The right to choose option for assessment

Can anyopne explain what this looks like, practically, I mean, ie do I ask the GP to do this? Do they have to have these agreements in place with other places? Is there any way I can find out what agreements they have in place with who? it's not on there website so I guess it means asking. Do you need a reason to choose another place? or is just being faster a good one.....Is the DSM 5 criteria usually used or others? which is best suited to woman. Does it matter? 

I'm on the NHS waiting list (about a year in my area). I hope to move and don't want to then have to start again at the bottom in a different area.. 

I've read the information on here and other places online so I'm not looking for that. Sorry about all the questions, thanks for your replies. 

God bless you all

Parents
  • So I just messaged my GP in the way I would usually to book an appointment,  then received a message back with the questions to answer and AQ10. When I had filled that all in they sent me the information about Right to choose and I picked Problem shared. I hope it will be okay because no one else here has mentioned them. It has all been sent off and I am now waiting to hear back. 
    I am doubting myself about whether I can possibly be autistic as I’m not young! But all my test scores are very high and I relate to show many other people’s experiences. 

  • Age doesn't matter.

    If you are autistic you were born that way and will die that way. Your brain is wired differently.

    With age you just figure out better how to work around or hide the differences.

  • I know I would have been born autistic but just wonder how it’s not been noticed before now. It was a therapist who suggested it. I’m obviously good at masking? 

  • Yes, I know what you mean. I jumped from one to another and it was never easy. I worked in therapy and wonder how no one figured this out? It's mind boggling how 'hidden in plain sight' it is. We have to forgive others whilst still recognising the injustice. 

  • It’s sad to think so many people hurt like I do. 

  • I have found working life hard along the way too. Not every part of it but I feel more than others. 

  • Yeah I feel just all this. I’m very tired after a couple of hours socialising, yet most people I know can go for hours, if I try I just end up crying or going very quiet and hurting inside. 

  • I am 53 and also wonder how it was never noticed. When I was retired from my job because of ill health, I saw many different neurologists and 3 therapists. I was assessed for fittness in my role so specifically they were looking at why I could not do certain things and was always unwell. To me, now it's obvious it was a burn out. 

    I think I also kept things to myself though, mostly the mental health side of things. I was really attached to hanging onto my career in the beginning so I guess it's not surprising. I was probably my own worst enemy in getting diagnosed. 

  • Depression becomes the norm and anxiety becomes your go to natural way of thinking and perception. 

  • I played it down with a counsellor who just saw the depression, my GP 4 years ago was lost, so i sought a private clinical psychologist who twigged after 2-3 sessions. I data dumped and there were some things that stood out. I had a lot buried that I couldn't make sense of.

  • As a child you may have behaved in a certain way, that then received a punishment, the brain constantly learns, next time I will act this way. That receives a positive outcome, you have started masking and so it carries on.  We become very good at masking and believe our behaviour is normal to us.
    Many autistic people are treated for depression and anxiety, I don’t think many GP,s can see the reason past it. I was told that I didn’t produce enough serotonin. I stopped taking antidepressants in the end as I didn’t feel any different. 
    It’s  a shock when you finally realise you are autistic, it shatters who you think you are, it makes you question everything about yourself. I remember feeling hurt and angry, I’m reasonably intelligent, how did I miss this?

    I can remember coming home from work and most evenings having to lie on my bed and listen to music, I just thought I was tired.

  • Yes it was the other issues, I have had nhs mental health treatment for a while but limited amounts are available aren’t they. So I found myself a private therapist, it’s been a mix of stuff we have dug up from my past, but I think she’s noticed something others haven’t. 
    I'm glad i am not the only one who has been through this. 

  • Snap. If you can't talk about your struggles and keep the depression to yourself, feeling down in the evenings, save for the odd outburst, people might think you awkward or spiky or just think you're having a bad day.

    Depression is pretty common. It's not something anyone would mention unless you go to your GP and raise it. Then you'll underplay it, I did, and you just carry on.

    Then eventually it all gets to the point where you can't explain you behaviours, thoughts and past away and you suspect something is up.

    You seem to have come to the conclusion you''re autistic, but I never thought I was. I just knew something was wrong that I couldn't hide.

    Burnout or some similar crisis is the trigger for quite a few people. You normally think it doesn't seem that bad and you don't want to trouble anyone, there are worse off people, but you get to the point where you think I really need help.

    I don't think it is often the autism that causes people to seek help, its the co-occuring issues.

  • Oh I’ll have a little read later thanks. 

  • I am female and anxiety and depression have been part of me for quite a long time, but I’ve never been able to share my feelings and thoughts with anyone, even people who I am close to, so it’s taken this long I suppose because I kept it all hidden. I think I look ‘okay’ but I can be very emotional at times and over react to small problems. 

