Newly started adult life and daily struggles.

Hello all, Its my first time on this forum. I joined I guess to see if there were other autistic individuals that suffer with similar struggles of day to day life. 
I’m 19. I got my official diagnosis in 2023, hoping that the paperwork and discussions would finally show to my mum and stepdad that there was an underlying reason as to why I don't like some things, or why I take a different approach in a lot of situations, but it did nothing, and meant nothing. Here I am two years later and it’s still like speaking to a brick wall whenever I talk to them. 
Out of frustration, and a general desire to feel comfortable in my own home, I ended up moving with my dad, where I could take as long as I wanted to write stories, read books, and play guitar, whilst baking for my family which I absolutely love. This was great, but then came along the issue of money - I had no way to survive once I’d ran out, and so after debating it for a while I moved to my friends in Scotland, where the support for neurodivergent people is much much better than England, and so this is where I’ve started my new life. Back in January, I began taking driving lessons which was hard seeing as that was the first true adult thing I have had to do. It feels weird even now, because mentally I feel younger and like I should still be on the sofa watching some comfort show without a care in the world about car insurance or MOTs or bills or whatever, but I can’t exactly escape that.

I passed my test in May, and I’ve been loving driving ever since - it’s the one thing I can do to just relax and get away - but it still feels wrong to be doing it.

Even more recently however, I have managed the task of getting a flat. Which is incredibly scary. Here I am thinking things would be simpler and now I’m stressing about electricity and broadband providers and all sorts. It’s hard as well being here, because even though I have one of my closest friends just down the road, I would enjoy it if I had even more friends to plan stuff with - everything just feels lonely, and it’s not like I can confidently go somewhere and just make friends like a lot of people. I would love to do road trips and camping and board game / movie nights with people.

Another thing I feel a lot is just wrong. If my hair doesn’t sit the right way, or isn’t a correct length when I want it to be, I feel incorrect, like there’s some sort of fuzziness in my brain. And it stops me from enjoying my day to day life now. Even changing clothes despite the hotter weather makes me feel weird. My first tattoo and piercing made me feel discomforted for ages. I’m always chasing and craving a certain “feeling” that was comfortable to me before, but I stress myself out because I know I cannot get that feeling back again. And one of the worst things I dislike about my autism, is the attachment to people. There has been so many times where I’ve made friends over long periods of time just to get incredibly clingy and attached, which leads to jealousy and stress, and when my anxiety has been at its worst, heart palpitations and shaking. It always ends with the connection dying and me in search of another friend again, and it’s damn exhausting.

My doctor tries to medicate me, and I was hoping at last I’ll find something to provide me with a degree of relief, so that I don’t feel scared and paranoid having a conversation with a stranger or going to the shops. But two of the main medicines haven’t worked, so no she refuses to put me on anything else until I try another method, but I don’t think she understands that autism isn’t something I can magic away with a wand. I just want something to keep it a little calmer, not that I unmask a lot because I forget what that even feels like anymore. I didn’t realise how hard it could be to manage life without friends and family close by, but I guess I have to now.

I would love to be an author, or a songwriter. I have many book ideas centred towards horror and surrealism that I’d love to write properly, but I’ve only had one idea that I’ve got decently far before starting 30 others. Music wise I love older stuff like the Beatles, rush, Genesis, pink floyd, Motörhead, Judas Priest etc, and I used to go with my uncle to all these pub gigs with all these rockers from the 70s and it was great, apart from feeling a bit out of place in a shirt and tie. But I love old fashioned clothing from the 40s - 50s so that’s another identity crisis all in itself.

I appreciate anyone who read this. Stuff feels heavy sometimes so it’s nice to get that weight of my shoulders.

  • I suppose I could try. The main issue with that is anxiety really - it stops me from even considering the possibility of going out to meet others, but I’ll have a look online and see if I can convince myself to go out. I think it would be fun to meet some people who enjoy books and can talk about our favourite ones!

    Thank you for writing to me. I understand what you mean in regards to the safety level, I find it helps talking to people when there’s something primary to bond over.

  • I didn’t realise how hard it could be to manage life without friends and family close by, but I guess I have to now.

    You have a great list of interests, I wondered if you had tried finding any groups / events / venues (local to where you live now) where you might meet people who also are more likely to appreciate your interests too?

    For example, I enjoy looking at gardens.  So when there are gardens open to the public; I try to make the effort to visit those places. 

    Although I don't visit the gardens thinking "going to make a new friend today" - it is more likely that any social interaction with new people there will probably be about topics of my interest and by people on my wavelength. 

    I enjoy that both the oldest and the youngest fellow visitors may spontaneously share their enthusiasm for the place with a stranger (such as me) - it is interesting to hear their points of view - as somehow, the shared interest seems to reduce some of the usual communication barriers, or naturally reserved natures of those garden visitors.

    I suppose that we kind of borrow each other's company at the time and connect via our shared interests as a sort of safety level.

  • Thank you for taking the time to comment! I have just started therapy the other day so I hope that this will provide some better understanding of my own feelings.

    I’ll definitely discuss it with my GP. I do believe that there are a few things that medication could help with however.

    That sounds so cool, I’d totally read your stories, I love a good western theme. A music composition professor is incredibly impressive, I bet it’s a wonderful feeling to know how things work together. I’ll maybe take you up on that offer sometime Slight smile

    thank you!

  • Dear Cheeseburgermccartney,

    Thank you for sharing this with our community.

    As a starting point, you may wish to read over our information on benefits: https://www.autism.org.uk/advice-and-guidance/topics/benefits-and-money/benefits 
     
    You can also find more information on benefits through the Citizen’s Advice website: https://www.citizensadvice.org.uk/benefits/ 

    Thank you. I hope this helps!

    With all good wishes,

    Eunice Mod

  • Good morning Cheeseburgermccartney,

    I’m sorry to hear that some things have been a struggle in your transition into adulthood and that there have been some family issues as well. However, from what you have said it does sound like you made some really big accomplishments!

    In regards to the issues you face with friendships, my recommendation is to consider maybe getting counseling. That could possibly help you to work through feelings of jealousy, anxiousness, and obsessiveness in your relationships.

    I don’t think she understands that autism isn’t something I can magic away with a wand. I just want something to keep it a little calmer

    From my understanding, medication is primarily going to work best if you treat a comorbid condition such as depression or anxiety. That might be something to discuss with your GP is whether you could treat something other than the Autism itself.

    I also write surrealistic horror from time to time, too! Mine often dips into the fantasy genre as well, though lately my last couple ideas have been western themed. I’m a former music composition professor, so if you’re ever looking for advice on writing music, let me know!

    Wishing you the best.