Increasingly frustrated!

Hey there, 

I’m new here, I was recently diagnosed (talking 2 weeks ago).

So, since being diagnosed, I’ve been getting increasingly frustrated with myself for not being able to understand or feel stupid because it’s like I’m missing the vital piece of information but everyone else knows it, like it was common knowledge.

How are you late diagnosed managing to cope? I just seem to be angry at myself for misunderstanding all the time & I’m always exhausted too, which is also really frustrating. I work full time & work with people directly too so I suppose that’s why I’m always exhausted but still it’s frustrating not being to function ‘normally’

thanks in advance 

Parents
  • Before you were diagnosed did you not misunderstand things? Or was it just that you were not aware?

    Once you are aware of things you will notice them more. This may be good and bad, but gives the chance to feel less confused. You can ask for clarification if there are things that are not clear instead of guessing.

    Saying back to people what they have said is considered a good technique for anybody, and part of active listening. Not necessarily after every sentence, but summarise at points. E.g. you have told me you have this issue, or want this thing done, is that correct? Or, you want me to do this, correct?

    Most people will not be bothered by you confirming things if they are not clear.

    I'm assuming you are mostly interacting with people verbally.

    Diagnosis is not a magic wand to stop it but gives you some understanding of yourself. How you then adapt to your situation is up to you. 

    Don't feel stupid or blame yourself, you need to accept yourself. While it is tempting to think everyone else is fine, they have their own issues and often they make assumptions that are not correct. You are not better or worse.

    Also take regular breaks to help reduce feeling exhausted.  This will help you to process stuff better and not miss things. Try not to replay conversations and overanalyze everything, it may not be easy, but it will save energy.

  • I most certainly did misunderstand things before diagnosis but I was blissfully unaware and thought it was normal that people spoke in riddles, by that I mean saying one thing but meaning another 

    I think I’m going to try that out, I have mad fears of embarrassment and rejection so I find it difficult to ask people to clarify, although that being said I’m going to start small, maybe with family and friends then expand it to my colleagues etc - thanks for the advice 

    Thank you for the reassurance, I think I needed to hear that, I’m finding it difficult to adapt to the idea that I’ve never been stupid & none of it was my fault, but after doing that for the most part of 31 years, it’s rather difficult 

Reply
  • I most certainly did misunderstand things before diagnosis but I was blissfully unaware and thought it was normal that people spoke in riddles, by that I mean saying one thing but meaning another 

    I think I’m going to try that out, I have mad fears of embarrassment and rejection so I find it difficult to ask people to clarify, although that being said I’m going to start small, maybe with family and friends then expand it to my colleagues etc - thanks for the advice 

    Thank you for the reassurance, I think I needed to hear that, I’m finding it difficult to adapt to the idea that I’ve never been stupid & none of it was my fault, but after doing that for the most part of 31 years, it’s rather difficult 

Children
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