Diagnostic Assessment without childhood caregivers

Hello,

I just wanted to know a range of experiences from those of you who are late to discover they may have autism or late diagnosed who didn’t have childhood caregivers during the assessment.

Both my parents passed away (I’m almost 50 now) and there are no other family who can validate my childhood behavior.

wondered if the lack of childhood information affected a positive diagnosis for people? I have lots of examples to tell them and some school reports but that’s it. It’s not a great thought really that no parents around = more difficult diagnosis. 

thank you Pray tone2 

Parents
  • Hi, im Awaiting my assessment and the psychologist is fine with my school reports and some other evidence, for exampleold photos. I have an email from a family member about me, how I was as a toddler, and copies of my drawings from my childhood. She wrote, she understands that many adults don't have any informant or their family members deny the possibility of them being autistic. I wish you luck. I'm myself nervous about it all.

    It depends on the provider. I'm going private for few reasons, one of the reasons is lack of informant (here where im living they require a family member).

  • This sounds positive from the psychologist…also wishing you lots of luck. You will be OK when you’re in there talking about yourself maybe? I’m also thinking about going private as I can’t wait 2 years. So do some providers force you to have an informant? Which country are you in? It all seems so disjointed 

  • I'm living in Germany. Some providers (mostly those paid by insurance) won't start the process, if there is no family member to fill out the form for you. If I try on insurance,  I would have waited at least 2 years. I have some savings. I don't like travelling,  I hate shopping, I don't spend money on any entertainment so at least I spend it on myself (health care). I'm not German,  so I don't even know how would they accept translation (I would probably have to pay myself for translations). I actually have to clarify this point with this provider, but I mentioned in my first email, that im not German and my origin.

  • My assessor replied to me, that for her the statements of the family members in an adult assessment are insignificant because they are often distorted. Tge family members often don't remember well or just don't accept the possibility of their child/sibling being autistic. She wrote, the most important thing is to ask right questions and observe the patient herself. I collect as much documentation as I can. Now I can see, that even these documents that seemed to be irrelevant,  may actually help me.

  • Thank you for sharing. It’s really not a good situation and I think the system needs a re think to make the assessment easier for people considering the challenges they are facing. It’s almost like the struggles we face in daily life - being misunderstood and judged continue into the assessment which I find baffling. Wishing you all the best anyway

Reply
  • Thank you for sharing. It’s really not a good situation and I think the system needs a re think to make the assessment easier for people considering the challenges they are facing. It’s almost like the struggles we face in daily life - being misunderstood and judged continue into the assessment which I find baffling. Wishing you all the best anyway

Children
  • My assessor replied to me, that for her the statements of the family members in an adult assessment are insignificant because they are often distorted. Tge family members often don't remember well or just don't accept the possibility of their child/sibling being autistic. She wrote, the most important thing is to ask right questions and observe the patient herself. I collect as much documentation as I can. Now I can see, that even these documents that seemed to be irrelevant,  may actually help me.