Recalibration

Dear NAS Community,

Just saying 'hello' now that I'm in the club (still waiting for my badge and certificate... Wink).

I received my diagnosis just a few weeks ago (I turn 50 next month). The clues were always there, but it was only when significant changes at work started that my wife persuaded me that getting a formal diagnosis might be wise. I am a teacher and head of department, and enjoy the routine, the relative autonomy, and ruling my own (mini) domain. I was extremely fortunate that my assessment was expedited (I don't know the reason, but suspect a combination of postcode lottery and comprehensive list of evidence provided for the referral) and was seen in only 3 months, rather than 3 years. The process itself left me feeling raw and vulnerable, but the team were fantastic, and I had an excellent follow up appointment last week, in which I was able to discuss all of the challenges I face on a daily basis. and I am looking forward to receiving information signposting services and organisations to support me in the future, based on that discussion.

Post-diagnosis, I am trying to be more accepting of (and kinder to) myself. I am open with friends and colleagues about my diagnosis and am happy to talk at length about it to anyone who will listen (it has fast become a new special interest Laughing). It still isn't easy, though. It seems like everything I knew about my position in the world has been shifted, and I'm still trying to recalibrate to life through this alternate lens. I am also having to face up to challenges that have always been there, but have been masked, camouflaged, glossed over or simply avoided or ignored.

I have a loving wife and kids, but they are now coming to terms with the fact that when I said things like 'I don't miss you when you are away, I just note your physical absence...' it wasn't a joke. They are having to recalibrate as well. The love is still there on both sides, but it is the realisation that the love language is incomprehensible much of the time (on both sides) and this is unlikely to change... so how to move forward with this new understanding?

I am conscious that I have used alcohol as a tool, a crutch, a friend, an anaesthetic, an excuse and in countless other guises over the decades, and clearly have an unhealthy dependency, for which I have precisely zero motivation to change - is this an Autism thing, or just me?

I shun social interactions in favour of my 'cave' and my own interests - I don't have a problem with this, but I am aware that my family struggle with my preference for solitude and solitary pursuits.

I have lived as me my entire life, but now I have no idea where the real me ends and the masked me begins... can they be separated? Are they one and the same or two separate entities? So much to get my head around that I return instead to my gaming console and alcohol...

If you made it this far, thank you. If you can offer any pearls of wisdom on dealing with any of the above, I'd be extremely grateful.

Parents
  • Congratulations on your diagnosis and welcome to the community!

    It's great to hear that you've already received some post-diagnosis support and expect to receive more information on that soon.

    In case you haven't seen it, the NAS also has some great resources here:

    NAS - After diagnosis

    I have a loving wife and kids, but they are now coming to terms with the fact that when I said things like 'I don't miss you when you are away, I just note your physical absence...' it wasn't a joke. They are having to recalibrate as well. The love is still there on both sides, but it is the realisation that the love language is incomprehensible much of the time (on both sides) and this is unlikely to change... so how to move forward with this new understanding?

    On this specific point, I recommend this book. It focuses on helping autistic + neurotypical couples to work on their relationships through improved mutual understanding and communication, complete with exercises that you can both complete and discuss, if you wish:

    Loving Someone with Asperger's Syndrome: Understanding and Connecting with your Partner

    Note: the book was written when Asperger's syndrome was still an official diagnostic term, whereas this now simply falls under Autism Spectrum Disorder / Condition (ie autism). 

    Caveat: when moving from discussion of one issue / scenario to the next, the author often switches which of the partners is neurodivergent (him / her), which can make it a little confusing until you've worked out who's who each time. But that inconvenience felt well worth the effort to me.

    You and your wife might also find this NAS resource helpful:

    NAS - Family relationships - a guide for partners of autistic people

Reply
  • Congratulations on your diagnosis and welcome to the community!

    It's great to hear that you've already received some post-diagnosis support and expect to receive more information on that soon.

    In case you haven't seen it, the NAS also has some great resources here:

    NAS - After diagnosis

    I have a loving wife and kids, but they are now coming to terms with the fact that when I said things like 'I don't miss you when you are away, I just note your physical absence...' it wasn't a joke. They are having to recalibrate as well. The love is still there on both sides, but it is the realisation that the love language is incomprehensible much of the time (on both sides) and this is unlikely to change... so how to move forward with this new understanding?

    On this specific point, I recommend this book. It focuses on helping autistic + neurotypical couples to work on their relationships through improved mutual understanding and communication, complete with exercises that you can both complete and discuss, if you wish:

    Loving Someone with Asperger's Syndrome: Understanding and Connecting with your Partner

    Note: the book was written when Asperger's syndrome was still an official diagnostic term, whereas this now simply falls under Autism Spectrum Disorder / Condition (ie autism). 

    Caveat: when moving from discussion of one issue / scenario to the next, the author often switches which of the partners is neurodivergent (him / her), which can make it a little confusing until you've worked out who's who each time. But that inconvenience felt well worth the effort to me.

    You and your wife might also find this NAS resource helpful:

    NAS - Family relationships - a guide for partners of autistic people

Children