  • This article discusses the difficulties that have historically arisen due to outdated stereotypes and assumptions, and includes stories from other autistic women:

    NAS - Autistic women and girls

  • I’ve had mental health problems for quite a long time but never told anyone, until about 5 years ago and since then it’s just been depression and anxiety, I suppose they are the obvious signs and symptoms I showed, but caused by something deeper that I had hidden. Everything I read points to autism now though Worried

  • but just wonder how it’s not been noticed before now

    I felt exactly the same, you’d think something quite as well known as autism would/should have been picked up by a professional by now. When you start putting the puzzle pieces altogether and the bigger picture says; autism, it’s a bit of a shock. I do wonder if my psychiatrists over the years suspected but took my history into consideration and felt it may be more of a burden if I knew. Either that or they were not qualified to make that judgement and like you say some are high maskers.

  • Same way I made it to 56. You learn to cope and mask.

    Other people may have noticed but if you are good at masking and don't show the anxiety and other issues on your face, they just go along with it. People are mostly polite, unless you do something to really draw attention to yourself.

    Why say something if you are not struggling.

    If you are less outgoing no one says anything

    I just stuck to working and kept my private life private. No one needed to know I rarely went out or did much as I needed the time to recover.

    And if you work in environments where some of the traits are useful, you're a good employee. Since I never said no and didn't take all my leave and covered for everyone they were all happy. Fit in by people pleasing.

    But also, I think you are female, women were rarely considered to have autism until recently. So you might have been considered to have something else or just a bit quirky or highly strung.

    Autism does not have that high a profile, plus people tend to think of it as a learning disability, so if you look ok you can't be.

Reply
  • Same way I made it to 56. You learn to cope and mask.

    Other people may have noticed but if you are good at masking and don't show the anxiety and other issues on your face, they just go along with it. People are mostly polite, unless you do something to really draw attention to yourself.

    Why say something if you are not struggling.

    If you are less outgoing no one says anything

    I just stuck to working and kept my private life private. No one needed to know I rarely went out or did much as I needed the time to recover.

    And if you work in environments where some of the traits are useful, you're a good employee. Since I never said no and didn't take all my leave and covered for everyone they were all happy. Fit in by people pleasing.

    But also, I think you are female, women were rarely considered to have autism until recently. So you might have been considered to have something else or just a bit quirky or highly strung.

    Autism does not have that high a profile, plus people tend to think of it as a learning disability, so if you look ok you can't be.

Children
  • Yes, I know what you mean. I jumped from one to another and it was never easy. I worked in therapy and wonder how no one figured this out? It's mind boggling how 'hidden in plain sight' it is. We have to forgive others whilst still recognising the injustice. 

  • I have found working life hard along the way too. Not every part of it but I feel more than others. 

  • I am 53 and also wonder how it was never noticed. When I was retired from my job because of ill health, I saw many different neurologists and 3 therapists. I was assessed for fittness in my role so specifically they were looking at why I could not do certain things and was always unwell. To me, now it's obvious it was a burn out. 

    I think I also kept things to myself though, mostly the mental health side of things. I was really attached to hanging onto my career in the beginning so I guess it's not surprising. I was probably my own worst enemy in getting diagnosed. 

  • I played it down with a counsellor who just saw the depression, my GP 4 years ago was lost, so i sought a private clinical psychologist who twigged after 2-3 sessions. I data dumped and there were some things that stood out. I had a lot buried that I couldn't make sense of.

  • Yes it was the other issues, I have had nhs mental health treatment for a while but limited amounts are available aren’t they. So I found myself a private therapist, it’s been a mix of stuff we have dug up from my past, but I think she’s noticed something others haven’t. 
    I'm glad i am not the only one who has been through this. 

  • Snap. If you can't talk about your struggles and keep the depression to yourself, feeling down in the evenings, save for the odd outburst, people might think you awkward or spiky or just think you're having a bad day.

    Depression is pretty common. It's not something anyone would mention unless you go to your GP and raise it. Then you'll underplay it, I did, and you just carry on.

    Then eventually it all gets to the point where you can't explain you behaviours, thoughts and past away and you suspect something is up.

    You seem to have come to the conclusion you''re autistic, but I never thought I was. I just knew something was wrong that I couldn't hide.

    Burnout or some similar crisis is the trigger for quite a few people. You normally think it doesn't seem that bad and you don't want to trouble anyone, there are worse off people, but you get to the point where you think I really need help.

    I don't think it is often the autism that causes people to seek help, its the co-occuring issues.

  • I am female and anxiety and depression have been part of me for quite a long time, but I’ve never been able to share my feelings and thoughts with anyone, even people who I am close to, so it’s taken this long I suppose because I kept it all hidden. I think I look ‘okay’ but I can be very emotional at times and over react to small problems.