Pathologising

I'm just going to quote myself here from the Terminology thread:

" ... a lot of things I grew up believing were just a normal part of being human have names and are actually now labelled a 'condition' or 'disorder'.

I think I must now have about 20 conditions and disorders I wasn't aware of until recently.

It feels as though everything is being neatly put into boxes."

I read this article the other day

https://www.spectator.co.uk/article/the-special-needs-racket-is-out-of-control/

(if a box comes up + it looks like you can't read the article, you can close the box down and read still).

I'm really undecided what I think about all this.

When I was younger I had 'anxiety' put on my medical records and I was very surprised as I thought everyone got anxious, although I'd been given meds to deal with it.

Anyway, I later heard about 'general anxiety disorder' and I still can't make my mind up about whether anxiety is just part of the human condition.

Do others have views on these thoughts?

Are too many things being pathologised and defined these days?

Parents
  • There is a Zen Koan that asks "if a tree falls in a forest and nobody hears it, does it make a noise?"

    So,

    I'll answer that from what might be a quantum physics, a philosophical, a political and a personal (late diagnosed autistic) perspective.

    Unless something is measured it doesn't exist - but that doesn't stop a tree falling on someone's head from causing severe injury!

    The need to define these things has come about because individuals in society are experiencing problems that society is not resolving.

    Patterns can be seen to be emerging.

    How big a tree fall has to take place before society pays attention to it?

  • How big a tree fall has to take place before society pays attention to it?

    This will depend greatly on who it falls on (ie are they important enough, sufficiently appealing to peoples sympathetic nature etc) and who it inconveniences.

    If lots of quiet, unobtrusive autists were to start passing by their own hand then it may make a brief news article but only once somebody important or famous does it will the media make a fuss.

    Even then, will it motivate the vast majority who are not affected to take any sort of action? I doubt it.

    It will have to impact enough people (or some important people) in some tangible way for action to be taken.

    The impact we seem to be having is through being a drain on the benefits system and I don't think this is seen as a positive thing. 

    I'm open to ideas on how to raise out profile in a way that will win us some sympathy or recognition of deserving more.

Reply
  • How big a tree fall has to take place before society pays attention to it?

    This will depend greatly on who it falls on (ie are they important enough, sufficiently appealing to peoples sympathetic nature etc) and who it inconveniences.

    If lots of quiet, unobtrusive autists were to start passing by their own hand then it may make a brief news article but only once somebody important or famous does it will the media make a fuss.

    Even then, will it motivate the vast majority who are not affected to take any sort of action? I doubt it.

    It will have to impact enough people (or some important people) in some tangible way for action to be taken.

    The impact we seem to be having is through being a drain on the benefits system and I don't think this is seen as a positive thing. 

    I'm open to ideas on how to raise out profile in a way that will win us some sympathy or recognition of deserving more.

Children
  • You're absolutely right, they do go hand in hand, it's sad that often those who shout the loudest about human rights rarely accept the responsibilities that go with having rights. Having human rights isn't the same as having everything your own way.

    I wonder if one of the ways forward could be to identify the areas where ND's are underrepresented and work on what need to happen to get better representation? I wouldn't want to go down the route of having all ND shortlists for jobs or anything like that, whilst I understand why this has happened in other areas,particularly in terms of female representation, I think it leads to insecurity and more back lash. If I get a job, I want to know that I'm there by merit and not a tick box exercise.

    What areas do you feel we're underrepresented in? I'd guess politics, but it would seem that everyone who's not a legal professional is underrepresented. I would of thought law could appeal to ND's who like rule following, if not criminal law then conveyancing, family courts and comercial.

  • Point taken - however I do think there is such a thing as good and bad.  Somewhere to base this on?  Everyone has human rights and moral behaviour needs to reflect these.

  • I think that could get into some murky waters, morals mean different things to different people, to some its beating children, going to church on sunday and being an utter b'stard the rest of the week. To some morality is about sex and what consenting adults do that isn't missionary position and hetrosexual, it's about keeping young people in ignarance about thier bodies. I goes with the warped idea of justice that goes, indulgence for me and punishment for everybody else.

    I'm not disagreeing with you about having and using a moral compass or the need for it, but many people's compass, like Cpt Jack Sparrows always point to what they want, rum usually.

  • I would reply that their behaviour was an example of why humanity needs a moral reboot and all the examples given can be tackled when there is a moral will to.  Where the extra money could come from?  The profits of immoral people.

  • We probably are too honest for most people, I must admit that being told I'm to honest confuses me a bit, why would people prefer to live a lie? I think there are ways of expaining things that are honest but not nasty and frightening that people could accept, nor to simplistic either. I think the appeal of much populism, is because of the simplistic answers given to very complex issues. Personally I think most people can see the choices that have to be made between how much we spend and how much we tax for example, not everyone will get it of course, just like many people who voted for brexit couldn't believe that we still had "foreigners" here the day after the vote.

    I think possibly another issue with high functioning and successful ND people is that we're not noted for our abilities to communicate well. Just imagine you're on something like Question Time and you've got some rightwing oik questioning why you're there, why ND is a problem when you're sat on the panal on national tv saying that more money needs to be spent on diversity when we've got a crumbling NHS and our military needs beefing up because of the threat from Russia and we pay to much tax? How will you counter this sort of barrage in a short space of time?

  • Unfortunately not, I've just seen to many things twisted by bullies. I do agree that it would be good if those in good well paid jobs spoke out more, people need to see that being ND isn't some kind of life sentence of misery, I think as well as being a lot of us in STEM subjects there are a of us in the artistic and creative industries too.

    Why aren't we running the world?

  • "Sorry if that seems really cynical" .....? any better ideas then  ?

  • If all those with ND in STEM professions start raising ND as an issue, then will they get called "egg heads" and by extension the rest of us too? I can just see this sort of thing in the tabloid press and in certain political circles being used to denigrate, marginalise and as an excuse to not give us any help or support, because we dont' need it as we'd all be in well paid jobs? We could replace the EU as a whipping post, everytime some piece of tech goes wrong or dosent work as well as some random has decided it should, it will be our fault again and there will be moves to deny us these jobs.

    Sorry if that seems really cynical, and I do agree that those with positions of influence could do more to raise awareness, I think I've just seen to many good ideas and things, get twisted out of all proportion and be factually wrong, because it's a slow news day or the main story is one they don't want to run as it makes their political masters look like fools, they will find one of their whipping posts and print rubbish, that will then become the main news stories on social media and tv.

  • Recognition? I suspect this would involve some form of autistic and neurodiverse union and solidarity and collective action.  Research indicates that individuals with autistic traits are over-represented in science, technology, engineering, and mathematics (STEM) professions compared to the general population.  These fields are all (I hate to use the term but you know what I mean - ) "wealth generating".  I would suggest that those autistic people with positions of power in these areas might collectively exercise it in such a fashion to leverage neurotypical society to a socially more equitable and globally safer and healthier fashion.

    Sympathy - not sure that I as an autistic person want that because I am autistic.  The history of modern human society is based on being "one up" on another person/nation with occasional lapses into recognition that we're all in this together.  All people need to sympathise more in my opinion.