Acceptance - ADHD - Autism - or Both

I guess my questions are

How have you accepted yourself whether you have a diagnosis or not? 
Has anyone been able to open a dialogue back up with family members on the subject, after shutting down for years because their initial response was “no your not, there’s nothing wrong with you”

A brief bullet pointed background information as I tend to waffle 

  • I was blissfully unaware until 5 years ago 
  • burnouts occurred yearly after I started full time work at around 27 (late I know) 
  • I researched burnout, quick promotions and underachieving and stumbled across ADHD, I researched this all day and night for months outside of work, I then stumbled across autism reluctantly looking into it because of the self perceived sigma from myself around it. 
  • Again I researched both ADHD and autism day and night for 12-18 months I was slightly obsessed
  • Confined in my partner, who I think was took a bit by suprise and said “no your not”. That was the first blow to my confidence around it, as I’d spent so much time researching it. she later come back to me weeks later after researching and said she thinks I may be. 

  • She encouraged me to get a doctors appointment into it, I did I went in there stating I think I have ADHD but there may be a slight possibility of autism.
  • I got referral to an Autism waiting list, just over 3 years ago. 
  • after 18 months on the waiting list and struggling to fill my forms in, due to not asking my family. I plucked up the courage to ask, which was met with “there’s nothing wrong with you, you were a good kid” I think I always knew this was the response I would receive that’s why I held it off so long. That was the 2nd blow to my confidence and I’ve shutdown on opening up about my thoughts regarding the possibility now

  • fast forward to today around 2 months ago, I got removed from the waiting list as 3 years had past and I didn’t have enough information to give to them. 
  • I believe I’m a very self aware person and I know deep down I’m neurodivergent. I’m going from strength to strength in my career and my personal life but I feel like that’s never going to be enough until i’m able to accept this part of myself and hope to get some understanding from family members, as they cant see just how much I struggle internally at times because I’m able to hide it/control it now before I reach a burnout stage. 

    Not having anyone you feel comfortable talking to about it, without feeling like you’re being judged makes you suppress it more I suppose. 
Parents
  • I am just starting to accept myself as autistic, it's been years and years.  You will find a good space, it's getting there that takes time.

    I was really scared to tell my family, I've only told my kids and husband and the older generation are mostly dead by now.  I decided to tell the assessment team that I have no-one from childhood, instead of asking my sister.  It's easier to tell the younger generation, my kids have several ADHD / autistic friends so they are more aware.  I also know several parents of my generation who did not pursue a diagnosis for their child as they did not want them "drugged up" or put in special schools or have that stigma attached to them - I view it as more trying to protect you than denying your experience, although the two get conflated.

    I have two ways of telling people.  1.  Talk about the things I find hard but don't call it autism  e.g. "Please tell me directly if you need me to do something, as I don't always understand hints  - hints can mean too many different things if you don't make it clear."  or "I can do the technical sife of this job, but I need support in customer liaison, for example, getting people's views on this website I am working on and how it can be improved."  or "I need time to decompress."   2.  Come directly out with it, but I do this only with people likely to understand such as those already working in the area or with diagnosed relatives or friends so they are already aware.  I don't use this approach often.

    I am in my 60s, and going for an assessment for autism, but after several years research I am only just perfectly happy to self-identify as autistic, but it took may years to get there, as I started investigating when info about autism in girls and women started to become available.  I have had a lot of family support over the years, as they have always been aware that I don't like social gatherings that much.  And my daughters used to warn their schoolfriends not to hug me as I was "not a huggy person".  We know about "decompression time" in our house to avoid burnout, and I think this diving analogy is a wonderful one as it does convey that time is needed and it is somethat that is necessary and cannot be hurried .  We also know about stress - it has not all been plain sailing but sometimes a grim determination to get through no matter what. The trigger that finally made be seek a formal diagnosis was when we moved to a new place after retirement, and 2 different sets of people independently started to talk to me about their diagnoses or their relatives' diagnosis.  That made me think I might not be imagining things at all, and was the start of my self-acceptance. 

Reply
  • I am just starting to accept myself as autistic, it's been years and years.  You will find a good space, it's getting there that takes time.

    I was really scared to tell my family, I've only told my kids and husband and the older generation are mostly dead by now.  I decided to tell the assessment team that I have no-one from childhood, instead of asking my sister.  It's easier to tell the younger generation, my kids have several ADHD / autistic friends so they are more aware.  I also know several parents of my generation who did not pursue a diagnosis for their child as they did not want them "drugged up" or put in special schools or have that stigma attached to them - I view it as more trying to protect you than denying your experience, although the two get conflated.

    I have two ways of telling people.  1.  Talk about the things I find hard but don't call it autism  e.g. "Please tell me directly if you need me to do something, as I don't always understand hints  - hints can mean too many different things if you don't make it clear."  or "I can do the technical sife of this job, but I need support in customer liaison, for example, getting people's views on this website I am working on and how it can be improved."  or "I need time to decompress."   2.  Come directly out with it, but I do this only with people likely to understand such as those already working in the area or with diagnosed relatives or friends so they are already aware.  I don't use this approach often.

    I am in my 60s, and going for an assessment for autism, but after several years research I am only just perfectly happy to self-identify as autistic, but it took may years to get there, as I started investigating when info about autism in girls and women started to become available.  I have had a lot of family support over the years, as they have always been aware that I don't like social gatherings that much.  And my daughters used to warn their schoolfriends not to hug me as I was "not a huggy person".  We know about "decompression time" in our house to avoid burnout, and I think this diving analogy is a wonderful one as it does convey that time is needed and it is somethat that is necessary and cannot be hurried .  We also know about stress - it has not all been plain sailing but sometimes a grim determination to get through no matter what. The trigger that finally made be seek a formal diagnosis was when we moved to a new place after retirement, and 2 different sets of people independently started to talk to me about their diagnoses or their relatives' diagnosis.  That made me think I might not be imagining things at all, and was the start of my self-acceptance. 

Children
No Data