Suspecting autism, but is it the real deal, and does it even matter?

Hi there,

 

I’m new to the forum and find myself here due to a number of months of self-reflection.

 

I have wondered recently if I may be mildly autistic. To give some context, I am in my late 30s and live a normal life, good career, wife, kids etc. In many respects, I have no problems, but I have become increasingly aware of certain aspects of my behaviour that can come across as ‘odd’ for others (which I see as perfectly logical and normal), which in turn leads to tension. This has been exasperated by the life changing event of having children.

 

There are a number of reasons I believe I may be autistic:

 

I struggle socially – I don’t avoid social contact at all, but I force myself to do it.

I find keeping friends possible, but a lot of mental effort. I feel like I put far more effort into friendships than I gain from them.

In a professional environment, I am able to network, but find myself talking at people (constantly, about anything, even off topic), and avoid certain scenarios.

I am very sensitive to sounds, finding some sounds annoying when others don’t hear them.

I don’t believe I struggle with most aspects of understanding the emotions of others or sharing my own at all.

My imagination has never been great. I struggle with imaginary play with children and can’t make up a bedtime story for example.

I keep logs of a lot of things, spreadsheets with stats of lots of aspects of day to day life (my weight, how far I have cycled and where, our household energy use by month, fuel consumption of our car, pubs I’ve been to, etc).

I love to plan all of my activities to a lot of detail and hate when this gets de-railed.

For route planning, I’ll look at a detailed map and plan out every turn.

When I’m cooking, I’ll prepare, measure and line up all of the ingredients before starting.

I struggle to make decisions – every option needs to be analysed in a lot of detail before making a decision, however minor.

 

I believe over the years I have become incredibly good as masking the perceived negative aspects of my personality.

 

In summary I do feel there are certain aspects of my personality that show significant autistic traits, but am I getting confused with social anxiety, nervousness and my general way of doing things rather than ‘real’ autism?

 

To attempt to answer this, I have found a number of assessments online as a starting point before talking to family or medical professionals.

Here are the score of the online tests I have done:

 

AQ50:

A score of 40 out of 50 (where 33+ represents significant autistic traits)

 Empathy Quotient:

A score of 33 out of 80 (where 30 or lower indicates autistic traits)

 Systemizing Quotient:

A score of 98 out of 150 (where 75+ is indicative of autism)

 Rivto Autism Asperger Diagnostic Scale (RAADS-R):

A total score of 104 (where 90 = stronger indications of autism, and 130 is the mean score of autistic people.

 Camouflaging Autistic Traits (CAT-Q):

A score of 144 (where a score of 100 or above indicates camouflaging of autistic traits).

 Adult Repetitive Behaviours (RBQ-2A):

A score of 36 out of 60 (where the threshold range is 26+, and average autistic score is 36).

  

I’ve done others as well, and I’m registering on pretty much all of them as within threshold.

 

I was wondering if anyone had any thoughts, and if it would be beneficial to seek further professional advice?

I feel a little bit like a fraud as I am aware my traits are not anything like those others live with, but also aware that it may be having more of an impact on my life (and others) than I assume it is.

I'm also struggling to understand if putting a diagnosis on it really matters, given my life has been going pretty ok without it so far. 

Any views would be most welcome.

Thanks.

Parents
  • Hi, thank you for sharing. I felt called to reply because I think I can relate.

    I was in a very similar boat for a while (using the questionnaires and keeping a log of all the reasons why I thought it might/might not be autistic). I probably spent a good 3 years wondering, and for probably the last 1 of those years I started to try and accommodate myself as if I was indeed autistic, and began to self-identify, and things started to make more and more sense. However the fraud feeling got the better of me and since I was fortunate enough to have access to a free official diagnosis I took the plunge and got a referral. A lot of it was down to curiosity. Like you, I felt a bit bad for pursuing something that in all honesty wouldn't make much of a difference because I'm "successful" and was I claiming to be something that is such a massive struggle for lots of people, did I really need it..

    Even up until the point of the assessment itself I truly didn't know what outcome I wanted. I just wanted to know either way. During the assessment I was convinced they were going to say something like "you don't meet the criteria, you just have autistic traits" but lo and behold I did in fact meet the criteria. 

    Despite years of 'probably knowing', I was not prepared for the mix of emotions that came with having that label. It's only been 2 weeks so I'm still adjusting. But it's completely up to you how much you even want to use the label/tell people etc. I see it as another self-reflection tool, and a validation that I am "allowed" to be researching autism and accommodating myself 

    Not sure if any of that is helpful!

Reply
  • Hi, thank you for sharing. I felt called to reply because I think I can relate.

    I was in a very similar boat for a while (using the questionnaires and keeping a log of all the reasons why I thought it might/might not be autistic). I probably spent a good 3 years wondering, and for probably the last 1 of those years I started to try and accommodate myself as if I was indeed autistic, and began to self-identify, and things started to make more and more sense. However the fraud feeling got the better of me and since I was fortunate enough to have access to a free official diagnosis I took the plunge and got a referral. A lot of it was down to curiosity. Like you, I felt a bit bad for pursuing something that in all honesty wouldn't make much of a difference because I'm "successful" and was I claiming to be something that is such a massive struggle for lots of people, did I really need it..

    Even up until the point of the assessment itself I truly didn't know what outcome I wanted. I just wanted to know either way. During the assessment I was convinced they were going to say something like "you don't meet the criteria, you just have autistic traits" but lo and behold I did in fact meet the criteria. 

    Despite years of 'probably knowing', I was not prepared for the mix of emotions that came with having that label. It's only been 2 weeks so I'm still adjusting. But it's completely up to you how much you even want to use the label/tell people etc. I see it as another self-reflection tool, and a validation that I am "allowed" to be researching autism and accommodating myself 

    Not sure if any of that is helpful!

Children
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