news.

    Strangely enough, I would be relived if my GP told me how long I have left.

    I

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  • in reply to Coppo

    Thanks for the advice. It's really werid talking to my GP about autism and ADHD. It's very awkward. I don't want to be a problem.


    The fatigue is the worst part. The combination of my ailments drains me of energy. Everyday tasks are a drain. I just want to slepp all the time. I can't talk about what happens as it is very gross. My GP said diverticulosis isn't a problem as everyone has polyps. The lady that did my colonoscopy said she has only seen it that severe in patients in their 90's and I will definitely need to eventually have a section of my colon removed.

    It's geting worse, so I know my time is getting short. Honesty thinking about what I want to do before I get the news.

    Strangely enough, I would be relived if my GP told me how long I have left.

    I

Children
  • in reply to NAS71232

    You're empathetic which is a blessing and a curse, as you don't want to bother GP... The issue is that if you want a council property you're going to have to talk about how your life is affected, uncomfortable as it may be, be brutally honest with GP who may refer you for counselling, or can help you get started re official diagnosis for ADHD... That way all the issues that you're dealing with can be documented and reports used as part of your council application. If the hospital sent you a report re your health conditions use the report to back up your application, the more medical evidence you can put together the better and don't fret re being 49 thousands of people some as old as 90 are being diagnosed every day - best of luck.