Repeated behaviour feels compulsive and distressing

I've had repeated behviours since as long as i am able to remember. For example when opening a website i open every hyperlink on the page in a new tab. This usually goes on for several hours at a time. And i am unable to stop. This leaves me wishing i was dead every single day. I have sought treatment from an ocd specialist to be told that these behaviours are due to autism. This means that there is no treatment. 

Please what do i do?

  • Sure the timer idea will help.

    I did a similar thing to this several years ago.

    Am currently too lost to do it again alone.

    This is what treatment is for I would expect. 

    The ability to identify the why I am doing it then a treatment plan slowly retraining the habit. 

  • If you had a timer, so you could click on as many links as you wanted in say 10 minutes but then had to stop or close the page, do you think you could do that?

    Then you could slowly reduce the time, and reduce the clicks, then try leaving the page open but not clicking.

    It would slowly retrain you.

    Or you could have a reward if you achieve some limit, like a biscuit or sweet.

    Or maybe open the page, count to 5 before clicking. 

    Then once that was easy count to 10, and slowly get longer.

    It is about seeing nothing bad happens if you pause, wait a while or have a limit, then a case of breaking the habit.

    You probably do it because of some fear or some reward your subconscious has attached to it. So you need to slowly retrain it.

    I don't know if these ideas may help?

  • The fact you have "time consuming rituals" gives weight to OCD being a probable co-morbidity (ie can exist alongside the autism)

    This is what I am seeking treatment for. I am made up of rituals and seeking treatment feels scary because what would I do without them? As CBT talks about ''goals'' a goal would be to initially decrease the time spent on the worst rituals. All rituals stopped at once would feel like I did not have a leg to stand on. 

    when you are autistic then the default format of many such treatments do not work well - they typically need to be adapted to accommodate out autistic traits. With this in mind I would quiz any future suppliers of the treatments as to whether their course has been adapted to work for autists.

    The supplier I spoke to today have said all of their clinicians are experienced treating OCD in patients with autism although not experts. I am just going to have to take what I can get and self-advocate for adaptations. No clinician will be perfect. 

  • I have engaged with numerous therapists none of whom made up their mind about whether this was autism or OCD. 

    There is a good article covering the autism and OCD overlap:

    https://www.simplypsychology.org/autism-vs-ocd.html

    The fact you have "time consuming rituals" gives weight to OCD being a probable co-morbidity (ie can exist alongside the autism)

    This is only an observation / opinion and not medical advice of course - we are not allowed to do that here. Understanding it well and possibly showing such information to the therapist could help them "up their game" a bit as I suspect many forget some details of their training and often don't refresh them as well as they should.

    I have lost count of the amount of useless IAPT ''treatment'' I have engaged with. 

    when you are autistic then the default format of many such treatments do not work well - they typically need to be adapted to accommodate out autistic traits. With this in mind I would quiz any future suppliers of the treatments as to whether their course has been adapted to work for autists.

    CBT is a classic. It works poorly for most of us in its default format but with a few modifications becomes quite effective. A stark contrast that a few changes bring.

    Looking at IAPT it seems to have a fair reliance on CBT so deffo something to be aware of:

    https://www.ocduk.org/overcoming-ocd/accessing-ocd-treatment/accessing-ocd-treatment-through-the-nhs/iapt/

    The Improving Access to Psychological Therapies (IAPT) is a programme to improve access for people with anxiety and depression, including OCD, to evidenced based psychological therapies, such as Cognitive Behavioural Therapy (CBT).

  • Thank you - I have engaged with numerous therapists none of whom made up their mind about whether this was autism or OCD. 

    The last therapist said that I was unable to identify any actual obsessive thoughts and it was all compulsive so he would be wasting my time and money. 

    I have been on the NHS waiting list for secondary care psychological therapy for 15 months, this is a step beyond IAPT though I have lost count of the amount of useless IAPT ''treatment'' I have engaged with. 

    I am not well enough to put a case together for my GP to ask for a specialist referral. 

    At the time of diagnosis the doctor sent a set of therapy adaptations suggestions suitable for autists so I will seek private treatment and suggest these adaptations. 

    Thanks again for the response. 

  • Hello k7Q

    I've had repeated behviours since as long as i am able to remember.
    This usually goes on for several hours at a time. And i am unable to stop

    This sounds like OCD - obsessive because you have to do every task and compulsive because you have to do it every time.

    We cannot offer medical advice on how to treat it but I would recommend engaging with a psychotherapist with experience in helping people with this issue - they are trained to help with just this sort of issue and if you can find one who has a track record of helping autists too then they should be able to formulate an effective approach that works well for you.

    I've not had a lot of experience with helping with this specific trait and would love to hear back on the tactics they use to help, especially if it is effective.

    If this is beyond your budget then you may be able to ask your GP for a referral to a specialist. It is a long shot and I'm not sure the NHS will cover it unfortunately but there is nothing to be lost by asking.

    Good luck in finding a good strategy.