Undiagnosed autistic husband

Hello,  I hope this is a good place to seek some guidance,  I have read some really great advice that has provided some good insight. I am married to my autistic husband for going on 3 years now. My question is that I really really want to break the cycle we keep finding ourselves in.  Our disagreements are cyclical and identical.  He and I both have the same high pressure/ high function job,  and were in fact working at the same place.  It was too much for me so I left (a lot of us have left that place)  and now I have a version of it thats WFH and much more manageable. He, however, is still there.  He absolutely hates it. He complains everyday about long hours,  far from home (he says no be doesn't want to move into the city near his job bc he hates the city) his clients are entitled and stress him out,  etc.   He talks about changing jobs,  gets very passionate about "getting his act together and moving on so I can live my life", has a schedule of what he wants to do and what he wants ourlife to look like.. but herein lies the problem. This thinking exists when he's calm and ok. But when he gets burned out/overwhelmed  (? Shut down?) , his whole perception changes. He gets burned out and then all of that goes out the window. I've figured out (I think) that there are things like his family and this job that zaps so much of him,  that he's left with little energy to think about much else at all,  esp switching jobs.   So, as the week goes on (esp if there are any external stressors), when the topic of his job comes up again, he starts to minimize all this things he hates and complained about yesterday...saying it's awkward to leave jobs... how can he absolutely sure a new job will be better...and what if his clients miss him... justifies staying... "maybe it's not so bad".  Meanwhile he's in a very bad mood,  snapping, angry when I ask for what I see as small understandable things (like comfort me when I'm stressed instead of it always being me comforting you), unable to handle everyday tasks that annoy us all like dealing with an annoying neighbor.   He reacts strongly,  everything I say is somehow veiled criticism.  He gets extremely rigid and insists on unrealistic things that he acknowledges when not overwhelmed.  Whereas he's normally very emotionally aware and connected to me that way with amazing conversations ama insight for us both,  in times of overwhelm he looks at me like I make no sense if I express an emotion instead of just doing the thing in front of us.    He brings up things that stressed him over a decade ago that we talked about back then.  Etc.  When he comes out of overwhelm, he apologizes,  insists he needs to change his job... then rinse and repeat for next week/ couple of weeks..i am very exhausted.  I am very open to hearing him,  to working with him.  And he hears this,  he knows this. But when the overwhelm hits, he is someone different.  Also just to note, I do give him space,  and try to make sure stressful stuff is bought up at a time that's relatively calm (and not late).  To me it comes out of the blue.   The overwhelm modes are recurrent and I feel so utterly alone when the sweet man who is very emotionally connected with me becomes this person who acts like I'm not on his side and like we never had the conversation we just had two days ago.... I'm lost on what to do next.  I've come up with a schedule for him to have decompress time,  for him to visit his family (which he worries about)  etc.  We just got him an autism affirming counselor, but I'm really hoping for insight or advice from anyone who may know what he's going through so I can help.  When he's not overwhelmed he's so sweet and kind that his change when stressed really is disconcerting and I miss my husband.Thank you so much in advance. 

Parents
  • Hi and welcome to the community. I'm a woman in my sixties, married, and I believe that both of us are on the autism spectrum, so I understand your situation to some extent.

    First of all, I understand how work can overload an autistic person - I've had it myself and seen it in my partner. When you are overloaded, trying to deal with anything else - such as applying for other jobs - can seem impossible, so I think your husband may be trying to pretend his present job is actually ok because he just doesn't have the energy left to pursue anything else. I think you already understand that.

    Sometimes you need to take a break and reassess everything together and work out what will make you both happy. Is it possible for you both to take some time off work and spend a bit of peaceful time together doing that? If you can't take any days off work at the moment, plan to have a free day together at a weekend with no interruptions from friends or family.

    Once you've agreed your goals, I suggest planning the best way to minimise stress while pursuing those goals when you return to work. You could offer to help him update his CV so that is then done and ready to send to prospective employers. He can also get registered with employment agencies and get job notifications set up so that he receives details of suitable positions. If he starts to get interview offers, that may then help him to feel more positive about the future.

    You say he "has a schedule of what he wants to do and what he wants our life to look like" so that probably includes more than just him changing job, but it's probably best to change things one at a time. You could point out to him that once he's in a job that feels like a better fit, you can then both decide what other things you want to change, so working towards that together as a team is a good start.

    I wish you both well.

  • Thank you so much truly for this response, I truly appreciate it.   Sometimes it seems he is not really sure himself how he feels,  or he doesn't know it's a "bad day" until something comes up and he doesn't handle it well. Are there any ways I can help him be able to perceive whether today is a good day or bad day?  That will help me plan our joint discussions and things better so I know he's in the calm mind space.   Thank you again!smiling face with hearts

  • Yeah... that's so common with alexithymia - it's like his internal radar's fuzzy, so he only clocks "bad day" after it's already red-alert. The trick is building that radar slowly, without making it feel like homework.

    Here are gentle ways to help him notice - start tiny, green-zone only:

    1. Zones of Regulation – super visual, low-effort Grab the free four-zone printable from zonesofregulation.com (English version's dead simple: Green = calm/good energy, Yellow = rising tension, Red = overload, Blue = drained). Print it, stick it on the fridge or his phone wallpaper. Morning ritual: "Quick scan - what zone are you in right now?" No explanation needed - just point. Over time, he'll link "tight chest" to Yellow before it blows up.

