2nd Opinion after non diagnosis

Hi all

I had an ASD assessment with psychiatry uk via NHS right to choose.

I was not diagnosed mainly due to the fact 'I had never had a problem with an employer' which isn't strictly true but yes I have held down a job all my life.

My son (diagnosed) father (not but so obvious) and sister (diagnosed) have autism.  You could say I've managed to cope with life better them.

Is it worth getting a second opinion in case the assessment didn't uncover everything?  I don't know how often the experts 'Get it wrong' is it really subjective?

I'd probably have to pay this time. 

Thanks

Parents
  • That does sound like an unsatisfactory reason, is that meant to be the struggling criteria you might not have initially provided enough evidence on? (I imagine it feels unfair, as autistic people can have jobs!)  Your brain is your brain, so even without the paperwork, being able to identify how you think it's still important for understanding yourself, especially if you feel it relates to your experiences in life and family! 

    I suppose it comes down to if you need it in writing? I have seen posts on people getting second and third options, but not on the cost!

  • I was thinking would having it in writing help work but in reality, it probably wouldn't.  I think my wife thinks I could just end up spending money just to get more or less the same answer

  • Being aware of it might help save you from some of the worst parts - like giving yourself grace and realising when you might meltdown. So you do suffer and are impacted but have found ways to cope. It doesn't make living ND in a NT world any easier for you, your just shouldering more yourself.

    I am currently trying to get a diagnosis, but keep flipping on how I might feel if I get one. In some respects I think I can cope, but then this year with increased work responsibilities I suddenly hit a wall at 41. Be aware this could still happen too, just because you haven't yet found it disabling, doesn't mean you won't in the future! :/

    You could always set up a savings account for it, put away something incase you get to the point when having the diagnosis matters, then do the paper work suggested so you can come in with strong evidence.

Reply
  • Being aware of it might help save you from some of the worst parts - like giving yourself grace and realising when you might meltdown. So you do suffer and are impacted but have found ways to cope. It doesn't make living ND in a NT world any easier for you, your just shouldering more yourself.

    I am currently trying to get a diagnosis, but keep flipping on how I might feel if I get one. In some respects I think I can cope, but then this year with increased work responsibilities I suddenly hit a wall at 41. Be aware this could still happen too, just because you haven't yet found it disabling, doesn't mean you won't in the future! :/

    You could always set up a savings account for it, put away something incase you get to the point when having the diagnosis matters, then do the paper work suggested so you can come in with strong evidence.

Children
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