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Not sure how to move forward post diagnosis.

Ellie1984

I was diagnosed 6 weeks ago at the age of 41 after spending all of my adult life telling people how much I was struggling but feel I was largely not listened to. I feel angry with mental health professionals as I feel I was just labelled as anxious and then ignored. Either that or they decided what the issue was then ignored anything I said that didn't fit that idea after. I feel like my brain has tapped out of life now and it's a strange feeling. I am still working and get on with the bare minimum but beyond that I just don't feel like I care about anything any more. I just feel numb and like nothing brings me joy or interests me to care about it any more. How do I move forward from feeling anger and sadness at what my life could have been had I been heard and diagnosed sooner when I just don't care to try with anything any more? Sorry this isn't a more positive post.

Parents

  • Hi I'm not diagnosed. It's being 2 years that I know about autism,  I've been exploring this topic and now it's possible,  that im on my way to be diagnosed.  My therapist told me he has no other idea what else could that be. But the final word has not been said yet. I went through grief of my lost youth, anger, how my life could have been if my mom didn't keep me away from getting help. There were massive problems,  including meltdowns,  I'm sure, any other caring parent would have done something about it. The thing that helped me accept tge situation is the fact, that 

    1. Getting diagnosed 20+ years ago didn't mean, I would actually get help. Maybe my mom just saved me from being locked in a mental ward and fed awful meds. I red an article about autistic children (people more or less my age) that were put under cruel "therapies" that caused them life long PTSD. I'm lucky I wasn't there.

    2. The awareness about autism back then was much lower. So there is a high possibility, that I would be misdiagnosed (and I was as a young adult)

    3. I'm happy and lucky that I know now or have the suspicion.  There are still many people who suffer and have no idea why. 

    My life was hard, but I can't change the past. I try to concentrate on working for better future. 

    Sorry uf my post is annoying. I know that it's not that easy to get over these feelings. I wish you best and hope you find support here. What makes me angry currently are lies and gaslighting from my mom. But there is nothing I can do about it, just get immune to that.

Reply

  • Hi I'm not diagnosed. It's being 2 years that I know about autism,  I've been exploring this topic and now it's possible,  that im on my way to be diagnosed.  My therapist told me he has no other idea what else could that be. But the final word has not been said yet. I went through grief of my lost youth, anger, how my life could have been if my mom didn't keep me away from getting help. There were massive problems,  including meltdowns,  I'm sure, any other caring parent would have done something about it. The thing that helped me accept tge situation is the fact, that 

    1. Getting diagnosed 20+ years ago didn't mean, I would actually get help. Maybe my mom just saved me from being locked in a mental ward and fed awful meds. I red an article about autistic children (people more or less my age) that were put under cruel "therapies" that caused them life long PTSD. I'm lucky I wasn't there.

    2. The awareness about autism back then was much lower. So there is a high possibility, that I would be misdiagnosed (and I was as a young adult)

    3. I'm happy and lucky that I know now or have the suspicion.  There are still many people who suffer and have no idea why. 

    My life was hard, but I can't change the past. I try to concentrate on working for better future. 

    Sorry uf my post is annoying. I know that it's not that easy to get over these feelings. I wish you best and hope you find support here. What makes me angry currently are lies and gaslighting from my mom. But there is nothing I can do about it, just get immune to that.

Children
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