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Struggling

Chris

Hi 

Recently, during a phone call, a mental health worker suddenly started using a lot more metaphorical language than they normally do. I have spoken to this person before and has never used this much language, I have told him I have autism and I have spoke to him 5 times in the past trying to reach out, I have told him previous about people taken advantage of me before by overwhelming me with indirect language and lies and I become vulnerable, which is why I have been reaching out for support, this is why he has done this on purpose as I was reaching out because people had control over me and he understood that and done the same back this is bullying, and to get away with it all he is now saying it is just there language he uses, I have since rang back the service and now he lied to them saying it’s because I have autism and they can’t work with me because of the language barrier, I understand some indirect language as it’s not hard to match it but the way this person done it was to get a reaction out of me this is leaving me unable to cope as I have no friends or family and this was meant to be my support to help me develop correctly but it’s getting harder and harder the more I ask for help, all my hope has gone and don’t feel safe with anyone anymore 

has anyone else been manipulated by services who are meant to listen and help because they CANNOT get away with this disgusting behaviour 

Parents

  • my specialist subject! I wont go into details of my 30 years of experiences because it could fill a book.

    These are my top tips for dealing with mental health team:

    1) request an advocate at appointments. An independent advocate has to be provided to anyone that requests one. They can be your equivalent to taking a friend along and help you get what you need from the appointment.

    2) write down what it is you are bringing to the interaction. you can either refer to this during the interaction or if you're really struggling to communicate just hand it over.

    3) ask that information they give you be written down so that you can process it more easily after the appointment. Again. they have to do this for anyone requesting.

    4) Talk to the samaritans first to get your thoughts in order before you attempt to talk to nhs practitioners. they also have an email service though response time is longer.

    5) request a care plan be produced. (though bear in mind the NHS template is poor and you can get more helpful templates on Etsy). Include an advanced statement (there's advice for this on mind website). This may be easier to do with your GP practice than CMHT.

    Mine has lots of coding language, "if, then, but" and flow charts. I tend to put contact mh team as the last resort and I take the flow chart that I've by this point already followed with me so they don't gas light me with stupid suggestions like "distract yourself"

    6) ask for signposting to local charities and organisations that support people with your needs in non clinical settings.Things like art projects or community gardens. 

    I'm really sorry that you're struggling to get the support you need right now. I hope at least one of these tips helps a little.

  • in reply to Monkeyclogs

    Wow  , that looks so helpful and thorough! I like the idea of a coding flow chart to work out your needs.
    I might save this in case I ever need it.

  • in reply to Cinnabar_wing

    Yeah I like this idea would love to see a example what would you title the first box at the top

  • in reply to Chris

    the top box on mine is "if you cant think" because thats how I describe my situation when Im in crisis.

    There are 5 sections to work through each with pathways. 

    meeting basic needs, changing environmental factors, grounding techniques, safe activities and reaching out contacts

    by the time you get to reach out you know exactly what the problem is that you need help with.

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  • in reply to Chris

    the top box on mine is "if you cant think" because thats how I describe my situation when Im in crisis.

    There are 5 sections to work through each with pathways. 

    meeting basic needs, changing environmental factors, grounding techniques, safe activities and reaching out contacts

    by the time you get to reach out you know exactly what the problem is that you need help with.

Children
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