Getting together with a research request

There are research papers that look at this topic TheCatWoman 

The link to this search enquiry in Google Scholar might interest as there is a lot of research already made.

what impact does late autism diagnosis have on older people - Google Scholar

Another search brings up papers more specific to your concern about services for late diagnosed older autistic people

services received late autism diagnosis older people - Google Scholar

As for the practical reality of older people getting less support than younger yes there is evidence

research-paper_autistimsurvey_2022.pdf

So, I personally wouldn't blame the research scientists if their evidence isn't being sought out and paid attention to.  After all, generally they are not the publicists or the politicians with control of the purse-strings and priorities.

As to why organisations who deal with older people with autism don't seem to have a clue well that has many reasons - hehe we might have to wait for the the day when human society starts acting fairly and reasonably to all it's members.

I'm up for supporting any letter that you might wish to draw up regarding bringing that day forward!

Best Wishes

How would I get onto google scholar?

I think how older autistics are treated is something that it would be good to get ahead of in public awareness. We have elections in Scotland and Wales for out devolved assemblies and parliaments, I intend to try and speak to my AM, who also happens to be leader of Plaid Cymru about what policies his party has towards older autistic people, maybe others could do this too with thier own politicians?

I get how frustrating it must be for researchers to spend so much time and effort as well as money, only to have thier research ignored outside of their own peer groups. Organisations such as Age, need to be aware of whats coming thier way in the near future and to engage with us.

I think part of the problem is that of a similar cliff edge to that faced by those freshly out of full time education, reaching your 60th birthday shouldn't be an excuse for nobody knowing what to do with you if you have a problem, one ends up to old for adult suport which seems to stop at 59 years 364 days and geriatric services which seem to step in post 60, only at 60 most of us couldn't be termed as geriatric. Services need to be joined up not seperated by artificial ages, you shouldn't need to go through the whole referal process again but be passed on fairly seemlessly and your care, if any ongoing.

How would I get onto google scholar?

I think how older autistics are treated is something that it would be good to get ahead of in public awareness. We have elections in Scotland and Wales for out devolved assemblies and parliaments, I intend to try and speak to my AM, who also happens to be leader of Plaid Cymru about what policies his party has towards older autistic people, maybe others could do this too with thier own politicians?

I get how frustrating it must be for researchers to spend so much time and effort as well as money, only to have thier research ignored outside of their own peer groups. Organisations such as Age, need to be aware of whats coming thier way in the near future and to engage with us.

I think part of the problem is that of a similar cliff edge to that faced by those freshly out of full time education, reaching your 60th birthday shouldn't be an excuse for nobody knowing what to do with you if you have a problem, one ends up to old for adult suport which seems to stop at 59 years 364 days and geriatric services which seem to step in post 60, only at 60 most of us couldn't be termed as geriatric. Services need to be joined up not seperated by artificial ages, you shouldn't need to go through the whole referal process again but be passed on fairly seemlessly and your care, if any ongoing.

TheCatWoman said:

How would I get onto google scholar?

If the links I have shared are in blue on how you are reading them then "clicking" on them should take you to google scholar for each of those search terms TheCatWoman 

then each of the search answers can be looked at via the usual google method - in reality you might find only the abstract for the paper comes up by clicking on the link however sometimes it is possible to see the whole paper e.g click on the button to "view as PDF".  Sadly a lot of them are behind pay walls tho' :-(

I want to support activism for wider understanding of and suitable societal interaction with autistic people of the sort you are describing as being missing.  

let me know how you get on and what you find maybe?

In follow up conversation with ArchaeC I have proposed that support of such organisations as the NAS might be a means to get the sort of issues raised that you not unreasonably identify - for all age groups and yes if appropriate to highlight the different impact that autism has on people of different ages.  This would perhaps be a keystone in consideration for how individuals are treated by the NHS etc. 

(although as for joined up care - this implies that people are prepared to engage with joined up thinking and that seems to be a bit of a problem for humanity given the complexity of our current existence...)

I came across this organisation in searching on the topic just now

National Autistic Taskforce – Bolder Voices, Better Practice

These people are a small organisation that have an appetite for addressing policy and practice in relationship to how autistic people are treated by society.  Perhaps worth contacting.  Anyway I'm happy to join with you on this to give some time an effort and if nothing more to add my name to the list of ir supporters....