Undiagnosed autistic husband

Hello,  I hope this is a good place to seek some guidance,  I have read some really great advice that has provided some good insight. I am married to my autistic husband for going on 3 years now. My question is that I really really want to break the cycle we keep finding ourselves in.  Our disagreements are cyclical and identical.  He and I both have the same high pressure/ high function job,  and were in fact working at the same place.  It was too much for me so I left (a lot of us have left that place)  and now I have a version of it thats WFH and much more manageable. He, however, is still there.  He absolutely hates it. He complains everyday about long hours,  far from home (he says no be doesn't want to move into the city near his job bc he hates the city) his clients are entitled and stress him out,  etc.   He talks about changing jobs,  gets very passionate about "getting his act together and moving on so I can live my life", has a schedule of what he wants to do and what he wants ourlife to look like.. but herein lies the problem. This thinking exists when he's calm and ok. But when he gets burned out/overwhelmed  (? Shut down?) , his whole perception changes. He gets burned out and then all of that goes out the window. I've figured out (I think) that there are things like his family and this job that zaps so much of him,  that he's left with little energy to think about much else at all,  esp switching jobs.   So, as the week goes on (esp if there are any external stressors), when the topic of his job comes up again, he starts to minimize all this things he hates and complained about yesterday...saying it's awkward to leave jobs... how can he absolutely sure a new job will be better...and what if his clients miss him... justifies staying... "maybe it's not so bad".  Meanwhile he's in a very bad mood,  snapping, angry when I ask for what I see as small understandable things (like comfort me when I'm stressed instead of it always being me comforting you), unable to handle everyday tasks that annoy us all like dealing with an annoying neighbor.   He reacts strongly,  everything I say is somehow veiled criticism.  He gets extremely rigid and insists on unrealistic things that he acknowledges when not overwhelmed.  Whereas he's normally very emotionally aware and connected to me that way with amazing conversations ama insight for us both,  in times of overwhelm he looks at me like I make no sense if I express an emotion instead of just doing the thing in front of us.    He brings up things that stressed him over a decade ago that we talked about back then.  Etc.  When he comes out of overwhelm, he apologizes,  insists he needs to change his job... then rinse and repeat for next week/ couple of weeks..i am very exhausted.  I am very open to hearing him,  to working with him.  And he hears this,  he knows this. But when the overwhelm hits, he is someone different.  Also just to note, I do give him space,  and try to make sure stressful stuff is bought up at a time that's relatively calm (and not late).  To me it comes out of the blue.   The overwhelm modes are recurrent and I feel so utterly alone when the sweet man who is very emotionally connected with me becomes this person who acts like I'm not on his side and like we never had the conversation we just had two days ago.... I'm lost on what to do next.  I've come up with a schedule for him to have decompress time,  for him to visit his family (which he worries about)  etc.  We just got him an autism affirming counselor, but I'm really hoping for insight or advice from anyone who may know what he's going through so I can help.  When he's not overwhelmed he's so sweet and kind that his change when stressed really is disconcerting and I miss my husband.Thank you so much in advance. 

Parents
  • Hi and welcome to the community. I'm a woman in my sixties, married, and I believe that both of us are on the autism spectrum, so I understand your situation to some extent.

    First of all, I understand how work can overload an autistic person - I've had it myself and seen it in my partner. When you are overloaded, trying to deal with anything else - such as applying for other jobs - can seem impossible, so I think your husband may be trying to pretend his present job is actually ok because he just doesn't have the energy left to pursue anything else. I think you already understand that.

    Sometimes you need to take a break and reassess everything together and work out what will make you both happy. Is it possible for you both to take some time off work and spend a bit of peaceful time together doing that? If you can't take any days off work at the moment, plan to have a free day together at a weekend with no interruptions from friends or family.

    Once you've agreed your goals, I suggest planning the best way to minimise stress while pursuing those goals when you return to work. You could offer to help him update his CV so that is then done and ready to send to prospective employers. He can also get registered with employment agencies and get job notifications set up so that he receives details of suitable positions. If he starts to get interview offers, that may then help him to feel more positive about the future.

    You say he "has a schedule of what he wants to do and what he wants our life to look like" so that probably includes more than just him changing job, but it's probably best to change things one at a time. You could point out to him that once he's in a job that feels like a better fit, you can then both decide what other things you want to change, so working towards that together as a team is a good start.

    I wish you both well.

  • Thank you so much truly for this response, I truly appreciate it.   Sometimes it seems he is not really sure himself how he feels,  or he doesn't know it's a "bad day" until something comes up and he doesn't handle it well. Are there any ways I can help him be able to perceive whether today is a good day or bad day?  That will help me plan our joint discussions and things better so I know he's in the calm mind space.   Thank you again!smiling face with hearts

  • You are welcome, glad to be of help.

    I see there are other replies suggesting solutions to helping him perceive whether it's a good or bad day, so the only thing I will add to that is perhaps you could try observing him and seeing if you can identify things in his body language that signal he is not coping so well. For example, when I'm overloaded I can be very quiet and withdrawn, avoid eye contact, and sometimes just stare into space, not doing the things I would normally such as reading or playing a game. If you do notice things like this, it's better not to ask him anything and to just do things that meets his needs or takes stress off him, such as cooking the evening meal for you both. You could just gently say something like "I think you look tired today, so I'll cook/ wash up/ do the laundry", etc.