    2. Body check-ins (Kelly Mahler style) She's got free printables - sign up at kelly-mahler.com/printable-resources for stuff like "30 Days of Interoception Activities" or "Noticing Out Loud" guides. One easy one: daily "body menu" card - pick from words like "heavy," "buzzing," "quiet." Say: "How's your body feeling? Pick one." It's like naming weather - neutral, not emotional. (She also sells a Body Check Ring with cards but start free.)

    3. Energy accounting – treat it like a battery From autism burnout experts (like Dr. Alice Nicholls): List 3-4 energy types - physical (body), social (talking), cognitive (thinking). Morning: "On a 1-10, how full's your battery? Any category low?" Track after activities: "That chat drained me - next time, shorter." Partners introduce it as "our shared map" so he doesn't feel singled out.

    4. Quick daily anchors

    • Morning coffee: "Battery level? Any tension?"
    • Evening wind-down: "What drained today? What recharged?" Model it: "I'm at 6/10 - shoulders tight." Makes it normal.

    Praise any guess - even wrong: "Thanks for checking - that helps us both." No fixing, just noticing. Patterns emerge: he'll spot "after family call = Yellow" before meltdown.

    You're giving him tools, not tests. When he says, "I'm low today," that's gold - your cue for calm talks.

    Good luck. brown heart

  • I think you're handling this like a pro, Sarah.

    The move's scary for him - those seven minutes feel like a lifetime when he's wired for "instant help" to his mom. But you're right: it's not logical, it's emotional. And you're not pushing - you're compromising, keeping it real.

    My take? Lean into the predictability. Show him the timeline, let him "own" one tiny part (like picking where the blanket goes). When he says, "why not by mom?", just hug him and say: "I know it hurts. We're close enough - we'll make it work." No debate.

    You're not the villain. You're the anchor. And yes, turn down everything else - music off, no big plans. Just breathe through it together.

  • Alexithymia is exactly what I've heard before!  Thank you for breaking it down like this because I understand this much better with the way you laid it out. Self checks I see are going to be a cornerstone for us. Our homework is going to be to enact that primarily plus the other items that everyone has explained (the perspectives are enormously helpful from all), while I think also treading lightly as we navigate this house move.

     He has a lot of fear moving into this new house because it's not in his family's zip code, plus he mentally ties new house with new job (no reason to,  he says he just does).  We agreed to table the job until we put out the fire in front of us since we're actively displaced from our apartment.   We've actually been looking at this new place for over a year,  and now that our current place is uninhabitable, we need to move... but I'm sure you can hear the urgency (=stress for him) in that situation.   We both compromised to proceed with this new place, (I agreed to move closer to live in his family's city,  he agreed to "put up" with living 20 min away from his family instead of 13 min) and yes those 7 min have cost him a lot of trepidation, and he still complains when stressed "why can't I live by my mom?"  He wants to be able to jump up and help at a moments notice,  and I'm sensitive to that,  but I don't think those 7 min will make that much of a difference,  and the house that's 13 min away from his mom extends my commute to my family (whom I also care for) considerably, which he acknowledges...So I'm hoping we can stay on the same page but also afraid some point in this process might make him meltdown again.  The best I can think of is to turn down the volume on other things while we go thru this objectively stressful situation 

Reply
  • Alexithymia is exactly what I've heard before!  Thank you for breaking it down like this because I understand this much better with the way you laid it out. Self checks I see are going to be a cornerstone for us. Our homework is going to be to enact that primarily plus the other items that everyone has explained (the perspectives are enormously helpful from all), while I think also treading lightly as we navigate this house move.

     He has a lot of fear moving into this new house because it's not in his family's zip code, plus he mentally ties new house with new job (no reason to,  he says he just does).  We agreed to table the job until we put out the fire in front of us since we're actively displaced from our apartment.   We've actually been looking at this new place for over a year,  and now that our current place is uninhabitable, we need to move... but I'm sure you can hear the urgency (=stress for him) in that situation.   We both compromised to proceed with this new place, (I agreed to move closer to live in his family's city,  he agreed to "put up" with living 20 min away from his family instead of 13 min) and yes those 7 min have cost him a lot of trepidation, and he still complains when stressed "why can't I live by my mom?"  He wants to be able to jump up and help at a moments notice,  and I'm sensitive to that,  but I don't think those 7 min will make that much of a difference,  and the house that's 13 min away from his mom extends my commute to my family (whom I also care for) considerably, which he acknowledges...So I'm hoping we can stay on the same page but also afraid some point in this process might make him meltdown again.  The best I can think of is to turn down the volume on other things while we go thru this objectively stressful situation 

Children
  • I think you're handling this like a pro, Sarah.

    The move's scary for him - those seven minutes feel like a lifetime when he's wired for "instant help" to his mom. But you're right: it's not logical, it's emotional. And you're not pushing - you're compromising, keeping it real.

    My take? Lean into the predictability. Show him the timeline, let him "own" one tiny part (like picking where the blanket goes). When he says, "why not by mom?", just hug him and say: "I know it hurts. We're close enough - we'll make it work." No debate.

    You're not the villain. You're the anchor. And yes, turn down everything else - music off, no big plans. Just breathe through it together.