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Late possible diagnosis/ toddler diagnosis

Millie89

Hello,

My two year old son has been showing signs of being autistic for a while.

i am currently trying to navigate how to go about getting him help.

However while doing some of the early tests for him the expert I am in touch with suggested I do the adult version of the assessment.

It’s blown my mind at 37 year old that a lot of my life ‘struggles’ could be done down to me also being autistic.

I am looking for support as anyone I have mentioned it to so far have said ‘you’re not autistic’.They don’t realise how much effort I put in to daily life to appear ‘normal’

I have been saying since my son was 1 that he was showing signs and now he’s nearly 3 people are starting to agree with me! 

I’ve have long been the ‘ problem child’ in my family. I was diagnosed with a personality disorder around 5 years ago and that got diminished by my parents etc too.

i guess i am feeling at bit lost and overwhelmed! Any advice or guidance please!

Thank you for reading 

Parents

  • Good morning from America, Millie89!

    34 year old here and I was diagnosed at 30. My daughter (now 8) was diagnosed shortly after me. Me getting diagnosed was a major part of why we looked for one for my daughter, so my journey was kind of the opposite of yours lol. One hurdle we faced, even though we could clearly see that she was missing big milestones age 1-3, was that most doctors seem to want to wait until around 6 years old to diagnose. It’s hard to clearly identify it at toddler age, but I’m not saying it’s impossible. So if you get a false negative early on, wait a few years and try to get him diagnosed again later.

    Millie89 said:
    I was diagnosed with a personality disorder around 5 years ago and that got diminished by my parents etc too.

    One thing you might look into is whether that personality disorder was misdiagnosed. It seems a lot of women who actually have Autism get misdiagnosed with that and/or BPD. So yeah, take a look at that.

    Millie89 said:
    as anyone I have mentioned it to so far have said ‘you’re not autistic’.

    Oh yeah, that can be very common. My wife denied I had Autism until I got diagnosed, and even then it took some time (mainly our daughter also getting diagnosed) for her to really accept it. The psychologist that worked with me said that I am “borderline Autistic,” so I have been fighting imposter syndrome that I might be pretending to be Autistic. But after a few years of wrestling with that, I’ve come to grips with the fact that my Autism looks different that most others’. 

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  • Good morning from America, Millie89!

    34 year old here and I was diagnosed at 30. My daughter (now 8) was diagnosed shortly after me. Me getting diagnosed was a major part of why we looked for one for my daughter, so my journey was kind of the opposite of yours lol. One hurdle we faced, even though we could clearly see that she was missing big milestones age 1-3, was that most doctors seem to want to wait until around 6 years old to diagnose. It’s hard to clearly identify it at toddler age, but I’m not saying it’s impossible. So if you get a false negative early on, wait a few years and try to get him diagnosed again later.

    Millie89 said:
    I was diagnosed with a personality disorder around 5 years ago and that got diminished by my parents etc too.

    One thing you might look into is whether that personality disorder was misdiagnosed. It seems a lot of women who actually have Autism get misdiagnosed with that and/or BPD. So yeah, take a look at that.

    Millie89 said:
    as anyone I have mentioned it to so far have said ‘you’re not autistic’.

    Oh yeah, that can be very common. My wife denied I had Autism until I got diagnosed, and even then it took some time (mainly our daughter also getting diagnosed) for her to really accept it. The psychologist that worked with me said that I am “borderline Autistic,” so I have been fighting imposter syndrome that I might be pretending to be Autistic. But after a few years of wrestling with that, I’ve come to grips with the fact that my Autism looks different that most others’. 

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