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Diagnostic Assessment without childhood caregivers

forget_me_not48

Hello,

I just wanted to know a range of experiences from those of you who are late to discover they may have autism or late diagnosed who didn’t have childhood caregivers during the assessment.

Both my parents passed away (I’m almost 50 now) and there are no other family who can validate my childhood behavior.

wondered if the lack of childhood information affected a positive diagnosis for people? I have lots of examples to tell them and some school reports but that’s it. It’s not a great thought really that no parents around = more difficult diagnosis. 

thank you Pray tone2 

Parents

  • Hi, I had an NHS assessment last year at the age of 57. My mother is 80 and doesn’t really accept autism, she still can’t say the word. I have all my school reports but didn’t use them, they mainly just say I was quiet.
    I was assessed with no parental involvement,  the section in the forms from a childhood informant were returned to them blank. my wife sat in on the end of the second session and really just verified what I had said.

    My wife’s input was more to build up more of a picture of me and as support when I was told the outcome.They said they didn’t normally give the results on the day but I was an easier diagnosis and they had already decided by lunchtime.

    I read your other post, you really need to appeal and ask for a further opinion. Personally I don’t think the assessor treated you fairly.

Reply

  • Hi, I had an NHS assessment last year at the age of 57. My mother is 80 and doesn’t really accept autism, she still can’t say the word. I have all my school reports but didn’t use them, they mainly just say I was quiet.
    I was assessed with no parental involvement,  the section in the forms from a childhood informant were returned to them blank. my wife sat in on the end of the second session and really just verified what I had said.

    My wife’s input was more to build up more of a picture of me and as support when I was told the outcome.They said they didn’t normally give the results on the day but I was an easier diagnosis and they had already decided by lunchtime.

    I read your other post, you really need to appeal and ask for a further opinion. Personally I don’t think the assessor treated you fairly.

Children
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