    I'm very adamant that all couples should spend quality time together at least once a week, whatever neurotype they are. Relationships need to be worked on to be successful. So at least one evening where phones go off and you can "chillax" together. Perhaps you could schedule Saturday evenings for this, then use Sunday mornings for "planning for the future" sessions when you are both rested?

     If you need any more advice, don't hesitate to keep posting questions. 


  • Our Emergency Plan – When Things Hit Suddenly (We both know unexpected change is really hard - especially at 2am. This is a simple guide so we can stay on the same team.)

    1. First 1–2 minutes: Pause & Breathe
      • I will say something calm like: “This is an emergency. Let’s take a few breaths.”
      • We both breathe together (in for 4, out for 6).
      • If you’re starting to melt down, I’ll gently guide you to your safe spot (the chair by the window with your blanket). I’ll handle the first practical steps.
    2. Quick Check-in (next few minutes)
      • I’ll ask you very simply: “What do you need right now - quiet, space, or help?”
      • You can answer with words, a nod, or just point.
      • I’ll take the lead on sorting things out (calling the landlord, moving things, etc.) while you regulate.
    3. After the Immediate Crisis
      • We won’t talk about feelings or debrief until the next day after you’ve had sleep and quiet time.
      • When we do talk, we’ll keep it gentle: “What helped? What didn’t?”
      • No bringing up old issues - just “We got through it.”
    4. Things We’ll Keep Ready
      • Earbuds + your calming playlist in the drawer.
      • Spare blanket and water bottle by the couch.
      • A quiet corner ready for you.

    We’re not perfect, and that’s okay. These moments are tough for both of us. If things go sideways, we can always reset the next day.

    I love you and I want us to feel like a team even when everything is chaotic.

     

     

  • This is so insightful, thank you again sincerely. I make sure we have at least one chill day per week,  though I think I'm seeing when I detect a "good day," items need to be suggested carefully and at a drip instead of a water hose,  which I can do. 

    Something I don't know how to navigate are emergencies?  Unfortunately our apartment had a severe leak at 2am necessitating us to act quickly. He did not handle that well-- meltdown about how he can't deal with this because he has to get up for work at 6am.  That frustration is 1000% fair.  While I obviously didn't create the situation, he meltdown, and when I said we need to figure this out we need to do something,  then I became the enemy for..I don't even remember.  That night ended with me walking away from him fussing and figuring out the next step alone. And feeling alone.   For him, that situation triggered a week long referendum on all things that have bothered him for over a decade, and I was somehow the bad guy for things like "does your mom like me she doesn't invite me over."  He's coming out of that now,  has apologized.... but our place is uninhabitable and now we have to move to a new place.. more change=more stress and honestly I'm afraid of him crashing again.   How can I help him navigate emergencies (by definition,  no forewarning, stress inducing for him and for me too)?

Reply
  • This is so insightful, thank you again sincerely. I make sure we have at least one chill day per week,  though I think I'm seeing when I detect a "good day," items need to be suggested carefully and at a drip instead of a water hose,  which I can do. 

    Something I don't know how to navigate are emergencies?  Unfortunately our apartment had a severe leak at 2am necessitating us to act quickly. He did not handle that well-- meltdown about how he can't deal with this because he has to get up for work at 6am.  That frustration is 1000% fair.  While I obviously didn't create the situation, he meltdown, and when I said we need to figure this out we need to do something,  then I became the enemy for..I don't even remember.  That night ended with me walking away from him fussing and figuring out the next step alone. And feeling alone.   For him, that situation triggered a week long referendum on all things that have bothered him for over a decade, and I was somehow the bad guy for things like "does your mom like me she doesn't invite me over."  He's coming out of that now,  has apologized.... but our place is uninhabitable and now we have to move to a new place.. more change=more stress and honestly I'm afraid of him crashing again.   How can I help him navigate emergencies (by definition,  no forewarning, stress inducing for him and for me too)?

Children

  • Our Emergency Plan – When Things Hit Suddenly (We both know unexpected change is really hard - especially at 2am. This is a simple guide so we can stay on the same team.)

    1. First 1–2 minutes: Pause & Breathe
      • I will say something calm like: “This is an emergency. Let’s take a few breaths.”
      • We both breathe together (in for 4, out for 6).
      • If you’re starting to melt down, I’ll gently guide you to your safe spot (the chair by the window with your blanket). I’ll handle the first practical steps.
    2. Quick Check-in (next few minutes)
      • I’ll ask you very simply: “What do you need right now - quiet, space, or help?”
      • You can answer with words, a nod, or just point.
      • I’ll take the lead on sorting things out (calling the landlord, moving things, etc.) while you regulate.
    3. After the Immediate Crisis
      • We won’t talk about feelings or debrief until the next day after you’ve had sleep and quiet time.
      • When we do talk, we’ll keep it gentle: “What helped? What didn’t?”
      • No bringing up old issues - just “We got through it.”
    4. Things We’ll Keep Ready
      • Earbuds + your calming playlist in the drawer.
      • Spare blanket and water bottle by the couch.
      • A quiet corner ready for you.

    We’re not perfect, and that’s okay. These moments are tough for both of us. If things go sideways, we can always reset the next day.

    I love you and I want us to feel like a team even when everything is chaotic.