• Replies 52 replies
  • Subscribers 91 subscribers
  • Views 1449 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Getting together with a research request

TheCatWoman

Afte seeing another request for participants in research about ASC in young people, I thought 'again, why is there never anything aimed at people my age?' There are so many of us latelings here and I feel that we're being forgotten AGAIN, as we have through so much of our lives.

I was wondering if there would be any interest in writing a joint letter to research organisations asking for research into our difficulties and experiences and as we move into old age how that will affect the services we recieve, from what I can see organisations who deal with older people haven't a clue about autism. This needs to change.

How about it folks? I'm happy to write the letter, but would love to include your concerns, to do it as a group, a group will have more power, by weight of numbers alone, but also because we experience the world differently. I would of course post the proposed letter here for your comments before sending it

Parents Reply Children
  • in reply to Phased

    How would I get onto google scholar?

    I think how older autistics are treated is something that it would be good to get ahead of in public awareness. We have elections in Scotland and Wales for out devolved assemblies and parliaments, I intend to try and speak to my AM, who also happens to be leader of Plaid Cymru about what policies his party has towards older autistic people, maybe others could do this too with thier own politicians?

    I get how frustrating it must be for researchers to spend so much time and effort as well as money, only to have thier research ignored outside of their own peer groups. Organisations such as Age, need to be aware of whats coming thier way in the near future and to engage with us.

    I think part of the problem is that of a similar cliff edge to that faced by those freshly out of full time education, reaching your 60th birthday shouldn't be an excuse for nobody knowing what to do with you if you have a problem, one ends up to old for adult suport which seems to stop at 59 years 364 days and geriatric services which seem to step in post 60, only at 60 most of us couldn't be termed as geriatric. Services need to be joined up not seperated by artificial ages, you shouldn't need to go through the whole referal process again but be passed on fairly seemlessly and your care, if any ongoing.

  • in reply to Phased

    Are there other research papers that are available only to academics/autism professionals through university libraries or publication subscriptions? It would be worthwhile knowing where the gaps in research are.

    Phased said:
    we might have to wait for the the day when human society starts acting fairly and reasonably to all it's members.

    Yes. It doesn’t help that political rhetoric and societal opinion is feeding into an era of what is commonly called ‘unpopular cuts’ which impact autistic people.