Suspecting autism, but is it the real deal, and does it even matter?

Hi there,

 

I’m new to the forum and find myself here due to a number of months of self-reflection.

 

I have wondered recently if I may be mildly autistic. To give some context, I am in my late 30s and live a normal life, good career, wife, kids etc. In many respects, I have no problems, but I have become increasingly aware of certain aspects of my behaviour that can come across as ‘odd’ for others (which I see as perfectly logical and normal), which in turn leads to tension. This has been exasperated by the life changing event of having children.

 

There are a number of reasons I believe I may be autistic:

 

I struggle socially – I don’t avoid social contact at all, but I force myself to do it.

I find keeping friends possible, but a lot of mental effort. I feel like I put far more effort into friendships than I gain from them.

In a professional environment, I am able to network, but find myself talking at people (constantly, about anything, even off topic), and avoid certain scenarios.

I am very sensitive to sounds, finding some sounds annoying when others don’t hear them.

I don’t believe I struggle with most aspects of understanding the emotions of others or sharing my own at all.

My imagination has never been great. I struggle with imaginary play with children and can’t make up a bedtime story for example.

I keep logs of a lot of things, spreadsheets with stats of lots of aspects of day to day life (my weight, how far I have cycled and where, our household energy use by month, fuel consumption of our car, pubs I’ve been to, etc).

I love to plan all of my activities to a lot of detail and hate when this gets de-railed.

For route planning, I’ll look at a detailed map and plan out every turn.

When I’m cooking, I’ll prepare, measure and line up all of the ingredients before starting.

I struggle to make decisions – every option needs to be analysed in a lot of detail before making a decision, however minor.

 

I believe over the years I have become incredibly good as masking the perceived negative aspects of my personality.

 

In summary I do feel there are certain aspects of my personality that show significant autistic traits, but am I getting confused with social anxiety, nervousness and my general way of doing things rather than ‘real’ autism?

 

To attempt to answer this, I have found a number of assessments online as a starting point before talking to family or medical professionals.

Here are the score of the online tests I have done:

 

AQ50:

A score of 40 out of 50 (where 33+ represents significant autistic traits)

 Empathy Quotient:

A score of 33 out of 80 (where 30 or lower indicates autistic traits)

 Systemizing Quotient:

A score of 98 out of 150 (where 75+ is indicative of autism)

 Rivto Autism Asperger Diagnostic Scale (RAADS-R):

A total score of 104 (where 90 = stronger indications of autism, and 130 is the mean score of autistic people.

 Camouflaging Autistic Traits (CAT-Q):

A score of 144 (where a score of 100 or above indicates camouflaging of autistic traits).

 Adult Repetitive Behaviours (RBQ-2A):

A score of 36 out of 60 (where the threshold range is 26+, and average autistic score is 36).

  

I’ve done others as well, and I’m registering on pretty much all of them as within threshold.

 

I was wondering if anyone had any thoughts, and if it would be beneficial to seek further professional advice?

I feel a little bit like a fraud as I am aware my traits are not anything like those others live with, but also aware that it may be having more of an impact on my life (and others) than I assume it is.

I'm also struggling to understand if putting a diagnosis on it really matters, given my life has been going pretty ok without it so far. 

Any views would be most welcome.

Thanks.

Parents
  • For very many autistic people it is not that we cannot do things, it is just that certain things are very much harder for us to do than is the case for allistic people. I had a 34 year long career in biomedical research, have been married for nearly 30 years and have two children. I am a diagnosed autistic person. IC50, I score between 37 and 40 depending on how I interpret ambiguous questions, RAADS-R ,167, camouflaging,  121, systematising, 91 and RBQ-2A, 42. 

  • That first sentence hits the nail on the head for more - some tasks / days / projects / circumstances are exhausting, but I get by. 

    Thank you for sharing.

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