Recent diagnosis, partner doesn't understand.

Hi there folks. 

I was recently diagnosed as an adult and my partner of 4 years says I've got worse since my diagnosis.  She rolls her eyes every time I mention it as a reason for something like not listening or picking up what she said (which I've always had a problem with). I'm just realising that all the issues I have ARE autism related but she just thinks it is an excuse for not being empathetic etc.  I'm struggling dealing with things and feel like this is a big deal in my life but she just says nothing has changed but it has.  It doesn't help that I found out my brother has terminal cancer the same day as my diagnosis. I'm currently off work with stress as I'm a bus driver and I struggle with that too and don't think I should be doing it.  It's all just a mess really.  

Parents
  • Dear Kenneth1712,

    Welcome to the online community, it is great to have you here. I hope our online community is a positive resource for you, it can be a really helpful place when you are newly diagnosed!

    It can be difficult for family, partners and friends to accept and understand an autism diagnosis when it is first given, but I understand that it must be difficult for you when this happens, I know some of our members have had similar difficulties when first diagnosed. 

    I am really sorry to hear about your brother this must be an incredibly difficult time for you and your family- I hope that you all have some good support in place.

    I have a list of resources that you might want to take a look at:

     After diagnosis - this includes some guidance on talking about your diagnosis as well as what support can be offered after receiving a diagnosis.

    What is autism - this may be useful to share with family, partner or friends. It gives a brief overview on autism and may be helpful in explaining why you may communicate differently to neurotypical individuals

    Seeking help with mental health - you mentioned struggling with stress at the moment so I have attached our seeking help with mental health advice, please do reach out if you need any support.

    Emotional support for family and friends | Macmillan Cancer Support - Macmillian have several ways you may be able to receive some support, you can also call them on 0808 808 0000. They are open 7 days a week 8am-8pm. They also run their own online community that be helpful to you, your brother or others who are close to him.

    Thank you for reaching out, even though this is a very difficult time for you I am glad that you have reached out. I hope some of these resources may be helpful,

    Take care,

    Olivia Mod 

Reply
  • Dear Kenneth1712,

    Welcome to the online community, it is great to have you here. I hope our online community is a positive resource for you, it can be a really helpful place when you are newly diagnosed!

    It can be difficult for family, partners and friends to accept and understand an autism diagnosis when it is first given, but I understand that it must be difficult for you when this happens, I know some of our members have had similar difficulties when first diagnosed. 

    I am really sorry to hear about your brother this must be an incredibly difficult time for you and your family- I hope that you all have some good support in place.

    I have a list of resources that you might want to take a look at:

     After diagnosis - this includes some guidance on talking about your diagnosis as well as what support can be offered after receiving a diagnosis.

    What is autism - this may be useful to share with family, partner or friends. It gives a brief overview on autism and may be helpful in explaining why you may communicate differently to neurotypical individuals

    Seeking help with mental health - you mentioned struggling with stress at the moment so I have attached our seeking help with mental health advice, please do reach out if you need any support.

    Emotional support for family and friends | Macmillan Cancer Support - Macmillian have several ways you may be able to receive some support, you can also call them on 0808 808 0000. They are open 7 days a week 8am-8pm. They also run their own online community that be helpful to you, your brother or others who are close to him.

    Thank you for reaching out, even though this is a very difficult time for you I am glad that you have reached out. I hope some of these resources may be helpful,

    Take care,

    Olivia Mod 

Children
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