The emotional side of helping children with special needs: how do you cope when you can’t do it all?

Hello everyone,

I come from a community where autism and cerebral palsy are still deeply misunderstood. Many families face blame, rejection, or even accusations of witchcraft. I’ve seen mothers abandoned, children hidden, and countless people suffer in silence, all because of stigma and lack of awareness.

Some mothers come to me in tears, begging me to take their children and care for them because they can no longer cope and it breaks my heart. I wish I could help them all, but we’re still a small initiative, just starting, with no funding yet to provide full time care. Sometimes I listen to their stories, see their tears, and I also feel like crying. Many parents don’t even know what autism is. Some ask me questions like, “But what exactly happened to my child? Will he be okay? Will he ever be like the other children?” Their pain is real, and so is their confusion and it stays with me long after our conversations end.

I know many of you have faced similar struggles, maybe in different ways or places. I’d love to hear:

How do you care for your own emotional health?.

For sure sometimes i feel like crying, Have you ever felt guilty for not being able to do more even when you know you’re already doing your best?

What do you say to a parent who asks, "will my child ever be like the others?" when you don’t have a clear answer yourself?

Parents
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  • Dear Bananatropics26,

    Thank you for contributing towards the Online Community.

    We would like to remind you of rule 6 of our Online Community rules: No medical or legal advice. Do not offer medical or legal advice. Always seek professional help for these matters. Treat any medical or legal information shared as the opinion of the user who posted it and meant for general discussion purposes only. 

    You may want to look at the National Autistic Society's What is Autism? webpage: https://www.autism.org.uk/advice-and-guidance/what-is-autism 

    They explain 'Why some people are autistic?':  

    Evidence suggests that autism is genetic. Scientists have been attempting to identify which genes mean someone is autistic. It is likely that there are multiple genes rather than a single gene. 

    There is no link between autism and vaccines. A lot of research has focused on this over many years and the results show that vaccines do not cause autism. 

    Autistic people are autistic for their whole life. There is no evidence that autism can be acquired. For example, autism is not caused by parenting style. And an autistic person cannot become non-autistic. Read more about this on our page Warning: So-called cures and dodgy interventions.

    Kind Regards,

    Rosie Mod

Children
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