Where do people like me, meet people like me.

I know this may seem like a dumb question. When an ex-colleague, and then my GP mentioned autism, the first thing I did was try to find some kind of support groups that met up in person. I couldn't seem to find any. Is it something that doesn't happen, or am I not looking hard enough. I think talking in person to people in the same situation might be beneficial. Thanks for your time.

Parents
  • I think it's harder when you're older, most groups seem to be aimed at young people, I've yet to find any that suit me, partly because they're attached to a service I don't like or find helpful and again they seem full of young people. Also I think if you don't live in a city then your options are limited

  • I've had the same problem. I joined Bluesky which has a lot of feeds and groups dedicated to Autism but the vast majority of users are people much younger than me (I am in my mid-50s) who seemingly speak a different language! 

  • I don't know what Bluesky is, I'm guessing its some sort of social media platform?

    I wish we could have some groups or something that are for people over 40 say? But then when I've tried groups for older people I've been bored, I've tried groups specific to my interests and found that people post on them about once or twice a year.

    I find many people here speak a different language to me and not just the young ones, I don't do emojis, I don't know what half the terms for describing what type of autism you have mean and I don't think I was tested for any of them or told if I were, let alone what they mean. Local groups are only really interested in making sure you have the right benefits and have ignored me or told me they don't do these things when I've asked for needs assessments etc.

    All the groups I've had contact with seem to think that everyones great with tech and I'm really not, so they don't know what to do with me. Also so much seems so simplistic, much of it I'd come across in other circumstances, like spoons and that seemed to annoy them, but I'd read about spoons in womens magazines years ago for helping to manage things like ME. They also seem to assume that as an older autistic person that you have no caring responsibilities and all the other things that come with getting older, trying to talk about those was met with "we don't  know anything about that and don't deal with it", mostly they didn't understand to the point where I was speaking loudly and slowly to them in an attempt to explain. I've given up now, I don't have the spoons to cope with the general incompetance and lack of understanding.

Reply
  • I don't know what Bluesky is, I'm guessing its some sort of social media platform?

    I wish we could have some groups or something that are for people over 40 say? But then when I've tried groups for older people I've been bored, I've tried groups specific to my interests and found that people post on them about once or twice a year.

    I find many people here speak a different language to me and not just the young ones, I don't do emojis, I don't know what half the terms for describing what type of autism you have mean and I don't think I was tested for any of them or told if I were, let alone what they mean. Local groups are only really interested in making sure you have the right benefits and have ignored me or told me they don't do these things when I've asked for needs assessments etc.

    All the groups I've had contact with seem to think that everyones great with tech and I'm really not, so they don't know what to do with me. Also so much seems so simplistic, much of it I'd come across in other circumstances, like spoons and that seemed to annoy them, but I'd read about spoons in womens magazines years ago for helping to manage things like ME. They also seem to assume that as an older autistic person that you have no caring responsibilities and all the other things that come with getting older, trying to talk about those was met with "we don't  know anything about that and don't deal with it", mostly they didn't understand to the point where I was speaking loudly and slowly to them in an attempt to explain. I've given up now, I don't have the spoons to cope with the general incompetance and lack of understanding.

Children
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