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Regression

JT

Since being diagnosed in 2020 I have been working hard to accept myself, adjust life to accommodate the things I struggle with.

But I have noticed that increasingly I am unable to do many things I used to be able to do: take public transport, work in teams, work with screens for long hours without getting a migraine.

I was interested if any of you have experience regression post-diagnosis?

Parents

  • I'm self diagnosed as of 3 years ago, but I've also noticed this. I no longer have the spoons to teach fitness classes or work in busy environments. My memory seems to have worsened, and I also don't make much eye contact when I'm out in public due to the risk of RSD if my nod or smile isn't returned. I also only talk to friends online now because face to face meetings are so exhausting.

    I do think that a lot of my regression is a mixture of burnout and also unmasking. Recognising that I'm AuDHD has helped me to realise what drains me and/or triggers me, so I actively avoid those scenarios or environments in an attempt to keep myself safer and happier.

    Unfortunately that does mean my social and employment options are more limited these days. There's no way around that though if I want to continue to function.

Reply

  • I'm self diagnosed as of 3 years ago, but I've also noticed this. I no longer have the spoons to teach fitness classes or work in busy environments. My memory seems to have worsened, and I also don't make much eye contact when I'm out in public due to the risk of RSD if my nod or smile isn't returned. I also only talk to friends online now because face to face meetings are so exhausting.

    I do think that a lot of my regression is a mixture of burnout and also unmasking. Recognising that I'm AuDHD has helped me to realise what drains me and/or triggers me, so I actively avoid those scenarios or environments in an attempt to keep myself safer and happier.

    Unfortunately that does mean my social and employment options are more limited these days. There's no way around that though if I want to continue to function.

Children
  • in reply to Paul

    Paul, everything you said is so familiar, I think I have a large case of RSD now too.

    Just one thing when you mentioned that your memory is worse. I found that during lockdowns I really struggled remembering names, it got so bad that I started to worry I had the early signs of dementia. Then one day I was reading an online article that this was actually a growing problem during lockdown amongst lots of people because they weren't exercising their brains normally, being isolated. The brain is like a muscle, if you don't use it you lose it. When the lockdowns ended I went back to socialising as much as I could with friends and family and gradually got my memory back after perhaps 3 months or so.

    This seems to fit with what you're saying with now that you're doing less socially and workwise?