Unmasking at work but losing motivation?

Hi everyone. Not 100% sure if this is the right forum but wanted to put some thoughts down in case anyone can share their views.

I'm a 38yo F and am on an NHS waiting list for an autism diagnosis. Like many it was signs of it in my 6yo daughter (at the time, now 9) and an assessment pathway for her that made me look at myself.

Whilst not confirmed I've basically started to come to the realisation that I am probably autistic and it's become a huge fixation. One way this shows up is that I feel like I can't turn up to my corporate office job properly anymore. When I go into the office (about half of the time) I am more conscious than ever of office noise, overwhelm, constant task switching and an inability to hide my genuine distaste or lack of motivation when seeing a challenge. It worries me that I feel I can't go back to my old work ethic and 'people pleasing perfectionist' since I've started to unconsciously unmask (I've also told my manager I think I might be autistic). I feel a sense of panic around the sustainability of my role and how I can keep going when I feel like it's so fake. But at the same time then idea of leaving a stable job to find a more neuro-suitable role is also overwhelming and I don't feel like I can face the idea of it.

Has anyone else had any experience of this realisation? I find work drains me so much (I genuinely feel exhausted especially when I have to travel to things like conferences) and I've also got little left to give to my (suspected) ND kids who need me for emotional and wellbeing support after their days of masking all day at school. Feels like we're living an oddly parallel existence!

  • I have the same problem, let me know when you figure it out :(

  • On the reasonable adjustments piece I struggle as well

    I understand that you’re afraid of being stigmatized, but it might be a good idea to get a sense of what accommodations are out there in case you end up wanting them. Job Accommodation Network is a fantastic site that you can search up both what traits of Autism might be a problem in the workplace and it can list what accommodations could be asked for. 

    Unfortunately it sounds like some reasonable adjustments others have requested such as less intense lighting are not being heeded...

    Ultimately, yeah, that sounds typical. I hear a lot of employers struggle with (or simply ignore) requests for reasonable adjustments. That doesn’t mean it is worthless to ask for accommodations, though.

    Wishing you the best.

  • Thanks Bunny, to be honest I've known about Right to Choose for a while but been putting it off whilst I still decide if I am likely autistic or not. Also wanted to see how we get on with my daughter first before we progress much further with anyone else in the family. Her speech, language and communication assessment is in about 3 weeks..

    On the reasonable adjustments piece I struggle as well as I feel like it marks me out as different or stigmatises me. My manager is constantly asking if I'm okay and I want to say no but I also don't want to be seen rocking the boat it being a tricky direct report. I'm exercising caution but there is a ND network at work that I can tap into for help. Unfortunately it sounds like some reasonable adjustments others have requested such as less intense lighting are not being heeded...

  • Hi Kenew03, sorry to hear it as it's not a position I'm comfortable in. Feeling quite rattled by redundancy announcements this week as well which makes me feel quite unsettled and disillusioned. Which in turn makes it hard to focus!

  • Just want t say I 100% understand and am in the same boat Slight smile

  • Hi and welcome to the community!

    I suggest asking your manager to make some reasonable adjustments, to help avoid or minimise the impact of the issues that you're experiencing at work.

    You mentioned that you've already told your manager that you think you might be autistic - and the fact that you've been referred for assessment is also good supporting evidence. As the NAS explains, someone doesn't even need to have a diagnosis in order to be legally entitled to adjustments:

    "You may still meet the legal definition of disability even if you do not have a formal autism diagnosis. The law does not rely on causes or specific diagnoses but rather judges the effect and the disadvantage faced in a specific situation. ... This includes having the right to ‘reasonable adjustments’ at every stage of the employment cycle, from the recruitment phase to leaving a job."

    NAS - What are reasonable adjustments and when can they be requested?

    This advice might also be helpful:

    NAS - Autistic fatigue and burnout

    I'm a 38yo F and am on an NHS waiting list for an autism diagnosis.

    If you live in England and are currently on a waiting list for an assessment to be carried out by an NHS team, then you might like to consider asking to be re-referred via the Right to Choose pathway. This enables access to certain, approved private providers, with waiting times that are usually significantly shorter: 

    NAS - How to request an autism assessment > What is Right to Choose?